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Leg/Butt Pain. Muscles Twitching> Herpes Related??

I'm a 26 yr old male that has never had any health issues or problems in my entire life beside the occasional cold/flu that everyone else gets. That all changed a little over 4 months ago.

Had brief unprotected oral sex from a girl i met the day before and about 40 secs of brief unprotected intercourse. The rest was protected sex. 6 days later while driving, I began experiencing short sharp random stinging pains in my groin mostly above the right testicle area but the pain didn't feel like it was from the testicles.More like deeper in the groin. Also, my perineum area felt swollen like I was sitting on something near my rectum. 1 day later i got a sore throat and my neck lymph nodes felt slightly swollen. 2 days after that, I noticed a raised bump on my penis shaft on the bottom right side. It looked like it maybe an ingrown hair cause it didn't hurt and it never turned to a blister but I have never seen a bump on my penis like that before. Also, when i would shower, I would feel a sting in one area on the rim of my penis head when the water from the shower head touched it but there was never any sign of redness, bumps, cuts, or abrasion whenever i checked it.This weird pain lasted in the penis head rim for almost 2wks. Went to get tested for all STDs/HIV and all tests came back Negative. I know 1 week is too soon for HSV and HIV test but both were negative so I had no previous exposure. Urine sample, clean. Girl also said she was clean on everything but i'm not convinced she had herpes testings. Doctor did turn and cough test on me and said I might have a hernia. Doctor looked at bump and thought, ingrown hair or irritation. Prescribed 10 days of Doxy as a precaution if I had any bacterial infections. The bump went away in about 3-1/2 days. Had a surgeon rule out hernia and thought pain was due to some type of strain.
Then got sick with cold-like symptoms that lasted almost 2 weeks. Very rare for me. Was treated for sinus infection. During this time, i developed the random burning pain up and down both legs and buttocks, sometimes in arms and back. Then the muscle twitchings started. mainly in legs when i would sit and relax. Every couple days or so I would notice very tiny tiny white head like pimples on my penis shaft that would last for like maybe a few hrs or so maybe 1 day tops. Never more than one at a time. They looked just like pimples you get on your arms or face but then again, I've never seen this on my penis before. Ever.
Got blood tested again for HSV and HIV at 6 wks. Tests came back Negative again. Showed doctor one of the tiny whitehead pimples and he said it wasn't herpes.
The random pain in my body, mainly in the legs, groin, penis, and buttocks have been on and off ever since. I seem to get a pain in my penis minutes after i urinate every now and then but never while urinating. Urologist said I may have prostatitis but all my urine samples have been clean for bacterial infections. The swelling in my perineum was gone by then but I still feel the random groin pains.

Still convinced that I had something wrong with me, I went and got tested again at 12wks. HSV 1 and 2 were again Negative. All herpes tests have been Herpes Select Type specific IgG. I began to believe that i didn't get herpes but then the pains would come back and change all of that. I then got another bump like the one i described in the very beginning near the base of the penis by the pubic hair region which again didn't hurt. Doctor saw it and said she was certain it wasn't herpes and was probably folliculitis/ clogged hair follicle. Bump completely went away in about 5 days.

It has now been almost 5 months past expose and i still don't feel normal. Some days i would have a day or two of little to no symptoms but then it would all come right back. I don't know what to think. This issue has been driving me crazy. If its not herpes, then what is it? The bumps i got don't point to herpes but all the nerve pain and constant non-stop muscle twitching mainly in my legs seems to say that it may be nerve damage from herpes. I have done tons of searching on the web and I have seen ppl saying they got leg twitchings from herpes but all the experts don't seem to think its related. I take all sorts of vitamins so, i can't have any deficiencies. And i had an xray of my back to rule out spinal abnormalities. My next step will be an MRI of the spine but I'm almost certain it will show up normal.

I try to live a normal as possible life so i won't get stressed over this but the symptoms won't let me move forward. Anybody experienced these issues but never tested positive for herpes or any type of virus? Sorry for the long post but i wanted to give everyone specifics of what I'm going through. I actually left out way more information but that's just how complicated these past 4-1/2 months have been for me. Any help is appreciated.
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Avatar universal
Hello, It certainly seems like a strange coincidence that you started having all these problems after sleeping with that woman.  Nerve pain is very real when dealing with the herpes virus.  Pain associated with urinating also.   If you do have it, I have read the antibodies could take a year to show up. And some people who test positive on the sores will test negative in the blood.  I wonder if you could ask the Dr. To test a sore just to make sure. I've heard they can be mistaken for ingrown hairs.  Everybody is different and your immune system is putting up a fight for something.  Best of luck to you.
Helpful - 1
Avatar universal
I am having like the same exact symptoms and I still have not tested positive for hsv 1 or 2, if you end up finding out what is wrong could you please let me know cause I literally have like the same problems and it doesnt make any sense
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Avatar universal
Sparkii-

Thats exactly what I'm saying!! I know these aren't typical classic symptoms of herpes but I've researched that herpes can be the culprit of many things since its a virus. All things that I am currently experiencing. Which is why I'm so torn on what is going on. All the symptoms point to herpes but I wont test positive for it. And I'm clean for all other stds.
Helpful - 0
Avatar universal
Jamesap2-
How long have you been having these symptoms and have u been tested for anything? What were your results if you were and long after exposure did u test? I can't imagine dealing with this problem for the rest of my life.
Helpful - 0
Avatar universal
Jamesap2-

How long have you been having these symptoms and how many tests have you had? How long after exposure did you get tested? I'm just curious cause there's alot of us out there with the same story but dont get a diagnosis. I'll be damned if I continue to have these symptoms after being perfectly healthy and never get an answer.
Helpful - 0
101028 tn?1419603004
don't get caught up into thinking it has to be herpes related.  most of the folks who have symptoms like this, never tested positive for herpes regardless of the testing. I know it's annoying to be seen frequently but it's the best way to figure out what is going on. A neurologist and an urologist can work together too.
Helpful - 0
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