Tingling after Swine Flu Vaccine Chapter 2

[coriecl]

Here is the continuation of surfnsand247's original Tingling after Swine Flu Vaccine.

[cathy54321]

Hey Everyone - Glad to see that we have reconvened here somewhat. I will look at creating the user group next week - I am swamped and am traveling again.

Feeling decent. Some days better than others, and the good days are so good I could do a happy dance! The rest of the time, I just try to deal as best I can, like all of us here.

I think it's really important to stay connected. This is my priority - I want to keep communicating. Please don't stop posting here.
We need to see if the 'user group' is viable for us. Some folks may prefer to keep this forum open - not sure. Let me check it out and I can report back here.

Thinking of you all - hope eveyone had a good day,

Cathy

[cthargest]

Hi Corie

I hope that you come back and post again otherwise these others have won and wrecked it for us!! I hope all is well with you


Kaylee   yep I get that racey irregular heatbeat if I have any alcohol and its the same with any caffine  And that includes Chocolate!! And Foggy brain  well   mine is really bad and I suppose it has improved in the year(nov 27th) But its not up to scratch at all and its scarey

Cathy  I bet all this sorting out and upset has taken its toll on you. Hope you are ok and work not too wearing

Chris

[Kaylee83]

Hey guys,

All this talk of wine and champagne, I haven't had a drop of alcohol since before this drama. I am worried about the way it will effect my nerves/heartrate/already foggy brain. Is this unreasonable? Does alcohol effect you any differently to before?

[coriecl]

Cathy: thanks for your efforts in trying to create or re-create our group that was much more positive and supportive in the past. I hope you are able to set parameters that will make this possible, since I am hesitant in posting again without them. I did just want to post one more time here, however, to thank you.

Carmen: our thoughts are with you on the 29th, your "hellniversary". I hope you drink some champagne to celebrate how far you have come from that day!

Corie

[fit4nelson]

Hi,

I am fairly inconsisten on here, as the two little kids are demanding.  So it is only when I have insomnia that I think of checking in.

Wow, a new site?  Cathy...let me know how that goes.  I still owe you a call, and have been trying ever since...thinking of you!  talk soon

The eye stuff...yes, yes, yes...I have dry eyes often too, when I wake up...but not everyday. And I don't even have any good advise from my optometrist husband...(other than no visine, just lubricating tears).  

My symptoms are still coming and going.  One day I will be pretty good, and then one day, or a half a day I will have pain/numb/muscle tightening/muscle exhaustion and it strikes in my hands/arms, legs/feet.  I have been off of the excersize right now, I will go back to very light stuff.  I am feeling better since my relapse though.


We had a very huge vacation planned for our 5th year anniversary, planning over  a year, and I cancelled it b/c I can't be sure I will feel as good as I need to, to spend that kind of money...you need to feel your best.  I feel good about the decision, but wow...this set back has become a very big part of my life.

In two days it will be one year.  Oct 29, 2009.

My new motto:  focus on what I can do, not on what I can no longer do

my best regards to all

[cathy54321]

Hi Everyone,

For those of you who may not know - some off the posts of the last few days have been removed. These comments were in response to a few posts that seemed (to me, in my opinion) negative, abusive, and destructive. SImply: I responded in kind (as did a few other folks and everything was removed)

I am working on starting a 'user group' for this forum - a place where we can set different parameters and focus on healng and supporting. I have not had time this weekend - but will look into this ASAP - the moderator Lira has been very helpful with this.

I needed to take a break for a few days, but am back and trying to give an explanation for the moderator's intervention - am still dealing with symptoms and passed the 10 months mark. All in all, slowly but surely, still moving forward. Still the biggest challenge and learning of my life - and working hard to move forward and be happy. As I am sure you all know: it takes a certain amount of commitement to stay focused and work at seeing the positive and (although slow) the progress we are all making.

Keep climbing...love and light to you...

Cathy