Aa
Strange smell following me
I've posted same question on OCD board, cause my psychiatrist thought I was nut and obsessive, and people on that board really tried to help me(appreciate them) but nothing is solved yet and I'm so desperate I post here same question again,
It'll be a long post, would u plz spare some time to read it and help me?
1. I used to have IBS always, since infant. Every kind of IBS. But I never had any problem related with smell.
I sometimes had body odor when I ate spicy food or the summer was too hot, but usually I've been O.k.
UNTIL NOW.
2. some years ago, I stayed in a very hot and humid country, so I ate tons of cola and sweets to cool me down, usually i don't like sweet foods, but hot weather changed me.
and I traveled so many places, had lots of stress.
Since then, I encountered strange things happening around me; people looking at me puzzled, or 5 minutes after I entered a room the people in there all leave except me, or person sat next to me suddenly change seats to FAR away, or people around me bend their back and hide their faces like there is some fire smoke.
but I had no idea and didn't care about that things, thinking I'm tired from the travel.
3. After i came back home, things became more noticeable.
I became sooooo gassy. I am usually gassy person but this was crazy. I was gassy every five SECONDS. and smell was awful. I thought maybe this was the reason people avoided me and was disgusted of myself
I tried everything to make me normal. Living on nearly only vegetables or fruits, lots of laxatives, or probiotics, I tried everything whatever named 'gut cure'.
then my gas subsided and smell became manageable.
4. Then, MYSTERY THING started to happen.
I cured my gas problem somehow but people reacted more furiously, like I am farting 24/7.
i didn't fart, even if I did it involuntary, it wouldn't be for 24 hours. but people reacted like I smell 24/7.
first couple of months i couldn't smell myself, but i started to notice random whiff of it.
It was like dead animal, or rotten sewer, or really nasty fart smell, or just smell of my inside gut. I didn't know where the hell is that coming from.
I was freaked out. Since I could smell my BO(?) I religiously tried everything to sanitize my gut.
5. about 2 years of trial made me better. the odor emitted from me subsided and people's reaction became less.
I lived on nearly small portion of grains and lots of vegetable, and some fishes. No sugar, No junk.
Strange thing is, though the smell become lessened, I vigorously started emit gas or odor through my entire body or pores.
Even small bit of spicy food or smelly food like onion made me emit some terrible odor to FAR FAR AWAY.
so people walking ahead 100 meters could smell me and turn around.
and the smell became more like not HUMAN, it was like sewer or food itself or fecal matter still in my small intestine.
and I was no more gassy. Gas just seeped out through my body. Not coming out through rear end. (sorry for being graphical)
6. My family or friends or Docs cannot smell me. When I confided this problem to them, one of my friends called me mental. My family and friends are all brutally honest and don't care much about my feelings, they are not lying.
Docs either couldn't smell me even when I could smell entire room is filled with my sewer smell. I know I'm not hallucinating because all patients in the waiting room was looking at me with anger and discomfort. I'm not ugly and I don't usually draw attention, their eyes were saying 'YOU SMELL TERRIBLE'.
7. I did many tests physically, all came out normal. So angered docs got tired of me and kicked me to psychiatrists.
They can't smell me too. Just five minutes ago passengers in subway covered their nose and glared at me, my shrink just said 'It's in your head'.
and they prescribed me several anti-depressants or sedatives.
anti-depressants worsened my symptom, sedatives made me feel better and weakened symptoms, and anti-psychotics made symptom a bit better but side effect was so huge i quit them. Now i only take benzo to manage everyday life. (It doesn't clear the smell, but lessen the density)
8. It's been 5 years and i'm still living in nightmare.
My family don't approve my problem and family budget became wreck, so my parents forced me to work in their store.
I lost many customers at my shift. Many people glared at me or laughed at my face or frowned and never came back. Staffs working at my neighbor stores doesn't come anymore. I told this to mother but she denies denies denies, saying 'it is economic crisis'.
What kind of economic crisis make customers frown and never come back to my store when we are lodged just next to their houses?!!!!!
I gave up persuading my family and just force myself to go work, cause If I quit we'll have financial problem.
I have a brother who is 'genuinely psychotic so my parents don't count on', he is nearly 40 but still live with my parents and doesn't work, doesn't socialize with anyone, addicted to online games, doesn't do house chores.
So my parents depends on me, I can't just quit and become home-bound like my brother.
While at the same, I'm losing my mother's customers because of my smell.
Hell loop, isn't it?
9. It's been a long post with lousy grammar, thx for reading this.
I just don't know what to do. I don't know what the hell is this. No ancient medicines describe this kind of things, no conventional medicine noticed this(though they are starting to notice a bit and named it olfactory reference syndrome)
I always had IBS. and this seems to related to IBS. But even severe IBS patients don't usually have this.
Before this symptom started, even when I had terrible diarrhea I didn't emit any odor.
Now my body seems trying to emit odor no matter what I do. I tried every kind of supplements and tried several traditional medicines, took many many test, even went to psychiatrists. Nothing worked. Only xanax makes me feel a bit better(or make me numb), and being careful not to eat spicy thing works somehow.
10. Now I'm not a walking abomination for 24/7. Some days are good some days are bad. I honestly don't know what is actual trigger.
One day I don't have any odor so customers are so nice to me.(I'm rather good looking and people like my personality)
then the next day i emit strange odor, customers stop smiling and become rigid face, and never come back.
I don't know how this store still managed this far while I cleared out entire store with my smell.
Xanax make the smell less frequent, vegetable or coffee makes the smell less naughty. so I'm basically living on switching xanax and coffee. (weird, isn't it?)
I'm thinking one day I take xanax and next day have coffee. Taking only one of them doesn't work.
11. Really become long post, this is last paragraph. Today I think I lost another couple of customers. one of them even waved their hand to dishevel the odor. Some said 'what the smell is that....' under their breath. Some coughed or become grimace.
I AM TIRED.
I don't hope being respected or being liked anymore. I just wish people don't hate me or talk back behind me.
I just want to die but thinking of my parents I can't.
thanks for reading.
Is there anyone who can help me?
I wish I was mental and everything was just hallucination.
I truly wish I were schizophrenia and I will trade this syndrome with cancer. I MEAN IT.
It'll be a long post, would u plz spare some time to read it and help me?
1. I used to have IBS always, since infant. Every kind of IBS. But I never had any problem related with smell.
I sometimes had body odor when I ate spicy food or the summer was too hot, but usually I've been O.k.
UNTIL NOW.
2. some years ago, I stayed in a very hot and humid country, so I ate tons of cola and sweets to cool me down, usually i don't like sweet foods, but hot weather changed me.
and I traveled so many places, had lots of stress.
Since then, I encountered strange things happening around me; people looking at me puzzled, or 5 minutes after I entered a room the people in there all leave except me, or person sat next to me suddenly change seats to FAR away, or people around me bend their back and hide their faces like there is some fire smoke.
but I had no idea and didn't care about that things, thinking I'm tired from the travel.
3. After i came back home, things became more noticeable.
I became sooooo gassy. I am usually gassy person but this was crazy. I was gassy every five SECONDS. and smell was awful. I thought maybe this was the reason people avoided me and was disgusted of myself
I tried everything to make me normal. Living on nearly only vegetables or fruits, lots of laxatives, or probiotics, I tried everything whatever named 'gut cure'.
then my gas subsided and smell became manageable.
4. Then, MYSTERY THING started to happen.
I cured my gas problem somehow but people reacted more furiously, like I am farting 24/7.
i didn't fart, even if I did it involuntary, it wouldn't be for 24 hours. but people reacted like I smell 24/7.
first couple of months i couldn't smell myself, but i started to notice random whiff of it.
It was like dead animal, or rotten sewer, or really nasty fart smell, or just smell of my inside gut. I didn't know where the hell is that coming from.
I was freaked out. Since I could smell my BO(?) I religiously tried everything to sanitize my gut.
5. about 2 years of trial made me better. the odor emitted from me subsided and people's reaction became less.
I lived on nearly small portion of grains and lots of vegetable, and some fishes. No sugar, No junk.
Strange thing is, though the smell become lessened, I vigorously started emit gas or odor through my entire body or pores.
Even small bit of spicy food or smelly food like onion made me emit some terrible odor to FAR FAR AWAY.
so people walking ahead 100 meters could smell me and turn around.
and the smell became more like not HUMAN, it was like sewer or food itself or fecal matter still in my small intestine.
and I was no more gassy. Gas just seeped out through my body. Not coming out through rear end. (sorry for being graphical)
6. My family or friends or Docs cannot smell me. When I confided this problem to them, one of my friends called me mental. My family and friends are all brutally honest and don't care much about my feelings, they are not lying.
Docs either couldn't smell me even when I could smell entire room is filled with my sewer smell. I know I'm not hallucinating because all patients in the waiting room was looking at me with anger and discomfort. I'm not ugly and I don't usually draw attention, their eyes were saying 'YOU SMELL TERRIBLE'.
7. I did many tests physically, all came out normal. So angered docs got tired of me and kicked me to psychiatrists.
They can't smell me too. Just five minutes ago passengers in subway covered their nose and glared at me, my shrink just said 'It's in your head'.
and they prescribed me several anti-depressants or sedatives.
anti-depressants worsened my symptom, sedatives made me feel better and weakened symptoms, and anti-psychotics made symptom a bit better but side effect was so huge i quit them. Now i only take benzo to manage everyday life. (It doesn't clear the smell, but lessen the density)
8. It's been 5 years and i'm still living in nightmare.
My family don't approve my problem and family budget became wreck, so my parents forced me to work in their store.
I lost many customers at my shift. Many people glared at me or laughed at my face or frowned and never came back. Staffs working at my neighbor stores doesn't come anymore. I told this to mother but she denies denies denies, saying 'it is economic crisis'.
What kind of economic crisis make customers frown and never come back to my store when we are lodged just next to their houses?!!!!!
I gave up persuading my family and just force myself to go work, cause If I quit we'll have financial problem.
I have a brother who is 'genuinely psychotic so my parents don't count on', he is nearly 40 but still live with my parents and doesn't work, doesn't socialize with anyone, addicted to online games, doesn't do house chores.
So my parents depends on me, I can't just quit and become home-bound like my brother.
While at the same, I'm losing my mother's customers because of my smell.
Hell loop, isn't it?
9. It's been a long post with lousy grammar, thx for reading this.
I just don't know what to do. I don't know what the hell is this. No ancient medicines describe this kind of things, no conventional medicine noticed this(though they are starting to notice a bit and named it olfactory reference syndrome)
I always had IBS. and this seems to related to IBS. But even severe IBS patients don't usually have this.
Before this symptom started, even when I had terrible diarrhea I didn't emit any odor.
Now my body seems trying to emit odor no matter what I do. I tried every kind of supplements and tried several traditional medicines, took many many test, even went to psychiatrists. Nothing worked. Only xanax makes me feel a bit better(or make me numb), and being careful not to eat spicy thing works somehow.
10. Now I'm not a walking abomination for 24/7. Some days are good some days are bad. I honestly don't know what is actual trigger.
One day I don't have any odor so customers are so nice to me.(I'm rather good looking and people like my personality)
then the next day i emit strange odor, customers stop smiling and become rigid face, and never come back.
I don't know how this store still managed this far while I cleared out entire store with my smell.
Xanax make the smell less frequent, vegetable or coffee makes the smell less naughty. so I'm basically living on switching xanax and coffee. (weird, isn't it?)
I'm thinking one day I take xanax and next day have coffee. Taking only one of them doesn't work.
11. Really become long post, this is last paragraph. Today I think I lost another couple of customers. one of them even waved their hand to dishevel the odor. Some said 'what the smell is that....' under their breath. Some coughed or become grimace.
I AM TIRED.
I don't hope being respected or being liked anymore. I just wish people don't hate me or talk back behind me.
I just want to die but thinking of my parents I can't.
thanks for reading.
Is there anyone who can help me?
I wish I was mental and everything was just hallucination.
I truly wish I were schizophrenia and I will trade this syndrome with cancer. I MEAN IT.
I am so sorry for your suffering. :-(
FIRST, we all need validation of what we already know it's true:
1. When going to the doc, take 3 people who have witnessed(smelled) your problem, from different areas of you daily life--example, teacher, close family member, co worker, customer. Or create yourself a letter statement they can sign by describing the smell. THIS WILL BE YOUR EVIDENCE
2. Once you have this validation, treat yourself as if you have a PARASITIC INFESTATION all throughout your system and do the Doctor Hulda Clark Treatment Protocols for parasites, and lifestyle and diet changes. Do google searches on parasites. Google specific questions such as 'can parasite waste make me smell,' etc. each person is different find your own answers and solutions. Parasite cleansing of your whole system will take about 3 years, so be CONSISTENT AND PERSISTANT. Learn to soak all fruits, vegetables and meats in three percent hydrogen peroxide to avoid re infestation. Repair the lining of your GI with green smoothies with papaya and bananas. Google for answers on how to do these things. Print all information and keep a folder.
FIRST, we all need validation of what we already know it's true:
1. When going to the doc, take 3 people who have witnessed(smelled) your problem, from different areas of you daily life--example, teacher, close family member, co worker, customer. Or create yourself a letter statement they can sign by describing the smell. THIS WILL BE YOUR EVIDENCE
2. Once you have this validation, treat yourself as if you have a PARASITIC INFESTATION all throughout your system and do the Doctor Hulda Clark Treatment Protocols for parasites, and lifestyle and diet changes. Do google searches on parasites. Google specific questions such as 'can parasite waste make me smell,' etc. each person is different find your own answers and solutions. Parasite cleansing of your whole system will take about 3 years, so be CONSISTENT AND PERSISTANT. Learn to soak all fruits, vegetables and meats in three percent hydrogen peroxide to avoid re infestation. Repair the lining of your GI with green smoothies with papaya and bananas. Google for answers on how to do these things. Print all information and keep a folder.
well i have ibs for a long time now and i feel as though it is eating me alive i just wish there is a cure cuz right now i am out of options i believe in GOD and that he will help but it is soooo hard to have FAITH when u try to believe n it blows up infront of your face. Ican identify with the strange orders i have too but i smell mine when i start to sweat and involuntary release of gas just makes it worse i dnt smell mine but a lot of ppl always b like oooh farted anytime i am around and a lot have placed a label on me ,,,i understand when the doctors try to make u seem like u suffer from some mental illness i have been through tht and my involuntary flatulence occurs atleast once a day but if i eat food or stress or anxiety it tends to act up i mostly starve myself to the point tht i have lost a lot of weight it hurts so bad i even have nightmares i am ALWAYS ALWAYS scared to be around people i have fog memory i am tired almost all the time and gassy almost every second...i have constipation a lot i even have a pile on my anus and sometimes when i get all tense i have this inflammatory feeling around my anal area life is sooooo hard i mean for me it makes me feel less of a human and i mean this alone can ruins someone's life................i have had COUNTLESS embarrassment and i am scared to think of what to come....i have had my teachers make joke about me infront of my face and prob like three teachers who have openly laughed at me i have had classmates riducule me n tell me straight up you smell like s**t i have had my own friends tell me i do n even laughed at me i mostly always sad never really felt really happiness in a long time i mean i am scared to live life everyday tht i wake up but i knw life has to go on and soooooo many times i have contemplated suicide but i knw where i will end up if i do and tht is the only thing stopping i am soooooo miserable most of the time but i have to play dumb and act as if i knw not what ppl thinkor my current situation tht i am facing i think i have had an involuntary release of gas around EVERY guy i had a crush on since the problem arose so imagine the embarrass i feel just to see them again esp. if they had a crush on me too it just turns them off but even tho i faced all of this i mean i cry almost everyday but i do feel a sense of calmness in my house alone with just ma mom and my sis and i am still hoping it goes away even though i have been knocked down soooo many times by the thought we just have to hope it goes away and pray to GOD constantly and Worship him even tho it hurts cuz i knw it hurts to even a point u would wonder if he exists u will wonder if he really hears u or if he even cares cuzi have reached tht point so many times but i look back at all the things he has done and realize he cares but i just dnt what this is for but i am looking at it has a lesson tht i really want to end tho
Hi KerriAnn
Thank you for your post. I have similar symptoms with smell. Your chiro has done a miracle!
Are you still symptom free?
What is the exact treatment you followed with Dr Masone?
Alex
Thank you for your post. I have similar symptoms with smell. Your chiro has done a miracle!
Are you still symptom free?
What is the exact treatment you followed with Dr Masone?
Alex
I have the exact same thing. It's not in my head. Family and doc's said they can't smell anything but coworkers leave the office when the smell is worse. Some have even said that girl smells.
I have had IBS all my life. But this smell problem started in 2012 after food poisoning. I think I had a poor gut flora (despite rounds of probiotics) and the wrong bacteria proliferated. Just before the smell gets worse I usually feel physically worse, rapid heart rate and strange anxiety I never had before.
It is worse if I eat less often. Green veggies with a sulfur compound in them makes it worse too. I have had heard we smell our own body odor much stronger then others. I have always been sensitive to smell but I had a nice fresh odor. Now it is more a sewer smell. I have had many tests and endoscopy and colonoscopy which were all normal. I have bloating and pain especially on the right side. Doc's are no help.
I went on cipro and keto (I had nothing to lose) and things got better. I feel better and strong and more physically active but a little tired from the anti's but stronger. When I go off over time it comes back, probiotics make me feel worse.
I saw a documentary on people with colitis (and read studies about testing with mice) with IB problems and they were given a surgery where part of the small intestine from a healthy person was sewn into the unhealthy person's gut and the IB problems went away. So I think there is something to the bacteria therapy. If I would try it if I could.
So for now curry food (which when cooked well seems to help) and on and off cipro is all I have. It ***** I am not social at all anymore. Who wants to go dancing when they smell and don't feel good?
Please post if you find an answer or solution. You are not alone.
I have had IBS all my life. But this smell problem started in 2012 after food poisoning. I think I had a poor gut flora (despite rounds of probiotics) and the wrong bacteria proliferated. Just before the smell gets worse I usually feel physically worse, rapid heart rate and strange anxiety I never had before.
It is worse if I eat less often. Green veggies with a sulfur compound in them makes it worse too. I have had heard we smell our own body odor much stronger then others. I have always been sensitive to smell but I had a nice fresh odor. Now it is more a sewer smell. I have had many tests and endoscopy and colonoscopy which were all normal. I have bloating and pain especially on the right side. Doc's are no help.
I went on cipro and keto (I had nothing to lose) and things got better. I feel better and strong and more physically active but a little tired from the anti's but stronger. When I go off over time it comes back, probiotics make me feel worse.
I saw a documentary on people with colitis (and read studies about testing with mice) with IB problems and they were given a surgery where part of the small intestine from a healthy person was sewn into the unhealthy person's gut and the IB problems went away. So I think there is something to the bacteria therapy. If I would try it if I could.
So for now curry food (which when cooked well seems to help) and on and off cipro is all I have. It ***** I am not social at all anymore. Who wants to go dancing when they smell and don't feel good?
Please post if you find an answer or solution. You are not alone.
Here's the solution you may still be waiting for... It’s your gut man. Between antibiotics killing beneficial gut bacteria and the chemicals that are in almost ALL modern foods from hamburger helper to restaurant food to baby food… the delicate eco system in our intestines has been disrupted. Your intestines require what are called “helpful” bacteria in order to process food, that’s why you see so many probiotics on the market. This disruption causes some helpful bacteria to die in which case one of the other bacteria over grow or baker’s yeast from breads aka Candida take over and cause damage to the intestinal walls. What this means for your scent is you end up with putrefying waste in your damaged intestines and in your blood stream and ultimately coming out your pores and/or when you use the toilet or pass gas. What this means for your mind is you end up with chemicals, inadequately digested food particles, and waste leaking through the damaged intestinal walls and traveling through the blood. The chemicals may reach the brain if they are able to cross the blood/brain barrier, which then triggers brain cells to turn on without anything to do, those brain cells cause anxiety, ADHD, insomnia, and in some people seizures. As for the waste and poorly digested food in your blood, your body is of course not supposed to have these things in your blood, and before your liver or kidneys can filter them out your body has identified them as a threat, created antibodies, and is attacking them. This “war” going on inside your body causes inflammation that not only contributes to IBS in the gut but causes arthritis, acid reflux, and other inflammatory diseases depending on where the food particles are when the antibodies attack them.
So ultimately, you might stink because of IBS, or you might be oversensitive to beliefs about what other people are thinking because your mind is overstimulated because chemicals or food particles are reaching your brain because once again… because you have IBS.
So, only eat chicken and fish and vegetables. That will stop you from continuing to damage the gut. Then you must find a way to heal the gut. This is where I am learning right now. I am trying Green Smoothies, IgG Allergy Testing, the diet I suggested, Beef Collagen or Bone Broth, L-Glutamine, working with a naturopath(often chiropractors if you are having trouble finding one), and I might try Dr. Dahlman’s regimine from his site(we’ll see, I’m always skeptical).
If your gut is unhealthy then what is likely to happen? Anything.
Sources:
The Body’s 2nd Nervous System in the Gut – It produces much of the body’s serotonin aka the stuff that you take anti-anxiety meds (Xanax, Paxil, etc.) for:
http://en.wikipedia.org/wiki/Enteric_nervous_system
You see it holds true from over 2000 years ago when these words were written... “All Disease Begins in the Gut” ~ Hippocrates, Father of Medicine
MSG (and possibly aspertame sweetener) and how it affects the brain
www.truthinlabeling.org/
www.msgmyth.com/
www.msgtruth.org
So ultimately, you might stink because of IBS, or you might be oversensitive to beliefs about what other people are thinking because your mind is overstimulated because chemicals or food particles are reaching your brain because once again… because you have IBS.
So, only eat chicken and fish and vegetables. That will stop you from continuing to damage the gut. Then you must find a way to heal the gut. This is where I am learning right now. I am trying Green Smoothies, IgG Allergy Testing, the diet I suggested, Beef Collagen or Bone Broth, L-Glutamine, working with a naturopath(often chiropractors if you are having trouble finding one), and I might try Dr. Dahlman’s regimine from his site(we’ll see, I’m always skeptical).
If your gut is unhealthy then what is likely to happen? Anything.
Sources:
The Body’s 2nd Nervous System in the Gut – It produces much of the body’s serotonin aka the stuff that you take anti-anxiety meds (Xanax, Paxil, etc.) for:
http://en.wikipedia.org/wiki/Enteric_nervous_system
You see it holds true from over 2000 years ago when these words were written... “All Disease Begins in the Gut” ~ Hippocrates, Father of Medicine
MSG (and possibly aspertame sweetener) and how it affects the brain
www.truthinlabeling.org/
www.msgmyth.com/
www.msgtruth.org
I'm twenty, a girl. It started for me about 2, 1/2 years back. I didn't have any gas issues before that. All kinds of smell. I've noticed my sleeping pattern affects the 24/7 farting thing. I need to make sure that I sleep for at least 8 hours and get into bed before 8am, then the frequency of farts come down to 1 every 1/2 hour, which is manageable.
Family doesn't believe me and insist I'm making it up and I'm psyco. Which is stupid. Who makes up farting 24/7? Nobody wants to be that disgusting. Seriously.
Also, no meat, no chocolate, cream, cheese, etc. None at all.
I'm actually going to give up on food and just drop to only a pear fruit in the morning that's kind of alkaline and soup for the rest of the day with sago seed and fibre powder as a diet plan on school days because the teachers, students and friends really can't stand it. Doctors are being useless about it.
Family doesn't believe me and insist I'm making it up and I'm psyco. Which is stupid. Who makes up farting 24/7? Nobody wants to be that disgusting. Seriously.
Also, no meat, no chocolate, cream, cheese, etc. None at all.
I'm actually going to give up on food and just drop to only a pear fruit in the morning that's kind of alkaline and soup for the rest of the day with sago seed and fibre powder as a diet plan on school days because the teachers, students and friends really can't stand it. Doctors are being useless about it.
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