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Strange smell following me

I've posted same question on OCD board, cause my psychiatrist thought I was nut and obsessive, and people on that board really tried to help me(appreciate them) but nothing is solved yet and I'm so desperate I post here same question again,

It'll be a long post, would u plz spare some time to read it and help me?


1. I used to have IBS always, since infant. Every kind of IBS. But I never had any problem related with smell.
   I sometimes had body odor when I ate spicy food or the summer was too hot, but usually I've been O.k.
   UNTIL NOW.

2. some years ago, I stayed in a very hot and humid country, so I ate tons of cola and sweets to cool me down, usually i don't like sweet foods, but hot weather changed me.
    and I traveled so many places, had lots of stress.
    Since then, I encountered strange things happening around me; people looking at me puzzled, or 5 minutes after I entered a room the people in there all leave except me, or person sat next to me suddenly change seats to FAR away, or people around me bend their back and hide their faces like there is some fire smoke.
     but I had no idea and didn't care about that things, thinking I'm tired from the travel.

3. After i came back home, things became more noticeable.
   I became sooooo gassy. I am usually gassy person but this was crazy. I was gassy every five SECONDS. and smell was awful. I thought maybe this was the reason people avoided me and was disgusted of myself
   I tried everything to make me normal. Living on nearly only vegetables or fruits, lots of laxatives, or probiotics, I tried everything whatever named 'gut cure'.
   then my gas subsided and smell became manageable.

4. Then, MYSTERY THING started to happen.
    I cured my gas problem somehow but people reacted more furiously, like I am farting 24/7.
    i didn't fart, even if I did it involuntary, it wouldn't be for 24 hours. but people reacted like I smell 24/7.
    first couple of months i couldn't smell myself, but i started to notice random whiff of it.
    It was like dead animal, or rotten sewer, or really nasty fart smell, or just smell of my inside gut. I didn't know where the hell is that coming from.
    I was freaked out. Since I could smell my BO(?) I religiously tried everything to sanitize my gut.

5. about 2 years of trial made me better. the odor emitted from me subsided and people's reaction became less.
   I lived on nearly small portion of grains and lots of vegetable, and some fishes. No sugar, No junk.
   Strange thing is, though the smell become lessened, I vigorously started emit gas or odor through my entire body or pores.
   Even small bit of spicy food or smelly food like onion made me emit some terrible odor to FAR FAR AWAY.
   so people walking ahead 100 meters could smell me and turn around.
   and the smell became more like not HUMAN, it was like sewer or food itself or fecal matter still in my small intestine.
   and I was no more gassy. Gas just seeped out through my body. Not coming out through rear end. (sorry for being graphical)


6. My family or friends or Docs cannot smell me. When I confided this problem to them, one of my friends called me mental. My family and friends are all brutally honest and don't care much about my feelings, they are not lying.
Docs either couldn't smell me even when I could smell entire room is filled with my sewer smell. I know I'm not hallucinating because all patients in the waiting room was looking at me with anger and discomfort. I'm not ugly and I don't usually draw attention, their eyes were saying 'YOU SMELL TERRIBLE'.


7. I did many tests physically, all came out normal. So angered docs got tired of me and kicked me to psychiatrists.
   They can't smell me too. Just five minutes ago passengers in subway covered their nose and glared at me, my shrink just said 'It's in your head'.
    and they prescribed me several anti-depressants or sedatives.
    anti-depressants worsened my symptom, sedatives made me feel better and weakened symptoms, and anti-psychotics made symptom a bit better but side effect was so huge i quit them. Now i only take benzo to manage everyday life. (It doesn't clear the smell, but lessen the density)

8. It's been 5 years and i'm still living in nightmare.
    My family don't approve my problem and family budget became wreck, so my parents forced me to work in their store.
    I lost many customers at my shift. Many people glared at me or laughed at my face or frowned and never came back. Staffs working at my neighbor stores doesn't come anymore. I told this to mother but she denies denies denies, saying 'it is economic crisis'.
   What kind of economic crisis make customers frown and never come back to my store when we are lodged just next to their houses?!!!!!
   I gave up persuading my family and just force myself to go work, cause If I quit we'll have financial problem.
   I have a brother who is 'genuinely psychotic so my parents don't count on', he is nearly 40 but still live with my parents and doesn't work, doesn't socialize with anyone, addicted to online games, doesn't do house chores.
   So my parents depends on me, I can't just quit and become home-bound like my brother.
   While at the same, I'm losing my mother's customers because of my smell.
   Hell loop, isn't it?


9. It's been a long post with lousy grammar, thx for reading this.
    I just don't know what to do. I don't know what the hell is this. No ancient medicines describe this kind of things, no conventional medicine noticed this(though they are starting to notice a bit and named it olfactory reference syndrome)
    I always had IBS. and this seems to related to IBS. But even severe IBS patients don't usually have this.
    Before this symptom started, even when I had terrible diarrhea I didn't emit any odor.
    Now my body seems trying to emit odor no matter what I do. I tried every kind of supplements and tried several traditional medicines, took many many test, even went to psychiatrists. Nothing worked. Only xanax makes me feel a bit better(or make me numb), and being careful not to eat spicy thing works somehow.


10. Now I'm not a walking abomination for 24/7. Some days are good some days are bad. I honestly don't know what is actual trigger.
One day I don't have any odor so customers are so nice to me.(I'm rather good looking and people like my personality)
  then the next day i emit strange odor, customers stop smiling and become rigid face, and never come back.
  I don't know how this store still managed this far while I cleared out entire store with my smell.
  Xanax make the smell less frequent, vegetable or coffee makes the smell less naughty. so I'm basically living on switching xanax and coffee. (weird, isn't it?)
  I'm thinking one day I take xanax and next day have coffee. Taking only one of them doesn't work.

  
11. Really become long post, this is last paragraph. Today I think I lost another couple of customers. one of them even waved their hand to dishevel the odor. Some said 'what the smell is that....' under their breath. Some coughed or become grimace.
    I AM TIRED.
    I don't hope being respected or being liked anymore. I just wish people don't hate me or talk back behind me.
    I just want to die but thinking of my parents I can't.


thanks for reading.
Is there anyone who can help me?
I wish I was mental and everything was just hallucination.
I truly wish I were schizophrenia and I will trade this syndrome with cancer. I MEAN IT.


67 Responses
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Avatar universal
OH MY GOD you have exactly the same problem as I do I'm a 19yr old male and have suffered this for around about 7 months it's as if it happened one day and won't go away I was perfectly normal/ happy before this and now it's completely ruined my life I've lost all my friends as they think I'm mad as I've asked the countless times if I smell and they all say no but at random times I would get 'it smells like **** in here' or rotting flesh on one occasion I too worked in a shop and had the exact same experiences, I've now moved away and got rid of a lot of stress in my life and turned vegan it has notcibly calmed down but not gone by a long shot I can't smell it myself but I can pick up on strangers cues. Thought it could be a nasal infection but realised the sheer amount of people the have commented on it or acted when they have smelt it please anyone if there is a cure or even diagnosis I'd be over the moon this has made me turn from a very sociable young adult into a wreck that is slowly getting over suicidle thoughts I can't say if these thoughts will go away if I have no cure.
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Avatar universal
I don't know if you're still here but I have the same thing you have and have had it for Three years.its horrible all I hear is "why does it smell like ****" and people sniffing for some reason. When it first happened I barley noticed it just people sniffing for some reason then one day someone came up to me and told me. After that I was worried and told my parents they told me that I was paranoid or just worried and to stop thinking about it same with my useless doctor. A few months after that I lost a lot of my friends from this stupid ******* problem. think what caused it was eating spicy food because I love it but I'm not sure and at this point I don't care. It's been happening so long that I'm used to it but not in a good way just like I accept that it has to be like this its terrible. I'm a freshman and the same stuff is still happening every single day. If this stuff ever Happens to you go tell someone that will actually listen and try to fix it so you don't ruin your life like I did.
Helpful - 0
Avatar universal
I have the same problem too. I am going to try colloidal silver and see if that works and I am also going to try colon hydrotheropy
Helpful - 0
Avatar universal
I have the same problem, *** female, what i do is take bubble baths and while I'm laying back in the tub i push water I'm my vagina, and let it flow out, yu can also try putting a little apple cider vinegar in the water. That really help me out a whole lot. I was very self conscious of the smell as well but since I've been just letting the water flow up my vagina. I don't smell anything
Helpful - 0
Avatar universal
I have same thing and I'm at my wits end. Have you found anything to help,lessen the symptoms?
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Avatar universal
You could try Chlorophyll. Also, you may want to consider that maybe you're being too self-conscious. I'm not saying that you don't have an odor, but maybe you're the only one to actually notice it because the odor is coming from the inside out. If that makes any sense. Also, you mentioned that when you don't have an odor people react differently to you than when you do have an odor. That could be because, subconsciously, when you're feeling like you smell horrible, you may be acting self-consciously or oddly with people; whereas, when you are not smelling yourself, you are feeling more confident, and you probably aren't giving off any weird or uncomfortable vibes. Also, you may want to consider when do you start to smell these odors? Is it when you're by yourself or is it out in public? Does your body give off this odor when you are relaxed, or does it give off this odor when you are uncomfortable? The reason why you want to ask yourself these kinds of questions is because there's a reason why your family and friends don't smell the odor that you're referring to. So, basically, my guesses are: 1) the smell exists enough for you to smell; however, it is not as bad as it may seem. Which is why doctors and loved ones tell you they don't smell anything. However, because you can smell this odor, you are super self-conscious which is making you act in an odd way to other people (customers, etc). 2) You're body gives off this odor when you are being self-conscious or uncomfortable, which is why none of your loved ones actually smelled it because you are fine/comfortable with them, and when around other people you get self-conscious or uncomfortable, and your body is giving off a really bad odor that others (customers, etc) can smell.  Hope this helps!
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