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Strange smell following me

I've posted same question on OCD board, cause my psychiatrist thought I was nut and obsessive, and people on that board really tried to help me(appreciate them) but nothing is solved yet and I'm so desperate I post here same question again,

It'll be a long post, would u plz spare some time to read it and help me?


1. I used to have IBS always, since infant. Every kind of IBS. But I never had any problem related with smell.
   I sometimes had body odor when I ate spicy food or the summer was too hot, but usually I've been O.k.
   UNTIL NOW.

2. some years ago, I stayed in a very hot and humid country, so I ate tons of cola and sweets to cool me down, usually i don't like sweet foods, but hot weather changed me.
    and I traveled so many places, had lots of stress.
    Since then, I encountered strange things happening around me; people looking at me puzzled, or 5 minutes after I entered a room the people in there all leave except me, or person sat next to me suddenly change seats to FAR away, or people around me bend their back and hide their faces like there is some fire smoke.
     but I had no idea and didn't care about that things, thinking I'm tired from the travel.

3. After i came back home, things became more noticeable.
   I became sooooo gassy. I am usually gassy person but this was crazy. I was gassy every five SECONDS. and smell was awful. I thought maybe this was the reason people avoided me and was disgusted of myself
   I tried everything to make me normal. Living on nearly only vegetables or fruits, lots of laxatives, or probiotics, I tried everything whatever named 'gut cure'.
   then my gas subsided and smell became manageable.

4. Then, MYSTERY THING started to happen.
    I cured my gas problem somehow but people reacted more furiously, like I am farting 24/7.
    i didn't fart, even if I did it involuntary, it wouldn't be for 24 hours. but people reacted like I smell 24/7.
    first couple of months i couldn't smell myself, but i started to notice random whiff of it.
    It was like dead animal, or rotten sewer, or really nasty fart smell, or just smell of my inside gut. I didn't know where the hell is that coming from.
    I was freaked out. Since I could smell my BO(?) I religiously tried everything to sanitize my gut.

5. about 2 years of trial made me better. the odor emitted from me subsided and people's reaction became less.
   I lived on nearly small portion of grains and lots of vegetable, and some fishes. No sugar, No junk.
   Strange thing is, though the smell become lessened, I vigorously started emit gas or odor through my entire body or pores.
   Even small bit of spicy food or smelly food like onion made me emit some terrible odor to FAR FAR AWAY.
   so people walking ahead 100 meters could smell me and turn around.
   and the smell became more like not HUMAN, it was like sewer or food itself or fecal matter still in my small intestine.
   and I was no more gassy. Gas just seeped out through my body. Not coming out through rear end. (sorry for being graphical)


6. My family or friends or Docs cannot smell me. When I confided this problem to them, one of my friends called me mental. My family and friends are all brutally honest and don't care much about my feelings, they are not lying.
Docs either couldn't smell me even when I could smell entire room is filled with my sewer smell. I know I'm not hallucinating because all patients in the waiting room was looking at me with anger and discomfort. I'm not ugly and I don't usually draw attention, their eyes were saying 'YOU SMELL TERRIBLE'.


7. I did many tests physically, all came out normal. So angered docs got tired of me and kicked me to psychiatrists.
   They can't smell me too. Just five minutes ago passengers in subway covered their nose and glared at me, my shrink just said 'It's in your head'.
    and they prescribed me several anti-depressants or sedatives.
    anti-depressants worsened my symptom, sedatives made me feel better and weakened symptoms, and anti-psychotics made symptom a bit better but side effect was so huge i quit them. Now i only take benzo to manage everyday life. (It doesn't clear the smell, but lessen the density)

8. It's been 5 years and i'm still living in nightmare.
    My family don't approve my problem and family budget became wreck, so my parents forced me to work in their store.
    I lost many customers at my shift. Many people glared at me or laughed at my face or frowned and never came back. Staffs working at my neighbor stores doesn't come anymore. I told this to mother but she denies denies denies, saying 'it is economic crisis'.
   What kind of economic crisis make customers frown and never come back to my store when we are lodged just next to their houses?!!!!!
   I gave up persuading my family and just force myself to go work, cause If I quit we'll have financial problem.
   I have a brother who is 'genuinely psychotic so my parents don't count on', he is nearly 40 but still live with my parents and doesn't work, doesn't socialize with anyone, addicted to online games, doesn't do house chores.
   So my parents depends on me, I can't just quit and become home-bound like my brother.
   While at the same, I'm losing my mother's customers because of my smell.
   Hell loop, isn't it?


9. It's been a long post with lousy grammar, thx for reading this.
    I just don't know what to do. I don't know what the hell is this. No ancient medicines describe this kind of things, no conventional medicine noticed this(though they are starting to notice a bit and named it olfactory reference syndrome)
    I always had IBS. and this seems to related to IBS. But even severe IBS patients don't usually have this.
    Before this symptom started, even when I had terrible diarrhea I didn't emit any odor.
    Now my body seems trying to emit odor no matter what I do. I tried every kind of supplements and tried several traditional medicines, took many many test, even went to psychiatrists. Nothing worked. Only xanax makes me feel a bit better(or make me numb), and being careful not to eat spicy thing works somehow.


10. Now I'm not a walking abomination for 24/7. Some days are good some days are bad. I honestly don't know what is actual trigger.
One day I don't have any odor so customers are so nice to me.(I'm rather good looking and people like my personality)
  then the next day i emit strange odor, customers stop smiling and become rigid face, and never come back.
  I don't know how this store still managed this far while I cleared out entire store with my smell.
  Xanax make the smell less frequent, vegetable or coffee makes the smell less naughty. so I'm basically living on switching xanax and coffee. (weird, isn't it?)
  I'm thinking one day I take xanax and next day have coffee. Taking only one of them doesn't work.

  
11. Really become long post, this is last paragraph. Today I think I lost another couple of customers. one of them even waved their hand to dishevel the odor. Some said 'what the smell is that....' under their breath. Some coughed or become grimace.
    I AM TIRED.
    I don't hope being respected or being liked anymore. I just wish people don't hate me or talk back behind me.
    I just want to die but thinking of my parents I can't.


thanks for reading.
Is there anyone who can help me?
I wish I was mental and everything was just hallucination.
I truly wish I were schizophrenia and I will trade this syndrome with cancer. I MEAN IT.


67 Responses
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Avatar universal
You and I are in the same boat ! EXACTLY the same. Even the shrinks tell me  the Can't smell me, YET my own niece, (9 years old) call's me "Poopy Man" (to my face) Yet her Dad (my brother) claims he Can't smell me.
Some people say I smell like S__t 24/7, Most accuse me of farting, while others claim they smell Nothing. I DON'T have an answer for you, what I do have is Sympathy for you.

    I'm 49, I've NEVER had a girlfriend (Not even for 1 hour) I did (recently) win my SSDI case, so at least I Don't have to  worry about trying to keep a  job (anymore) I Know I've had this since 7 (anyhow) due to the itching.

  here's what I think. I think it's caused by encopresis (SEVERE constipation) that liquid stool eventually "slips past" the blockage. The constipation causes gas, and the fecal matter is inside for so long, that it "ferments" and becauses Even stinkier !

  The Dr's KEEP telling me there is NOTHING they can do for us/me. I Don't believe that. i think they All know "pieces of the puzzle", they've just Never "connected the dots"

  I Can't smell me either. Which causes SEVERE paranoid (Not to mention Social isolation) I just Do NOT want to be around anyone PERIOD ! Because I'm Always worried / thinking , do I stink ? Can this person smell me?  

   Anyhow, if you want/need someone to talk to.... I'm here. Cal 3576
Helpful - 0
2 Comments
I have same thing and thought I was the only one that had this problem. I still work and it gets harder and harder to work with these symptoms. I hate being this way. I am at my wits end. Logood. Appreciate your input.
I have been having same thing. Would like your input. I still work and getting harder and harder to work with these symptoms. Logood
Avatar universal
At first, I have to say that I'm from Finland so I apologize if my English is bad.

Anyway,
I FEEL SO RELIEFED, because now i know im not the only one anymore. I have the absolutely same problem. I'm fifteen years old and I'm going on Upper Secondary School (that's what I think it's called in English) and this problem is   driving me crazy!

My IBS symptoms started on a week-long confirmation camp (a kind of church stuff). There was some food that I did'nt like much. On the contrary I ate a lot of candies and lemonade and all kind of junk food all the week. During the week the symptoms started and I thought the stomach problems would just end when getting back home and eating good food. On the last day of the camp, once I sat on the table on breakfast, my friend asked me "did you just have a dump". When we headed back home in the bus I noticed that people were hiding their faces and keeping their noses closed. I was wondering what's going on. Back home when I went to school the odor was still troubling and I still had my stomach symptoms.

I'm going to jump now a year or a half forward from those time because nothing happened in that time and I was just wondering what's going on. I went to see a doctor and there were some tests and lots of diseases were excluded (for example Coeliac disease and Ulcerative colitis, just a couple to mention). So I read about IBS from somewhere and quitted eating sweets and coke and all that nasty stuff, and the symptoms alleviated. There was half a year of almost no smelling at all (at least I think so cause nobody was keeping their nose closed). At some point I started to drink apple juice (at that moment I did'nt know that apple was bad for IBS-patients) and the smell came back. Now I could smell it also and it wasn't a poop-like smell, it was like a smell that comes from a dead animal or something. At the same time there were school prom and there were a lots of people keeping their nose and staring at me angrily.I felt ashamed..

I'm getting tired of this typing now because I can't just type what I think cause of being Finnish. The smell increases when I have just ate and when I'm holding the gases inside me and trying not to fart. It also increases when I havent ate in  long time for example in the morning. My parents or siblings dont smell it and the doctor doesn't smell it.  But just like you, some people do smell it and some people don't. That's what I call a weird thing. That some people don't smell and some people do. Anyway I won't type anymore cause I got all kind of stuff to do now so I would hope someone would reply to this and I would like to communicate with you guys who have this problem....... there are sure a lot of things that I forgot to told.
Helpful - 0
Avatar universal
I read about this and wonder if you have considered it:

Trimethylaminuria

• TMAU is a rare metabolic disorder in which the body is unable to process the compound trimethylamine. The compound can be found in choline-rich food such as milk, eggs, liver and peanuts, and gives off a rotten "fish odor" that can be detected through your breath, urine and sweat. However, in some instances the odor can be similar to the smell of feces. People who suffer from fecal body odor may opt to test for TMAU.


Helpful - 0
Avatar universal
This may sound strange but all u have to do is repent and beg god to restore you to a natural state try it and also try fasting and detoxing. The smell may be a way of haunting u for past sins but askig for forgiveness and fresh start is your best bet
Helpful - 0
Avatar universal
I am to dealing with the same thing here it started when I was 14 and now I'm almost 15 but here is what mines smells like fishy fart sewer smell and sometimes I can't smell it but than sometimes I do when I ride the bus to school it smells horrible than it dies down than comes back it came out of nowhere and I take good showers and have lotions powders and the smell always comes back and its so strong people smell it immediately when I walk in the room or in hallways and my grandparents and aunties say they don't smell anything but I know they are lying because I go to school and the students there seem to smell it perfectly I would do anything to smell clean I cry about it I pray but it doesn't leave its like its coming out of my pores everywhere and I just dont know its nice to know I'm not the only one dealing with this but I wouldn't want to wish this on anyone not even my worst enemies guys try to talk to me but I turn them down because I smell really bad I'm a nice looking person im very kind and sweet but some people are rude to me because I'm smell and make noises when I come around and I just want to go to a place where all these smells would disappear I want to die so people wouldn't have to deal with me I get scared when people walk behind me because I feel like they can smell me. If you feel this way email me at ***@**** and maybe we can figure this out together
Helpful - 0
1 Comments
I got the same thing I'm 14 and had this for three years, my parents don't listen to anything I say and say I'm paranoid.
Avatar universal
Hi I am 20 years old and this has started for me in the past year. I have no Idea what it is. IHas anybody found a cure to it yet? It's driving me crazy I'm so clean I shower like twice a day. And I'm a pretty girl. It comes and goes though. And I can kind of control it with water. But I want to just be carefree. And b confident again
Helpful - 0
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