Hi there. This is my first time making a posting here, I found this website while doing searches on kidney stones. I guess I am looking for advice or any feedback at all - anyone else my age experiencing such discomfort with stones? Please read.
I'm 26 years old and I have been suffering from multiple stones in both kidneys for quite some time. Since December I have had 3 CT Scans, numerous x-rays, ultrasounds, urine tests, bloodwork, and lithotripy during my multiple trips to the ER. I'm honestly back and forth to the hospital with severe stone pain once a week. Once there, my pain is treated and I am released once the pain is managable. Sometimes I am only home an hour or so, and once the IV pain medication wears off I end up back in the ER. I can't sleep, I haven't been able to work, and I'm terrified of the extreme pain that I get while passing a stone. I'm always in pain. There is a constant dull, aching pain I have in both kidneys that never goes away. I'm always tired, and i'm really tired of being in so much pain all the time. I don't have a life anymore.
I've been seeing a Urologist, as well as a Nephrologist. Both seem to think I have all of these stones since they run in my family. Although, they seem to think it is unsual for someone so young to be suffering from so many stones (My first attack occured when I was 16). But the waits in between visits is long, and dispite lithrotripy, drinking lots of water and following a diet plan, I keep developing new stones and my problem is getting worse. It's really upsetting. I'm just desperate for some help, some answers to end this pain. I guess my question comes down to this - am I ever going to be stone free, or am I going to continue ending up in the ER constantly? Is there anything else I can do? I can't take anymore pain medication (I've been prescribed morphine, demerol, and percocet) as they upset my stomach and the nasuea from the pain is bad enough. I'm just at the end of my rope and although I know i'm not alone, I feel so alone.
Any comments would be welcome. Has anyone else went through an ordeal such as this?
Thank-you,
Jennifer