Aa
CAN SOMEBODY PLEASE HELP ME, I'M SCARED!!
I just recently had some lab work done, my ANA came back and my ANA-Titer came back as 1:80...I talked to a lab tech from the hospital and he said my lab work sounds like Lupus...I'm really scared & I just want to break down and cry...
Here's my symptoms
1) Back and leg pain
2) Digestive problems
3) Headaches
4) Hematuria( but the crazy thing is, I've seen a urologist, orthopedic surgeon and a CT Scan and all of these tests came back good...I just don't get it...
Please help me....
Here's my symptoms
1) Back and leg pain
2) Digestive problems
3) Headaches
4) Hematuria( but the crazy thing is, I've seen a urologist, orthopedic surgeon and a CT Scan and all of these tests came back good...I just don't get it...
Please help me....
Sweetie, truely I understand emotionally what you are saying. But I want to share some things that might put you at ease.
I remember when my Primary Physician told me it was looking like lupus and referred me to a rheumatologist. I was terrified. I had read up on lupus and it all scared me. I felt like I had came close to dieing at one point. Turned grey and pulse was 35 BP 45/35. I was too weak to even open my eyes. I truely believe God brought me through that valley of the shadow of death. So I'm telling you this so you will know, I understand where you are coming from.
But I also want to tell you that the death rate for lupus is not very high. I won't lie to you, people do die from lupus, but it is rare. If treated, most serious complications are treatable. Most of the people are able to even hold down a job. There was a time when lupus was a death sentence, but not anymore. Researchers have discovered new ways of treating complications. And without a doubt, the most valuable tool of rising above this illness is ATTITUDE. You can ask anybody on this forum who has lupus and they will tell you the same thing. I made a decision to be thankful. To enjoy even the little things in life. And to laugh...a lot! I laugh at everything. I mostly laugh at myself. The goofy stuff that comes out of my mouth. Words get all twisted. It's like I have mental dislexia. So I say I'm squirrely brained.
I will also tell you that depression is a symptom of lupus. I know this personally because I can have a flare and have no reason to be depressed, even telling myself it's only a day and tomorrow will be better. That depression thing is nawing at my heels. Those are days I try not to burn any bridges (if you know what I mean) Because I know what I'm going through today is only temporary.
We are here for you and are prayin for you, ~Kara
I remember when my Primary Physician told me it was looking like lupus and referred me to a rheumatologist. I was terrified. I had read up on lupus and it all scared me. I felt like I had came close to dieing at one point. Turned grey and pulse was 35 BP 45/35. I was too weak to even open my eyes. I truely believe God brought me through that valley of the shadow of death. So I'm telling you this so you will know, I understand where you are coming from.
But I also want to tell you that the death rate for lupus is not very high. I won't lie to you, people do die from lupus, but it is rare. If treated, most serious complications are treatable. Most of the people are able to even hold down a job. There was a time when lupus was a death sentence, but not anymore. Researchers have discovered new ways of treating complications. And without a doubt, the most valuable tool of rising above this illness is ATTITUDE. You can ask anybody on this forum who has lupus and they will tell you the same thing. I made a decision to be thankful. To enjoy even the little things in life. And to laugh...a lot! I laugh at everything. I mostly laugh at myself. The goofy stuff that comes out of my mouth. Words get all twisted. It's like I have mental dislexia. So I say I'm squirrely brained.
I will also tell you that depression is a symptom of lupus. I know this personally because I can have a flare and have no reason to be depressed, even telling myself it's only a day and tomorrow will be better. That depression thing is nawing at my heels. Those are days I try not to burn any bridges (if you know what I mean) Because I know what I'm going through today is only temporary.
We are here for you and are prayin for you, ~Kara
I sent you my info, sent it to your profile...please contact me!!
Jules
Jules
jules please pm me your info and I'll send you mine - I got another message from another moderator that explained I did nothing wrong and it's ok to ask questions I just have to remove myself from MH and try to step back and take care of myself and not let something someone did, I don't even know hurt me so much.
~Karajo, Thank you for your response, I'm just so really anxious and scared, because in my heart...SLE is what I have, I'm trying to be positive but when you have "professionals", like the ones that I work with, tell me that it "really" sounds like SLE and that it explains all of my complaints...really has me leaning towards this diagnosis...I just see it as a "death sentence", please excuse me if I sound horrible but I see it as a type of cancer...I'm terrifed!! I just can't imagine something attacking my organs, much less my own body attacking itself?! And other then the stupid palps and digestive issues..(I do have hematuria and tension headaches...but my don't feel my kidneys or bladder are an issue..you'd think my urologist would've said something)...I don't feel sick, no fever or fatigue...no rash...but because I have a twisted pelvis, my hips give me problems(I also had relations...lol...sorry and hurt my left leg and I can't bend it a certain way so my leg has me worried, like is this related to SLE?) so now the tension headaches I get, and every other complaint I feel all comes down to one thing...I have SLE...I'm so scared :(
~Lisa, Reading what you wrote, made me sad...you NEVER once did anything wrong, you didn't take over or hijack my thread...you're my buddy! And if you EVER need to vent again...I'm here for you...if I could, I'd give you my private email and phone number...just let me know if you ever want it...you're an awesome person, I like you onrey ;)
And YOU have also been a great friend to me!!!
Jules
~Lisa, Reading what you wrote, made me sad...you NEVER once did anything wrong, you didn't take over or hijack my thread...you're my buddy! And if you EVER need to vent again...I'm here for you...if I could, I'd give you my private email and phone number...just let me know if you ever want it...you're an awesome person, I like you onrey ;)
And YOU have also been a great friend to me!!!
Jules
Karajo thanks =) I've done alot of personal research on SLE. I posted here last year because my neurologist thought I had SLE but my ANA was negative even though I have alot of the symptoms...but I have symptoms from various diseases and still trying to find out what's wrong and trying to help others find out what's wrong with them.
I didn't want my posts to Jules get deleted or someone think I was hijacking her thread as I was accused of in another forum. I was told we aren't allowed to ask questions in another person's thread or "hijack" it for lack of proper terms; even asking a question if it pertains to the particular matter at hand, so I apologized to her for doing this. if I hijacked any thread in the past 2 years it's probably this one and i feel horrible!
I was told that if I have a question or it goes off topic to send a PM to that person I'm talking to - and I went way off topic with Jules thread and I felt bad because I know how much she's been going through and trying to find answers like me.
It's just so frustrating watching someone use power for their own purpose, that's what bothers me the most I think and why I flew off the handle. I try never to degrade others and never put anyone down or make them feel bad. Someone did this to me and thought it was OK and then used their friendship with a community leader against me. I am so frustrated on top of being sick it's hard to deal with.
I pm'd this person asking why attack me and try to make me look bad when I have never done anything to anyone and there are others out there who deal with a lot less and "whine" about it? Yes I used the word whine...sorry [crawls in a hole] I was really offended that they tried to embarrass me in a forum.
They took my PM and posted it in the middle of a thread, so I didn't take kindly to my private post being public. This person tried to embarrass and humiliate me in public and others pm'd me to let me know they had been done the same way by the same person.
Jules if I get banned I will be back with another name and I will behave and send you a message - you've been a great friend and I should have never posted my hostility in your thread, sorry :(
I didn't want my posts to Jules get deleted or someone think I was hijacking her thread as I was accused of in another forum. I was told we aren't allowed to ask questions in another person's thread or "hijack" it for lack of proper terms; even asking a question if it pertains to the particular matter at hand, so I apologized to her for doing this. if I hijacked any thread in the past 2 years it's probably this one and i feel horrible!
I was told that if I have a question or it goes off topic to send a PM to that person I'm talking to - and I went way off topic with Jules thread and I felt bad because I know how much she's been going through and trying to find answers like me.
It's just so frustrating watching someone use power for their own purpose, that's what bothers me the most I think and why I flew off the handle. I try never to degrade others and never put anyone down or make them feel bad. Someone did this to me and thought it was OK and then used their friendship with a community leader against me. I am so frustrated on top of being sick it's hard to deal with.
I pm'd this person asking why attack me and try to make me look bad when I have never done anything to anyone and there are others out there who deal with a lot less and "whine" about it? Yes I used the word whine...sorry [crawls in a hole] I was really offended that they tried to embarrass me in a forum.
They took my PM and posted it in the middle of a thread, so I didn't take kindly to my private post being public. This person tried to embarrass and humiliate me in public and others pm'd me to let me know they had been done the same way by the same person.
Jules if I get banned I will be back with another name and I will behave and send you a message - you've been a great friend and I should have never posted my hostility in your thread, sorry :(
You are really going through a lot.
Of coarse it "could" be lupus. Lupus can cause problems in any area of the body. But I'm not sure it would cause the white spots on the brain. I feel like the psychologist is for the anxiety that you are experiencing because you are so sick. I too felt very anxious, but when the symptoms settled down, so did I. You definitely have something going on. I'm glad your dr. is sending you to a neurologist and an oncologist. Just to get some things ruled out. Many times, docs just eleminate possibilities in order to arrive at a diagnosis. Please keep us posted.
Dr. Nicholsen will be ansering question 2/7. Go ahead and try submitting your question to him. Everytime we have him on I have to learn how to submit a question all over again. I'll try to look into that and get back with you.
I'm so sorry for all that you are going through. I remember not having the strength to do any research much less the "brain" to think it all through. I know God carried me through those difficult years. Sweetie, I'm praying for you.
Of coarse it "could" be lupus. Lupus can cause problems in any area of the body. But I'm not sure it would cause the white spots on the brain. I feel like the psychologist is for the anxiety that you are experiencing because you are so sick. I too felt very anxious, but when the symptoms settled down, so did I. You definitely have something going on. I'm glad your dr. is sending you to a neurologist and an oncologist. Just to get some things ruled out. Many times, docs just eleminate possibilities in order to arrive at a diagnosis. Please keep us posted.
Dr. Nicholsen will be ansering question 2/7. Go ahead and try submitting your question to him. Everytime we have him on I have to learn how to submit a question all over again. I'll try to look into that and get back with you.
I'm so sorry for all that you are going through. I remember not having the strength to do any research much less the "brain" to think it all through. I know God carried me through those difficult years. Sweetie, I'm praying for you.
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