Aa
CAN SOMEBODY PLEASE HELP ME, I'M SCARED!!
I just recently had some lab work done, my ANA came back and my ANA-Titer came back as 1:80...I talked to a lab tech from the hospital and he said my lab work sounds like Lupus...I'm really scared & I just want to break down and cry...
Here's my symptoms
1) Back and leg pain
2) Digestive problems
3) Headaches
4) Hematuria( but the crazy thing is, I've seen a urologist, orthopedic surgeon and a CT Scan and all of these tests came back good...I just don't get it...
Please help me....
Here's my symptoms
1) Back and leg pain
2) Digestive problems
3) Headaches
4) Hematuria( but the crazy thing is, I've seen a urologist, orthopedic surgeon and a CT Scan and all of these tests came back good...I just don't get it...
Please help me....
I'm so sorry anybody would misinterpret anything you had to say...seriously?! You have THE best sense of humor and I have NEVER once been offended by anything you have ever said...and I'm just being honest!
And this forum is for "self expression", not for literal interpretation of a medical condition, we use this forum to confide and express our concerns, apprehensions and worries...and in return we "hope" somebody is good enough to respond to our anxiety's!
And I totally agree with you, this IS a type of therapy...that's why I come on here, for the SAME exact reasons, so I don't feel alone! Well...let me at her...lol...I've seen people get on the Heart Rhythm forum going at it before...it's nuts, some people I swear, it's like they use these sites for THEIR anger and aggression issues...it's like, "Okay, looney tunes, whatever you say"...lol...it's just another release for their inner rage and hostility, and the FIRST person that "sounds" edgy or smart gets to carry their wrath...believe me, they are the one with the problem...NOT YOU! Anybody should feel lucky when you respond...I know, that's how I feel...it may sound cheesy but it's true..you're very intelligent and who gives a crap if you come across as otherwise...your friends on here, know the truth!
Btw....what is AI? I'm sure I've read about it but right now, my minds a blank..lol...and you said something about overlapping? Can you explain this further? Sorry...
YOUR buddy,
Jules
And this forum is for "self expression", not for literal interpretation of a medical condition, we use this forum to confide and express our concerns, apprehensions and worries...and in return we "hope" somebody is good enough to respond to our anxiety's!
And I totally agree with you, this IS a type of therapy...that's why I come on here, for the SAME exact reasons, so I don't feel alone! Well...let me at her...lol...I've seen people get on the Heart Rhythm forum going at it before...it's nuts, some people I swear, it's like they use these sites for THEIR anger and aggression issues...it's like, "Okay, looney tunes, whatever you say"...lol...it's just another release for their inner rage and hostility, and the FIRST person that "sounds" edgy or smart gets to carry their wrath...believe me, they are the one with the problem...NOT YOU! Anybody should feel lucky when you respond...I know, that's how I feel...it may sound cheesy but it's true..you're very intelligent and who gives a crap if you come across as otherwise...your friends on here, know the truth!
Btw....what is AI? I'm sure I've read about it but right now, my minds a blank..lol...and you said something about overlapping? Can you explain this further? Sorry...
YOUR buddy,
Jules
thanks Jules...that means alot; I really needed that right now...sometimes I feel closer to people I've never met also - no one understands what I'm going through and I don't like to say a whole lot to family/friends - my thoughts get all jumbled and I can't "proof read" everything I say in person! hehehe
I was put down by someone in the heart disease forum ugh LOL I should know how people are and just shrug it off... people read into things that aren't written or read things wrong or heck I meant what I said completely different than it came out...I replied to a thread that I had 'suffered' 50,000 pvc's and thought the response was well thought out and good for others to know that you can survive even with TONS of pvc's, heart muscle disease, heart failure, all kinds of whacko stuff dr's dont know but think are AI going on and I get told it's about my "attitude" ??? me? lol I just wanted to laugh, but I couldn't...
I use helping others as a therapy not only for me, but for others to make sure people know you're not the only one going through it and realize no matter what is going on with me there is always someone out there who is "suffering" or going through something worse than what we are and I get dogged...in a few days when my hormones are even; I'll laugh off her comment and "recommendations' for my attitude! lol
btw you still should check on dysautonomia issues also; AI & ANS can be lap over into each other and explain some of what you've been going through =)
I was put down by someone in the heart disease forum ugh LOL I should know how people are and just shrug it off... people read into things that aren't written or read things wrong or heck I meant what I said completely different than it came out...I replied to a thread that I had 'suffered' 50,000 pvc's and thought the response was well thought out and good for others to know that you can survive even with TONS of pvc's, heart muscle disease, heart failure, all kinds of whacko stuff dr's dont know but think are AI going on and I get told it's about my "attitude" ??? me? lol I just wanted to laugh, but I couldn't...
I use helping others as a therapy not only for me, but for others to make sure people know you're not the only one going through it and realize no matter what is going on with me there is always someone out there who is "suffering" or going through something worse than what we are and I get dogged...in a few days when my hormones are even; I'll laugh off her comment and "recommendations' for my attitude! lol
btw you still should check on dysautonomia issues also; AI & ANS can be lap over into each other and explain some of what you've been going through =)
Hey! I just got home from work! And of course my heart palps start acting up, glad they waited until I got in bed and got all relaxed...lol!
And yes, you've always been here for me too! You are my very dear friend...it's strange how I tell you and a few others, like Jodie, every little thing that's going on and I feel so close to you, even though we have never met...probably closer than some of my own family members...
And your search for answers, is not self centered..lol..believe it or not, you probably help dozens of people everyday, especially me! I read almost everything you write...seriously, I look up to you, you are a strong woman and I respect you deeply...
I will keep fighting...in fact I'm calling the clinic where my appt's supposed to be and see if there's any way I can get in sooner...
I think what scared me the most was the nurse I spoke to last night...she said that SLE would explain all the symptoms I have and always complain about...my heart palps, digestive issues, like my gas pains and stomach cramping and my sinus/tension headaches...it's mostly my gas/cramping pains, not happy until I...uh....fart...lol..(TMI) but that's my night in a nutshell...lol!
I will definitely start keeping a journal...apparently I got til June,16th to get it all in order, you know, I bet if it was their family member needing to be seen, there'd be no 6 month wait!?!
Jules
And yes, you've always been here for me too! You are my very dear friend...it's strange how I tell you and a few others, like Jodie, every little thing that's going on and I feel so close to you, even though we have never met...probably closer than some of my own family members...
And your search for answers, is not self centered..lol..believe it or not, you probably help dozens of people everyday, especially me! I read almost everything you write...seriously, I look up to you, you are a strong woman and I respect you deeply...
I will keep fighting...in fact I'm calling the clinic where my appt's supposed to be and see if there's any way I can get in sooner...
I think what scared me the most was the nurse I spoke to last night...she said that SLE would explain all the symptoms I have and always complain about...my heart palps, digestive issues, like my gas pains and stomach cramping and my sinus/tension headaches...it's mostly my gas/cramping pains, not happy until I...uh....fart...lol..(TMI) but that's my night in a nutshell...lol!
I will definitely start keeping a journal...apparently I got til June,16th to get it all in order, you know, I bet if it was their family member needing to be seen, there'd be no 6 month wait!?!
Jules
Jules, I'm just so glad you're finally finding some answers and doctor listened to you. Being told it's all in your head is frustrating and too many of us have been there. I love you too girl, you've been there for me as a friend for almost 2 years and I hope I've returned the favor even in my self centered search for answers hehehe
As far as I know and have read Homogeneous is a common ana pattern in SLE (lupus) BUT also found in infections, cancer, lung diseases, gastrointestinal diseases, hormonal diseases, blood diseases, skin diseases, and in elderly people or people with a family history of rheumatic disease so it's important for them to find out why you have it.
keep pushing and find the right dr, I'm sure someone who's been through this can direct you to which type of dr you need to start with (rheumagologist, endocrinologist etc)
start a list, go back and find any records you have and make notes, dates symptoms etc to take to the dr with you so you have something to show them and narrow the search down =)
As far as I know and have read Homogeneous is a common ana pattern in SLE (lupus) BUT also found in infections, cancer, lung diseases, gastrointestinal diseases, hormonal diseases, blood diseases, skin diseases, and in elderly people or people with a family history of rheumatic disease so it's important for them to find out why you have it.
keep pushing and find the right dr, I'm sure someone who's been through this can direct you to which type of dr you need to start with (rheumagologist, endocrinologist etc)
start a list, go back and find any records you have and make notes, dates symptoms etc to take to the dr with you so you have something to show them and narrow the search down =)
Oh and Lisa, my test said "homogenous"...what does that mean?
Weakandfalling, It's true, I am grateful for becoming one step closer to a diagnosis, here I was thinking it IBS...
Karajo, I really appreciate your response, I do have some of those symptoms...and even if it's not Lupus, I definitely have a autoimmune disorder, which is scary in itself...when I was told, "your body is attacking itself"...oh geez! In my head, I pictured all of this frantic chaotic mess going on, my cells going haywire...and with me, I usually feel pretty good except for the digestive problems...My back usually hurts from sitting to long and then I feel really stiff, I have this "nodule" on my lower right sacrum, I thought was a tumor but had several tests done, I have a twisted pelvis...but right now, for the past month, my left leg has been hurting, like I can't bend it, imagine sitting Indian style....hurts not excrusiating but I can feel it all the way up to my tailbone...I do get headaches, mostly tension and sinus...and for the past few weeks, my throat has been hurting, it's mostly when I wake up, then it goes away after awhile....I hate waiting...it's so scary, I've had a family friend die of Lupus 10 years ago...and that's all that keeps going through my mind :(
Jules
Weakandfalling, It's true, I am grateful for becoming one step closer to a diagnosis, here I was thinking it IBS...
Karajo, I really appreciate your response, I do have some of those symptoms...and even if it's not Lupus, I definitely have a autoimmune disorder, which is scary in itself...when I was told, "your body is attacking itself"...oh geez! In my head, I pictured all of this frantic chaotic mess going on, my cells going haywire...and with me, I usually feel pretty good except for the digestive problems...My back usually hurts from sitting to long and then I feel really stiff, I have this "nodule" on my lower right sacrum, I thought was a tumor but had several tests done, I have a twisted pelvis...but right now, for the past month, my left leg has been hurting, like I can't bend it, imagine sitting Indian style....hurts not excrusiating but I can feel it all the way up to my tailbone...I do get headaches, mostly tension and sinus...and for the past few weeks, my throat has been hurting, it's mostly when I wake up, then it goes away after awhile....I hate waiting...it's so scary, I've had a family friend die of Lupus 10 years ago...and that's all that keeps going through my mind :(
Jules
Thank you for responding! I love you! (In a friend way, of course..lol) but your right, now at least somebody will listen to me...I just feel like my body is breaking down, I do have back pain,leg pain and stomach cramping ALL the time...and of course there's the tachy and so forth....and now I have to wait...the waiting is so nerve racking! Scared,anxious and nervous!
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