Muscle Spasms

[mizgahobin]

Does anyone diagonased with lupus suffer from crazy muscle spasms and twitching.

[slp928]

I have been having twitching throughout my body that gets worse when I try to fall asleep. My rheumatologist started me on low dose neurontin and it has helped a lot with the muscle twitching. Magnesium supplements have also helped but the neurontin really did the trick.

[lorr1911]

Ive just been diagnosed with Lupus and have had painful muscle spasms in my legs at night which wake me up.It all started before meds but they don't seem to help them x

[karajo]

Yes, dsDNA is very specific to systemic lupus.  So sorry they are giving you the runaround.  

[hamheff]

Oh yeah and one other thing that I'm not sure is related. They found cysts on my kidneys through my family doc. Never mentioned it to my Rhuemy cause I didn't think the 2 were related but now I wonder??

[hamheff]

So here's something interesting. My rhuemy tells me last week she is at the end of what she can test me for. She won't give up on me but is really at a loss. So, today I see my family doctor and tell her I need to see someone else since the pain in my hands is severe now. She says to me that she already told me I have Lupus and that's what's causing my hands to swell. I tell her the whole story, how I've been tested 3x, the EMG's, the X-rays, Ultrasounds.... I said there must be another condition that's causing this. She looks through my paperwork and says there are only 3 conditions possible - carpal tunnel(negative 2x by 2 different doctors), RA(negative 4-5x through bloodwork as recent as last week) and Lupus. What my family doctor found interesting is that the positive was Ds-DNA. She says it's specific to Lupus but none of the other doctors I have seen have tested for that specifically. I confirmed today that my rhuemy has never re-tested for Ds-DNA. Anyone else out there have Lupus like this? After all these years, I can't believe this is the first time I'm being told this information but I still don't know if it even means anything. Doctors are so frustrating.....

[hamheff]

So, it's been about half a year since I posted here... I still have no DX...Except, the doc thinks maybe it's Fibro but they'll only say that for sure when she's ready to give up looking.. ugh..  I was referred to a neurologist who said he had nothing to add to my case but this past week, I think I had a Lupus Butterfly rash. It was mild and only lasted one day (although I put some Aveeno cream on it). It looked sort of like pimples on my face and was ever so slightly purplish and the following day I was sick with a cold. It is the 4th time this winter I have had a cold/flu and every time comes with fever and chills. This never happened to me before. I can't just get a cold anymore. It's so much more this year - fever, chills, body aches (my hands and feet are the worst), headache, fatigue(real bad)....
Prior to this, I showed my doc a video I took of the Carpal Pedal Spasms I get(finally she listens. lol) and she was sure I had a parathyroid problem - those tests came back normal. 3x they have tested ANA with 1x positive and 2x negative. Maybe I was in remission?
One thing I know for sure is with every "flare" up, I feel worse and have more trouble recovering from it.
I go back and forth every day trying to figure out for myself what is wrong, but with this recent rash, I really wonder - could be Lupus this whole time?