Anything Helps!

[skulls837]

Hello I am a 27 yr old and I had went to the clinic in January of 2008 asking how come my knee hurt the nurse or doctor asked me a bunch of questions, some like do your joints hurt and so on! I later found out adter a blood test that I had in fact Lyme Disease! I had taken the medicine for it! But my body feels worse and its been over a year and a half, I was asked when I had gotten bitten and I replied it could have been a year, 5 years even 10 yrs! The last known time I had ever went camping was around 8 yrs ago! I am still seeing doctors and even now seeing an Infectious Disease Doctor, but some still think the pain I have created is there any way I can prove my pain and such to them without just saying it? Please forgive me in asking, I just hope anyone could direct me in the right path! I was told I still have traces of the Lyme still in my blood ( I was last checked by blood around 3 weeks ago from this day 6-25-2009! Anything helps thank you!

[gorbybelle]

it sounds like you weren't given enough antibiotic to take.  The best suggestion I have is that you find a lyme literate medical doctor - known as an LLMD. - this is a doctor who knows the whole picture of lyme disease - how to diagnose and treat it - a doctor that has an interest  and knowledge in chronic lyme/late stage lyme - that is lyme that has not been treated correctly when first infected. Many people never see a tick on them or get the rash that can be caused by the tick - known as a 'bullseye rash' .

I am sure you will get more advice from other 'lyme' sufferers here.

gorbs x

[JackieCalifornia]

I agree with gorbybelle -- undertreatment is common in Lyme.  The 'standard' is a couple of weeks of antibiotics and you're good to go, but that doesn't always work, and it's not rare that it fails to work.

I'm no camper, but there are lots of places to encounter a tick, just walking down a sidewalk with grassy fronds next to it that could brush your leg.  I don't camp, never saw a tick or a rash, but I definitely have Lyme.

If you google 'how to find an LLMD' it will get you started.  Also check the ILADS [dot] org website for information -- it's the group formed by LLMDs who subscribe to the theory that a couple of weeks of antibiotics may not be enough for everyone.

[JackieCalifornia]

PS I also see someone on another thread recommends checking turnthecorner [dot] org which will send you the names of LLMDs upon request.

PS an LLMD is a regular MD (can be an internist, an ID, etc.) who has a special interest in and a progressive attitude about Lyme.  They get called 'Lyme Literate MDs' just as shorthand.

[patsy10]

Welcome.  I would also recommend you see a LLMD as others posted already.

[skulls837]

I want to thank you all for helping get started, I thought I was alone till I found this wounderful website. Again thank you and God bless!

[JackieCalifornia]

Let us know how you do -- all good wishes for your health --