I am rooting for you!!! I am praying that the other doctors are wrong about everything, the doubt will melt away, and that our LLMD's will get us through it sooner than we think.
Do you find calm to be too sweet? It kinda upsets my stomach as sweet as it is. I was going to maybe try another version like suggested.
Continue to keep us/me posted and thanks for the notes! Thinking of you!
This is good times... Wish I could get used too all the weird symptoms. Maybe one day I will have a full recovery . Till then I will just bug you guys... :-)
Honestly,I wouldn't waste my money on other doctors that have no clue about Lyme. You may not feel better for a while and the symptoms you mention are typical Lyme.
You should call your doctor, you may just not be doing well on minocycline sounds like my herxes actually. I get "electric shock" pains in my legs and feet.
Thank you for all of yoru responses. I feel like my leg twtiching and muscle pain is worse now on minocycline. Not sure its a herx or what. I plan to increase my magnesium. However I am so concerned I am getting worse and not better. I also experience a burning feeling sometimes under my skin a buzzing feeling. Mainly in my legs. I have another neuro appt on the 16th not sure he will do anything further. But worried it is something else:( I aso have wierd ankle pain now and muscle pain going up my leg. I just am pissed off right now. Getting exhausted from all this :( I do appreciate all of your input. It is much appreciated...
I'm counting on you, better, to not take this as criticism but simply as furthering of the subject of 'how to interact with your doctor'.
I totally agree with what you've said. Doctor's need to be 'educated' for sure. But some are so arrogant that the slightest hint of 'lowly patient is telling me what to do' will get their ire up, or worse they'll flag your chart.
I've had a few doctors who are absolutely fine with that and appreciate it. A few didn't. LOL You have to 'read' your doctor first.
I just went through this with an ENT (probably nothing related to Lyme). He improved on the statistics shown as to how quickly a doctor will interrupt a patient. Improved in a negative way.
I'm going to guess that he interrupted me every third sentence. Then the fun part was, because I'm hard of hearing, I asked him once to repeat what he just said. He turned an interesting shade of reddish purple and almost shouted at me-----don't interrupt me. I'm the doctor. You're the patient. You come here to get help. Don't interrupt me!!! LOL
Pot calling kettle??
Anyway I didn't interrupt him any more while collecting my jacket to leave. I've written a 'nice' letter to him explaining why I won't be seeing him anymore. Giggle.