Aa
ceftin update..
hey, I have been on the ceftin and plaquinil sp? for almost 6 days.. the past 2 days i have felt better except for the diarreah...
i want to go tomorrow and have my tests done.
a man at my husbands job had the rash and fever but tested negative. he only tested positive during treatment.
my Dr wasn't clear about when to get tested.. he said during the course of treatment.
my joints don't hurt so i am thinking the antibiotics have lured what ever it is into my bloodstream..
any thoughts?
i want to go tomorrow and have my tests done.
a man at my husbands job had the rash and fever but tested negative. he only tested positive during treatment.
my Dr wasn't clear about when to get tested.. he said during the course of treatment.
my joints don't hurt so i am thinking the antibiotics have lured what ever it is into my bloodstream..
any thoughts?
When in Texas there was definite malpractice in my case but the medical boards and even the greedy attorneys didn't care. It's very hard to sue when Lyme doesn't exist in the majority's view.
lots of good points there jackie..
a few people said tht perhaps they would settle out of court. that would be best for everyone..
and i do take my vitamins.. multi, cal mag, c, d3..
i notice i don't feel as wll if i skip them!
best to you!
a few people said tht perhaps they would settle out of court. that would be best for everyone..
and i do take my vitamins.. multi, cal mag, c, d3..
i notice i don't feel as wll if i skip them!
best to you!
You sound better already!
I suspect many of us never know when we were first infected -- I think I had a low level infection that then ramped up when a re-infection occurred (a new bug bite, in a different summer), but since I never saw the bug or had a rash, I'll never know, and really, what matters is getting diagnosed and treated.
About suing the docs ... makes for good fantasy-revenge, but not so easy to do in the real world. There is truly a split in the medical world, and it puts your current LLMD in a bind to have to testify against the other docs. Any doc who treats beyond IDSA [Infectious Disease Society of America] standards, as it sounds your doc does, often wears a target on his/her back, with other docs and medical societies like the IDSA and medical school faculties holding the high ground. Any publicity is not usually welcome.
In any lawsuit, it may well be very difficult to find a doc who would testify on your behalf (whether it's your doc or another one), simply as a matter of self-preservation for the docs and their careers going forward. Outing an LLMD in public is not doing the doc or his/her patients (current and future) any favors, because the legal action draws attention to the LLMD and his/her aggressive approach toward Lyme+. Docs have been run out of town and/or brought up on charges before state/local medical boards for less, and sometimes lost their licenses to practice medicine. Result: fewer LLMDs in the world, and ruined careers for the desperately needed LLMDs.
If you are keen to sue, however, first have a private talk with your LLMD about whether he/she would be willing to testify. I'd wager the answer will be no.
In other news: Does your doc have you on magnesium supplements? It can help a great deal with the body pains and aches, but don't overdose on it. It really helped me a lot.
Glad you are feeling better! Keep us posted.
I suspect many of us never know when we were first infected -- I think I had a low level infection that then ramped up when a re-infection occurred (a new bug bite, in a different summer), but since I never saw the bug or had a rash, I'll never know, and really, what matters is getting diagnosed and treated.
About suing the docs ... makes for good fantasy-revenge, but not so easy to do in the real world. There is truly a split in the medical world, and it puts your current LLMD in a bind to have to testify against the other docs. Any doc who treats beyond IDSA [Infectious Disease Society of America] standards, as it sounds your doc does, often wears a target on his/her back, with other docs and medical societies like the IDSA and medical school faculties holding the high ground. Any publicity is not usually welcome.
In any lawsuit, it may well be very difficult to find a doc who would testify on your behalf (whether it's your doc or another one), simply as a matter of self-preservation for the docs and their careers going forward. Outing an LLMD in public is not doing the doc or his/her patients (current and future) any favors, because the legal action draws attention to the LLMD and his/her aggressive approach toward Lyme+. Docs have been run out of town and/or brought up on charges before state/local medical boards for less, and sometimes lost their licenses to practice medicine. Result: fewer LLMDs in the world, and ruined careers for the desperately needed LLMDs.
If you are keen to sue, however, first have a private talk with your LLMD about whether he/she would be willing to testify. I'd wager the answer will be no.
In other news: Does your doc have you on magnesium supplements? It can help a great deal with the body pains and aches, but don't overdose on it. It really helped me a lot.
Glad you are feeling better! Keep us posted.
Hey all
if my tests come pack positive and tell me what bugs i have.. i wonder...
how long have i had Lyme
It has been 13 months since my left ankle started hurting really bad. and before that i had knee pain, weak legs and cramps in my feet and calves for about 8 years..
i am waiting with excitement for my tests.. they said could be 2 weeks? i have another week to wait! i sure hope it tells me what i am dealing with. i am sure i have lyme. my neuro problems were bad. and the pain coming like a seizure. everyday sometime 2x a day. every joint back neck excruciating. i was having bouts of anger and rage. couldn't think properly..anxiety fight or flight...and sleeping all the time. went to 104 lbs. from 118
i feel great now with the antibiotics. i can jump up and down! i can dance! my ankles do not hurt! i played loud electric guitar for 3 hrs with my band that was on hold for the past year!
so many Dr's said it was my hep C ..dumb *****. I live in a lyme belt! well antibiotics do not help a virus.
mis diagnosed with fibromyalgia and given medicine that is hard on the kidneys and liver..idiots!
Lyrica gave me edema and hair loss more depressed, didn't help my legs or arms and now a leaky bladder i hope will get better. antibiotics don't help fibromyalgia!
the antibiotics are helping and i am sure i have the critters running around in me.
my brain feels better. clearer. not so tired. so excited to get my tests. at least i am on the road to recovery and not just wondering if i am going to die!
if i can prove the Lyme i will sue. i will also become a lyme advocate.
how many people are laying in bed crying in pain all because they were not given antibiotics! it's like the doctors refused me pain meds too.
what? so now antibiotics are in the same class as pain meds..
"oh you don't need that "
i had bad in bed crying pain for over 4 months before someone finally gave me pain meds!
well i am 50 years old and not an addict or alcoholic, have a wonderful family and you won't help my pain! *******.
ugh
i have to let it go and wait for the tests and then hand it over to a lawyer.
i kept a detailed journal and also took a few videos of my pain episodes..
i got bit by another tic last october when i was under care of an infectious disease dr. and she wasn't concerned. *****.. then this spring she gave a talk to the local garden club on Lyme..she has no right to tell people about lyme.
ok letting go now breath...
i can type again!!!!! feeling good watch out world here i come...new lyrics
". i'm coming back from a planet of pain / i've been gone 300 days"
and some Dr's who think they are high and mighty and do not listen to the patient and tell me that i should stay off the internet looking for the cause of my "discomfort" and just read blood tests are going to fall!
if my tests come pack positive and tell me what bugs i have.. i wonder...
how long have i had Lyme
It has been 13 months since my left ankle started hurting really bad. and before that i had knee pain, weak legs and cramps in my feet and calves for about 8 years..
i am waiting with excitement for my tests.. they said could be 2 weeks? i have another week to wait! i sure hope it tells me what i am dealing with. i am sure i have lyme. my neuro problems were bad. and the pain coming like a seizure. everyday sometime 2x a day. every joint back neck excruciating. i was having bouts of anger and rage. couldn't think properly..anxiety fight or flight...and sleeping all the time. went to 104 lbs. from 118
i feel great now with the antibiotics. i can jump up and down! i can dance! my ankles do not hurt! i played loud electric guitar for 3 hrs with my band that was on hold for the past year!
so many Dr's said it was my hep C ..dumb *****. I live in a lyme belt! well antibiotics do not help a virus.
mis diagnosed with fibromyalgia and given medicine that is hard on the kidneys and liver..idiots!
Lyrica gave me edema and hair loss more depressed, didn't help my legs or arms and now a leaky bladder i hope will get better. antibiotics don't help fibromyalgia!
the antibiotics are helping and i am sure i have the critters running around in me.
my brain feels better. clearer. not so tired. so excited to get my tests. at least i am on the road to recovery and not just wondering if i am going to die!
if i can prove the Lyme i will sue. i will also become a lyme advocate.
how many people are laying in bed crying in pain all because they were not given antibiotics! it's like the doctors refused me pain meds too.
what? so now antibiotics are in the same class as pain meds..
"oh you don't need that "
i had bad in bed crying pain for over 4 months before someone finally gave me pain meds!
well i am 50 years old and not an addict or alcoholic, have a wonderful family and you won't help my pain! *******.
ugh
i have to let it go and wait for the tests and then hand it over to a lawyer.
i kept a detailed journal and also took a few videos of my pain episodes..
i got bit by another tic last october when i was under care of an infectious disease dr. and she wasn't concerned. *****.. then this spring she gave a talk to the local garden club on Lyme..she has no right to tell people about lyme.
ok letting go now breath...
i can type again!!!!! feeling good watch out world here i come...new lyrics
". i'm coming back from a planet of pain / i've been gone 300 days"
and some Dr's who think they are high and mighty and do not listen to the patient and tell me that i should stay off the internet looking for the cause of my "discomfort" and just read blood tests are going to fall!
Believe it or not, I know someone in treatment 12 years. She is always plowing the fields etc, I bet she has been re infected.
That is great that you're feeling so much better! What is so important to know about Lyme is you have to keep up with the antibiotics for about 8 weeks after you feel well. It is really tempting to stop when you feel even 80-90% better, but that ends up being a disaster when it comes back 6-12 months later and now it is harder to kill.
Treatment can be anywhere from a few months in mild cases to a couple years for bad cases. I had lyme and bartonella six years when I got diagnosed and had lots of neuro symptoms. My estimated treatment duration was 15 months, but it will go longer thanks to my delay to wait for my kidneys to catch up. I hope yours is quick and uneventful!
Treatment can be anywhere from a few months in mild cases to a couple years for bad cases. I had lyme and bartonella six years when I got diagnosed and had lots of neuro symptoms. My estimated treatment duration was 15 months, but it will go longer thanks to my delay to wait for my kidneys to catch up. I hope yours is quick and uneventful!
Excellent news!
How long will it take? Till it's over.
It's different in everyone, because of the variety of coinfections and each person's own immune system variabilities. Just enjoy the good effects, and don't despair if there is are some rough patches. These are not simple infections, and the good news is that the meds are having an effect.
Enjoy today, and memorize it so you can call up the memory on a bad day and know that you can indeed feel well again.
How long will it take? Till it's over.
It's different in everyone, because of the variety of coinfections and each person's own immune system variabilities. Just enjoy the good effects, and don't despair if there is are some rough patches. These are not simple infections, and the good news is that the meds are having an effect.
Enjoy today, and memorize it so you can call up the memory on a bad day and know that you can indeed feel well again.
hi al
went for the blood tests. .medicare may not pay for some of them.
it said on the print out "medicare does not pay for experimental or research use tests.. "
that was for the bart and erlic and cd57 tests..
I couldn't sleep last night because i was so excited that i feel better.!!!
Even my mind feels better because i can accomplish things without pain.
A few months ago it hurt to hold a fork and squeeze a dish sponge. opening the sliding door was hard. even driving the pain in the ankles and wrists and hips.. it was even hard to open the tea box and lift the 1/2 gallon of milk!!!
I feel there is hope that i have my life back! yippee
There has to be a bug in my system because the meds are working.
I sure hope the tests come back soon and i know what i am dealing with.
They said it will take a long time..
How long?
thanks everyone
keep your spirits up!
went for the blood tests. .medicare may not pay for some of them.
it said on the print out "medicare does not pay for experimental or research use tests.. "
that was for the bart and erlic and cd57 tests..
I couldn't sleep last night because i was so excited that i feel better.!!!
Even my mind feels better because i can accomplish things without pain.
A few months ago it hurt to hold a fork and squeeze a dish sponge. opening the sliding door was hard. even driving the pain in the ankles and wrists and hips.. it was even hard to open the tea box and lift the 1/2 gallon of milk!!!
I feel there is hope that i have my life back! yippee
There has to be a bug in my system because the meds are working.
I sure hope the tests come back soon and i know what i am dealing with.
They said it will take a long time..
How long?
thanks everyone
keep your spirits up!
Are you taking a pro-biotic? You should which could help the tummy problems. Glad you are feeling better, that does say a lot!
Glad you are already feeling better. That says a lot!
IGeneX offers information about an antibiotic challenge with their urine test. They say the info comes with the urine test kit, or you can contact them directly. From their home page, click on What Test(s) to Order to see where they describe this.
You can also ask them about amount of time on abx before a WB to see if they have a recommendation. My PA said that if I had to do one (which I didn't), it would have been a month.
IGeneX offers information about an antibiotic challenge with their urine test. They say the info comes with the urine test kit, or you can contact them directly. From their home page, click on What Test(s) to Order to see where they describe this.
You can also ask them about amount of time on abx before a WB to see if they have a recommendation. My PA said that if I had to do one (which I didn't), it would have been a month.
Have an Answer?
You are reading content posted in the Lyme Disease Community
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Can HIV be transmitted through this sexual activity? Dr. Jose Gonzalez-Garcia answers this commonly-asked question.
A breakthrough study discovers how to reduce risk of HIV transmission by 95 percent.
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
Before your drop a dime at the pharmacy, find out if these popular cold and flu home remedies are a wonder or a waste
Fend off colds and the flu with these disease-fighting foods
