Aa
Years of bad doctors CD-57 = 44
I have been having all these strange symptoms for years and no one could help. My primary care doctor put me on synthroid even though my TSH was with in normal range. I have fatigue, muscle aches all the time especially now. abdominal pain like I was having PMS all the time. Stiff neck, eye pressure, numbness in my limbs, and headache but mostly relentless knee pain. I have had MRI on my knees, ex ray ect. I have had ever blood test in the book for RA, Lupus ect and all normal so they wanted to put me on psych meds and I said no way I'm not crazy. It wasn't until I found the Center for Natural and Integrative Med that I got help. Found a rare yeast in my gut and treated for that and I also had no natural flora in my gut so he is not sure if the yeast wiped that out or if the flora died for some reason and the yeast grew so he put me on a high pro biotic and abdominal, pms symptoms went away plus I avoided the foods I felt gave me symptoms. I believe this gut yeast caused me to have food sensitivities and I started having yeast infections and bad dandruff and itchy scalp. I was just feeling horrible and itching everywhere on top of all the other symptoms. I believed I also had adrenal fatigue and unfortunately I diagnosed myself with that and treated myself so that helped with me being tired all the time. I feel so much better except the relentless knee pain and now burning ache of my muscles especially my legs all the time. I work out and do spinning class and I will hurt for days. So he ran the CD 57 it was 80 months ago so now that I feel somewhat better he did it again and now it is 44. The eye pressure is new, just started a few months ago and I also have these lightning bolts shoot across my eyes, not floaters but they shoot across. This is new symptom and I don't get headache does anyone experience this? Also does exercise make it worse? I am sure I will be getting the IgeneX test next week to really determine what is the deal. Has anyone else had the test? What did you think?
I also had IGENEX run my first lyme test. I have had several lyme tests done and the results are always different however I felt IGENEX was maybe more sensitive to the findings of lyme then other labs. However with this said I did have some of the same bands found in other laboratories.
Hi I had the eye thing too. It lasted a few months until the meds. LDN rife machine herbs, who knows finally what fought the lyme enough to put the eye symptoms to rest for now. I also have a ton of muscle pain in my legs. I would try to relax as much as possible, get tested and find a good DR. LLMD. Also MY CD 57 was very low. I am doing better everyday. It takes time and to be as postive as possible while symptomatic.
My LLMD in Sarasota takes insurance. You pay her first but she is only $155 for 2 hours. Then she files the insurance for you.
I received the C4a level today and it is 4360 (H) another test also indicative of Lyme. Did not hear from my doctor still and I left messages. I hate when they don't call back. I am anxious to get the IgeneX test. I have been going threw this for years. I want help and treatment now. He is a cash only doc so you would think he would be ready to help. I live in Orlando Florida, anyone know of a LLMD in this area that takes insurance? Thanks
Everything you describe can be caused by Lyme. Your extremely low CD57 is another indicator. It's not always low in late stage Lyme, but it often is. You're doing the right thing getting to an LLMD. That's your only hope of getting well.
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Thanks everyone for your comments. I will keep you posted. The eye thing freaks me out but it comes and goes. Good suggestion about seeing a specialist who knows about Lyme disease also. I have bad respiratory allergies and I live in Florida so I thought it was that. I just really want to get the IgeneX test ASAP to really find out the real deal. Its been about four years since all my major symptoms started coming at once so I am anxious to start treatment of the most natural kind. I hate to be on drugs.
Hi, I have experienced the problems with my eyes that you describe. I was sent to a retina specialist who happens to be Lyme literate and I am borderline for optic nerve damage. Exercise makes no difference. This can cause blindness, you may want to see an opthomologist who can refer you to another specialist if needed.
As for my CD-57 it has been an accurate reflection of how I am feeling.
IgeneX labs is the best around for Lyme testing. Make sure you have them test for co-infections as well as lyme. you can google their website and gain some knowledge on their tests. I have 2 co-infections and they complicate things for sure.
Keep us posted.
As for my CD-57 it has been an accurate reflection of how I am feeling.
IgeneX labs is the best around for Lyme testing. Make sure you have them test for co-infections as well as lyme. you can google their website and gain some knowledge on their tests. I have 2 co-infections and they complicate things for sure.
Keep us posted.
In reference to your post above wondering why you never get sick. Sometimes we have a bug that puts out no trespassing signs! You're its turf and it won't let anything else in, sorta functions as an immune system in that regard. Hard to think of the inside of you being in a constant state of warfare, but that's pretty much the way it is. Then there's the farmers, parasites that farm bacteria for their own use. I best stop, already got a warning from the medhelp gestapo because I posted that I don't believe in auto-immune!
"So he ran the CD 57 it was 80 months ago so now that I feel somewhat better he did it again and now it is 44."
The CD57 is a test that may be providing information to the originator of that test (Dr. S) for the long run. That's why I had it done repeatedly when I was his patient. But I didn't have to pay out of pocket so I was willing to have my blood contribute data. (grin)
The bottom line---- there are many patients whose CD57 don't reflect how their disease is either progressing or not progressing. I was one of them. I was sicker than a dog and my CD57 (performed by that doctor and the lab that helped him with it) was right smack in the middle of 'perfect'.
A friend, who had Lyme also, but wasn't really that sick, just a few complaints, tested (same doctor, same lab) and the test stayed near zero through repeated testing.
That same 'phenomenon' can be read about if a person cares to investigate patient stories.
There are also many people whose CD57s WILL show pretty much how they're feeling. I'm sure there are many MANY variables that contribute to the disparity in results.
I'd posted mostly the same thing earlier and a few members didn't understand that I wasn't 'trashing' the test but just commenting on the fact that the 'numbers' aren't always an indicator of what the disease is doing.
Your results seem to reflect that also.
The CD57 is a test that may be providing information to the originator of that test (Dr. S) for the long run. That's why I had it done repeatedly when I was his patient. But I didn't have to pay out of pocket so I was willing to have my blood contribute data. (grin)
The bottom line---- there are many patients whose CD57 don't reflect how their disease is either progressing or not progressing. I was one of them. I was sicker than a dog and my CD57 (performed by that doctor and the lab that helped him with it) was right smack in the middle of 'perfect'.
A friend, who had Lyme also, but wasn't really that sick, just a few complaints, tested (same doctor, same lab) and the test stayed near zero through repeated testing.
That same 'phenomenon' can be read about if a person cares to investigate patient stories.
There are also many people whose CD57s WILL show pretty much how they're feeling. I'm sure there are many MANY variables that contribute to the disparity in results.
I'd posted mostly the same thing earlier and a few members didn't understand that I wasn't 'trashing' the test but just commenting on the fact that the 'numbers' aren't always an indicator of what the disease is doing.
Your results seem to reflect that also.
Igenex is pretty much known as the best lab around for Lyme and co-infections.
But be aware that a person can test negative for Lyme and still have it. I'm one of those people but long term treatment did make me better. Eventually.
Also I hope you were tested for all the tick co-infections that even just one bite from one tick can give you. Bartonella henselae, Babesia microti and duncani, Ehrilichia and anaplasmosis.
Your symptoms do sound as if you could have Lyme disease or a co-infection, maybe both. And you've already had some other diseases that have some similar symptoms as Lyme ruled out......... so it's been narrowed down a bit.
Keep us posted and please remember to save all your lab results.
But be aware that a person can test negative for Lyme and still have it. I'm one of those people but long term treatment did make me better. Eventually.
Also I hope you were tested for all the tick co-infections that even just one bite from one tick can give you. Bartonella henselae, Babesia microti and duncani, Ehrilichia and anaplasmosis.
Your symptoms do sound as if you could have Lyme disease or a co-infection, maybe both. And you've already had some other diseases that have some similar symptoms as Lyme ruled out......... so it's been narrowed down a bit.
Keep us posted and please remember to save all your lab results.
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