Hey lymegal,
I'm in the same boat, going on 25 years with Lyme and Babesia duncani. Don't give up. So much research is going on now and people are working on laws that will force insurance companies to pay for our treatment. In the meantime try maintaining with diet, herbs, etc... Not sure if you've tried the Buhner Protocol but it's worth a try if you haven't.
Natasha