Is it lymes?

[Cacheton10]

For the last five months I have had a series of unexplained symptoms. I have seen multiple md's-- internal doctor, gastro, ent, and infectious disease md. I have had a series of blood tests, cat scans, mri and all have come back normal. At this point, I am experiecing:

1. Dizziness, vertigo
2. left leg pain
3. pain in the groin, shooting pain in the scrotum
4. heart palpitations and pain
5. sharp head pains
6. sore neck
7. swollen glands
8. throat pain
9. jaw pain
10. tingling sensation on my teeth
11. sore joints
12. stomach pain


Could this be undiagnosed lymes?

[JackieCalifornia]

I just googled 'Lyme New Jersey' and got a bunch of hits.  Some patient groups are more helpful (and less depressing) than others, so you may have to try a few.

[Cacheton10]

Thanks for your feedback. I live in Central New Jersey.

[JackieCalifornia]

Greetings.

It's hard to say.  Lyme and the other diseases that are carried by the same ticks [aka coinfections] affect everyone a bit differently.

Were you tested for Lyme and coinfections?  It may be that the MDs you consulted are not familiar with Lyme, which is not uncommon.  The orthodox view is that Lyme is hard to get and easy to cure, and many MDs will not test for it, and if they do, they don't interpret the results the same way a Lyme MD would.  I personally saw about 20 MDs before finding my way to a Lyme specialist ... only one of those 20-odd MDs tested me for Lyme, and she (an endocrinologist) told me that my positive test result was probably inaccurate [as they can be], and she was certain I couldn't have Lyme, and so didn't pursue it.  I did, however, and finally was treated by another MD.

MDs who are familiar with Lyme+ are often called 'LLMDs', or Lyme-literate medical doctors, for ease of reference, but it's not a qualification -- just an approach.  To find an LLMD in your area, try the websites truthaboutlyme disease [dot] com and ILADS [dot] org, which both have referral functions.  If you want to post back here with what geographic area you live in, someone here might have a suggestion.

My own symptoms have changed over time, and I have recently had some I never had before ... which oddly enough mirror a number of your symptoms, like the tingling teeth and stomach pain, neither of which I had previously.  It's a wacky disease cluster, Lyme and its friends, so no two people have the same symptom set, and each person's symptoms can and often do vary over time.  No wonder MDs can't catch a clue.

Hang in there, find an LLMD for a work up, and don't give up.  Let us know how we can help.  

[Cacheton10]

and itchy skin