Kenny de Meirleir and the National CFS Foundation

[JackieCalifornia]

I just read someone's post here about Meirleir's work and googled him to see what he is about and what else he has written, and the first thing that popped up was a link entitled:  "NCF Board Calls for Resignation of Kenny L. De Meirleir - National CFIDS Foundation Forum."  

It is a scathing statement, accusing Meirleir of holding back on valuable scientific information so he could make money from patenting the information and writing a book.  ("The Board of The National CFIDS Foundation, Inc. (NCF) has called for the resignation of Dr. Kenny L. De Meirleir, Professor of Physiology and Medicine at the Vrige Universiteit (Free University)  Brussel, Belgium, Board Member of the American Association for Chronic Fatigue Syndrome, and editor of The Journal of Chronic Fatigue Syndrome put out by The Haworth Medical Press. Dr. DeMeirleir both a Ph.D. and an M.D. (clinician) whom, in the board's opinion, should not be allowed to ever see patients again."  

The whole post is at w w w .ncf-net.org /forum / Call For Resignation .htm [I have put extra spaces in so the medhelp auto editor doesn't block the address out.]

==>>THE PROBLEM IS:  THE POST IS UNDATED!!!  Can anyone shed any light on this?

The last paragraph of the release also makes harsh remarks about the medications Meirleir supposedly promotes.

[PlateletGal]

I can relate because many CFS patients are outraged right now with some of the world's leading CFS/fibro experts. One of them is Dr. Jacob Teitelbaum... he is often criticized for charging a lot to see him and for selling supplements, books and CD's on his website. I don't think those accusations are necessarily fair, but I am upset that when he interviews he talks about chronic fatigue syndrome, as if it is simply chronic fatigue !

I hope that these physicians will come together for the sake of their patients. And for the greedy physicians, I honestly feel sorry for them. Every greedy person I've known has always paid a huge price for their greed in the end.

[JackieCalifornia]

Well, it just goes to show that Lyme isn't the only territory in which a lot of mud gets slung, rightly or wrongly.  (Interestingly the statements made in that piece quoted above are similar to the allegations made against some Lyme researchers on the IDSA side.)  I keep taking it all with large grains of salt.

[PlateletGal]

excuse my poor grammar... I'm exhausted tonight.

[PlateletGal]

Thank you for sharing this. I also did a google search and found the same statement that you are referring to. To be honest with you, I've never heard of The National CFIDS Foundation before and this is the first I've read some negative about Dr. DeMeirleir. I do know that his research was presented this week at the International CFS/ME Conference in London.

There are so many things happen among the CFIDS experts. One thing that recently shocked many CFS patients is Dr. Paul Cheney, a physician who has been diagnosing and treating CFS patients for many years... came out and changed his entire protocol ! Apparently he also said that vitamin D3 was toxic (I'm assuming to CFS patients). So I guess the debate will carry on, although Dr. DeMeirleir's research looks very familiar and similiar to what other CFIDS/ME experts are saying and discovering themselves.