LLMD says - Of course you have Lyme

[RKF55]

Hello,

After 20 months of sickness, 10 different doctors, just about every test known to man, numerous blood test, being shot up and through my body with all kinds of nuclear isotops, x rays, ct's and mri's. And having two infectious disease drs telling me that it is impossible for me to have Lyme since I live in Fl. And also some confusion with my LLMD after the first visit I finally have a diagnosis.

My LLMD that I went to see two days ago for my second visit told me that with all my indicators and test results that yes their clinical diagnosis is Lyme. She said that the lab corp test could not confirm any co-infectious other than mycoplasma pneumonia. Moving foward they have me taking Doxcy for two more weeks, I took Flagyl for one week and start on Biaxin two weeks from now. They also want me to start some herbal stuff, burbur, pinella, samento, banderol, lumbtokinase and methylcobalamin. They say that after 3 months if my imunnity sysytem is built back up they want me to come off the antibiotics and stay on the herbals for a 3 month rotation and then go from there.

The bottom line is this, if you are reading this and you are going through the same medical meat grinder that I went through here is my best advice for you: Listen to JackieCalifornia, Mojogal and others that post here. Just talking with them on this site has helped me so much. I learned more about what my symptons and test results were telling me from them then I ever got from the egg head drs I was seeing. Thank God there are folks that care enought to try and help others. I hope that if I get cured of this stupid illness that I can be one of those people.

[mojogal]

I only started treating 3 years ago. 25 years of misdiagnoses.

I did the full Cowden program for 9 months which includes the Samento, banderol,pinella and more. I felt better on it but relapsed at Christmas time when my kids came to visit. I tried doing way too much because I thought I could but in my case I believe because I didn't herx at all from Cowden, it wasn't really helping. However many people have good luck on it and I hope you do too!

I am going to be starting Byron White Formulas when I see my new LLMD next month.

[JackieCalifornia]

No harm in posting the general aspects of which herbs your doc wants you take, and which infections you have that are being treated that way.

My doc (and I) were focused totally on antibiotics, and it worked quite well, so there's an option for you.

[RKF55]

Hello,

I am sorry to hear that you have been dealing with this for so long. I guess in the back of mind I am worried that I will be dealing with it forever. But I am hoping (and do beleive) that with the treatment I am taking and going to take I can get this infection out of me once and for all.

Do you or anyone else that might read this take the herbals I mentioned and if so any thoughts on them?

Thanks

[RKF55]

Thanks,

And yes I hope they can get me straightend out and back to a normal life also. It is sad to me that in our modern medical age that we have to research and try to figure out what is wrong with us on our own, and then push a stubborn unbelieving medical community to even test us for Lyme.

[mojogal]

Thank you for your kind words. After dealing with this for over 25 years, unfortunately I have learned too much and I have become active in helping with the Lyme related events going on. Since I am mostly bedridden, being active for me means helping with social media awareness.

I wish you good luck with treatment.

[wonko]

Welcome to the club!

Sadly your story is all too familiar, and has a lot of parallels to mine as well.

I appreciate you urging others to follow up on the possibility of Lyme disease.  It really does make a difference.  I had heard of chronic Lyme as a possibility early in my search for answers, but I dismissed it, because only "crazy people" believe in that, and I didn't even remember a tick bite!

The more of us that voice these experiences, the easier we can hope it will be for the next folks to find themselves with debilitating illness, dismissive mainstream doctors, and no answers.

I hope your LLMD helps you achieve better health!  It can take time, but it's way better than being in "limbo" with no treatment, which is where a lot of us are before finding an LLMD.