You may be herxing, or the lyme may not be treated adequately. I had severe anger for a short while with Lyme. I could not tolerate noise, and at times my head hurt so much that I actually felt violent. Looking back, I believe I may have had Lyme encephalitis.
My husband was supportive of me. He said that it was very difficult. He tried to be thankful that he was well enough to help me and to take care of the kids when necessary. He said that he told himself that it wasn't so hard to do that extra for someone who cannot do for themselves. He also gave me head rubs and neck rubs. Most importantly, he said that it helped him to be able to do something for me that gave me relief. I think it's very difficult to stand by someone who is in pain or really struggling. You want to do something !
Thank you guys so much for everything this has been such a difficult process. I found out day before yesterday that one of my former employees is potentially diagnosed with one of the 3.....lyme, ms or fibermyalgia. I am reall worried about her and looking back to things...her yougest is 2 and ALWAYS sick with high fevers and flu like symptoms.
The ladies name is Monica, please keep her in your thoughts and prayers. She has her bloodwork done tomorrow.
Just a side note I am very impressed with her General MD. She is the one that ran tests and came to the conclusion it was one of these three! I feel like we are finally being heard and Lyme is being addressed as an actual disease and problem!
About the Flagyl, one more note: IT'S WORKING!!!
Yeah, you have to spell out what is okay with being told and to whom. Be explicit. The guys I know need to be told exactly; they don't do mind reading too well ...
About Flagyl: I'm on **500 mg** twice a day, I'm very sensitive to drugs and foods, and I'm doing fine on the Flagyl, now finishing up 4th month.
It can upset my stomach, but if I take it with food (especially something fatty like cream cheese, yogurt, brownies, ice cream, or an egg) then it's generally fine. Doesn't need to be massive amounts of fat.
Always follow with a decent size glass of water (no little sips; at least a half bottle of water) or something similar to wash the meds through your stomach and out into your body quickly, reduces chance of stomach irritation.
The side effects may be Herxing instead of med reaction, or it could be both. My stomach had a bad couple of weeks after being on the meds for quite a while, and I don't know if it was the meds or the Herx, but with a little more attention to diet and fluids, it passed.
Hi Erica,
If he's remorseful that's great! It is a way of coping for men. They don't always have the support that women have.
Also, that may be why he blabs so much of his personal life. But I totally support you in wanting to not have everyone from the postman to his cousin's best friend's dog knowing about this.
I am married to the same guy I think. I have had to spell out what his wonderful family and friends can know about me and what they cannot. Personally, I like to heal and sufffer both in private. Lyme is off topic for his family and friends. Unless one of them contracts it and then they're welcome to contact me.
Anyways, just tell him you prefer the world not know.
I hope this helps. Trust me. Hang in there and marriage gets better and easier. Even when you have Lyme. The key is to never stop trying. And also to never stop communicating. Take time to be w/ each other and listen.
You're going to be okay. And you guys will have a stronger marriage because of this and in spite of this!
Keep on truckin'
I looked up the side effects of flagyl and it listed irritability, depression, insomnia and others. So the flagyl can cause these problems.
I'm sorry about your horrible night on Saturday. I do wonder though if the flagyl might have something to do with it. It has a lot of side-effects, including neuro so it could have made you feel worse.
The other thing I wanted to point out is about your husband and coping. I'm certainly not defending him but I try to look at things from more than one point of view. It's possible he may need people to vent to just like we do on here. Respect for your privacy should still be maintained though. When I was at my worst I used to cry all the time and complain constantly about what I was feeling. It totally stressed my husband out. I mean to the point that I don't know if we would still be married today if I had continued. So I quit talking about it to him. Instead I talk to others who understand like everyone here. Things are fine now. He knows I'm not ok but I try to live as normal as possible.
People cope and express their feelings in different ways. Even though we are the ones who are really suffering, our significant others spouses etc..are suffering too. Not with physical pain but the loss of the relationship the way it was. I can't speak for anyone else but I am certainly not quite the partner I was before this. But I try.
Chronic illnesses are very difficult on even the best relationships.
Hey I wasn't snooping through his email we were in the car on his iphone and he said read me this message and we went through the whole email with no problems until the end when it said "be patient with your wife stick it out" and I was like WTF
Then I asked him what the heck he said to his friend to make him say that and he said well read the email I sent him, and then he was like wait no....I may have been angry or frustrated when I wrote it.....so automatically that puts me in a position to be PO'd because I feel like I am being refered to with his friends in a negative light.
I am very guarded with my personal life and he calls and tells his family when he goes to the bathroom! Not THAT extreme but...its causing a TON of problems!
Let's face it. marriage is tough w/o a chronic illness.
When I have a tirade that I normally wouldn't, here's what I do.
I hug my hubby and tell him it wasn't me it's the Lyme. I'm sick and I'm trying to get well. And you said it so well, three steps forward, two steps back. Get over Lyme takes time. Be patient. You will reclaim your life.
BTW, not sure you should read his emails. It's his way of dealing with it. I used to read my husband's emails and it really caused me to not trust him for many years. Especially, the email to a woman he had a crush on but I digress.
Hope this helps Erica!
Take care...
Cindy
Hello Erica,
I am so sorry that you had a rough ordeal over the weekend. I have not been diagnosed with anything as of yet and I feel as if I could have written your entire message. My husband has been supportive throughout this ordeal, but he often gets depressed because we simply can't do the things that we would normally do. I am tired all of the time and it takes a lot for me to even wash clothes on the weekend. We too have always been the house to hang out at for our family members until I became ill. Its sad and sometimes I feel like this is very unfair for him to have to go through. I will pray for you and keep you in my thoughts.
Ginak
Hi
I dont post on here often, but i have a chronic illness and i have awful mood swings and the meds made me have a psycotic episode, unfortunatly my husband could not take the pressure of the illness and left last year in August, i feel he never got enough support its hard to support people when you see your wife change and you work and have to come home and look after the house and kids, but its also hard for the person who is ill me and you we have changed when we dont want to lost a life we had and we have to have a grieving period of time of grieving for that life, plus the person feels there loved ones just dont understand them any more.
I hope and pray you both get some help together or separate before things get out of hand, being ill makes you blow things up i did and still do but have got better at keeping it together but its hard.
my husband does not live with me anymore but he still trys and helps when i have flares but we are trying to get back together, sometimes i wish i could walk away at the end of the day i am stuck with this illness and now stuck on my own with 3 kids too which is unfair, but my husband said my outburst where not to do with my illness or my tablets he thought i could control my behaviour but when your in chronic pain or on tablets that make you angry and not yourself you sometimes lash out at those who you love the most.
I feel he needs to outlet how he feels but so do you, you both need some support through this.
sam
While it's probably tough for those around me, I feel like I am struggling quite a bit with my mood swings! It has been since treatment that I seem to reach such emotional extremes, and I don't like it one bit.
I think you should discuss your husband's openness about your diagnosis. I would be very uncomfortable if those who know my status were casually mentioning it. He may think that level of honesty is supportive and just not know how you feel about it.
I don't know when it will get better, but I believe that it will :)