lyme again??????

[camsrunningmom]

I was diagnosed w/ lyme about 10 years ago, I had problems w/ my eyes, joints, exhaustion.  I was on doxycycline 2 times.....I stopped going to the docs because I was in California and I was getting nowhere...seeing lyme was so difficult to 'believe' there.
Now I am living on the east coast, I have been seeing floaters for almost 2 months, went to the eye doc..found NOTHHING...went to the regular doc, tested positive for lyme, did a ct scan-NOTHING....now they are sending me to the neurologist....what is going to happen there?  I dont get why i am being passed around again....

[JackieCalifornia]

I have previouly suggested going to ILADS [dot] org to find a referral, but I just looked at their website and can't locate that link.  Perhaps someone else here can, but it's still a very useful website for information such as Dr Burrascano's treatment guidelines.

Here are four ideas:

-- lymediseaseassociation [dot] org

-- lymenet [dot] org

-- chroniclymedisease [dot] com

-- google "LLMD new hampshire vermont" or whatever geographic area is convenient to you and parse through the results.

Any MD can claim to treat Lyme and to be an LLMD, but because the field is still developing and we are on the front lines of science, however unwillingly, it's necessary to be skeptical and educate yourself as much as you can, simply to check up on your LLMD and what s/he is recommending.  

Let us know how you do.  Best wishes --

[camsrunningmom]

Hi Jackie,
Thank you for your response.  How do I find a LLMD in my area?  I am in the Manchester NH area.

[JackieCalifornia]

You may be running into the heightened attention that Lyme has received in the past decade ... the battle lines between the so-called mainstream docs in the Infectious Diseases Society of America (IDSA) and the broader-minded docs in the International Lyme and Associated Diseases Society (ILADS) who are more likely to take Lyme seriously.

You are lucky to have gotten tested for Lyme.  Your neurologist may surprise, but as a group, they don't 'believe' in Lyme.

I'd suggest you get a copy of all your tests and make an appointment with a Lyme specialist (so-called Lyme Literate MD, or LLMD, which is just a nickname and not a professional qualification.)  If you need a hand finding an LLMD in your area, let us know.