hi there,
just want to discuss a few symptoms that distress me the most and at the same time fill me with extreme fear.
first is the balance / coordination / stability issue.Since all that weakness started in June I have lost my stability and body balance.It´s very hard to describe but I´ll at least try.It feels like im just not 100% stable all the time.Even when I just stand with feet together I feel a bit out of balance and I can really feel my ankles shifting just a little bit to maintain position.that is nothing that some other person would notice,but I notice it for sure.there is just not that "ideal" stability that would be normal.And of course this whole feeling / effect gets worse when I move in a more complex way like walking or leaning on one foot.from the first moment I move I feel this instability in my ankles and thighs which makes walking extremly annoying.It´s moving like you are drunk constantly in need for recorrecting your movement.and if that would not already be enough,I also feel like I have lost my ability to walk in a coordinated way.my feet just don´t hit the ground with optimal accuracy.and to make all that even more worse I have devoloped a lot of pain in the bones and joints of my feet which makes me feel every little stone and hurts with every movement.
from all the symptoms these balance / coordination issues annoy me the most,because I can´t explain these effects.They could be related to all the muscle weakness I experience and partly a result of my very limited movement within the last 8 months.but it´s not just weakness and softness.It´s like my whole movement coordination is affected...
I wonder if someone with lyme has experienced something similar or can relate to these lines above...
every word would help.I know that balance and coordination issues are possible with lyme.But isnt what I describe different from lyme features??
if anyone can relate please help...
I´m so desperate
thx and best wishes
Patrick
p.s. by the way,I´ve looked through my papers and found that in july my IgM Antibodies were positiv,allthough a month ago the were negativ again.whatever to hell that means...