lyme, or no?

[brandycolwell]

ok, so for me it all started in one day. 2-3 weeks after the flu and mono, i woke up, had a hard time turning my head to the right, little spasms in my neck that would pull my neck to the left. what i thought was weakness in my arms and legs, but now im not sure, its so hard to explain..when i lift my arms and legs they shake, but i can still all the things i need to. its like the muscles cant relax or something. twitches EVERYWHERE. i have been so worried about ALS. but from what i have read, it doesnt start this way.

  i have seen a neuro, who said cervical dystonia with tremors, but im so not buying it. that doesnt start this way either, at all. and all literature says that if you present with other neuro symptoms that the cervcal dysonia is almost alwys secondary.
i also have these wierd feelings of burning under my skin, so stranfe. my joints sometimes feel so irritated, like a cold but warm burning, and if i stretch my legs out, then straighten them, its so painfull..

the tests i have had that camr back out of range where as follow :
low b12
low ferritin
low vitamin d
hypothyroid
low creatinine

i have been treated for over 7 months for all things listed above, without ANY improvement, at all.. im so frustrated. im only 30, i have 3 small kids (who are my whole world)..i really need to get back to who i was before all of this. any help is so very appreciated. i guess my main question is, does this sound like lyme disease?? has anyone had these type of symptoms that started so fast?

[brandycolwell]

so i went to the endo today, and he is checking vitamin D (as it was so low) and thyroid function again..also looking into why my calcium is so high. he also made me aware how dangerous it is that my blood sugar stays so low (70 after eating) so, onto other things i guess. can i ask my endo to test me for Lyme disease??

[brandycolwell]

  i will be watching :)

[ewford]

  Brandy, check for a new post by me.  I just got my labs back that Dr Jemsek had me get.

[brandycolwell]

  thank you ;) i hate that you also had/have the same problems, but it is good to finally hear someone say, yeah, i know what you are taking about!

[mojogal]

Brandy, It can affect any part of the body. I remember having so much weakness in my arms that I couldn't open the door to the washer or dryer. Now having numb hands coming and going. I had mono too. Don't know if that is just bad luck or what but you should be fine with an LLMD. Good luck!

[brandycolwell]

WOW!!!!!!!!!!!!

no good dead goes unpunished!

im so very thankful u suggested i come here, i feel some stress off of my shoulders that it may not be something as bad as ALS!! i have spoke to a LLMD who sayd ALL my symptoms sound like Lyme! im sorry she did that. one thing they said to me that makes perfect sense is this- you are so young, it would almost be obvious that it would have to be an infection causing all these symptoms, that all came on so suddenly. as far as i have read, ALS, does not present this way. so anyway, THANK YOU SO MUCH!