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memory and vision issues
Hey everyone I'm new to this form and was dxd with lymes july 3rd. Anyways my main symptoms are memory problems and vision problems. For example I cannot recall what I did today unless someone brings up events and as for my vision its really blurry and not even my glasses help. I have a lot of other symptoms but those are the worse ones.. does any one else suffer from the aame symptoms? Thanks in advance!
welcome, and yeah, ah what they all said..blury vision comes and goes throughout the day. i mainly have extreme joint pain.
We're glad to help ... nobody gets the same symptoms or same infections, and everybody's immune system reacts differently, so the mix-and-match possibilities are endless.
The ELISA and Western blot are the usual first two tests done to look for Lyme. That your new doc is waiting to see your records before proceeding is not a bad thing, it means she's data-gathering instead of just knee-jerk reacting.
Here's a suggestion that sounds like work without a reason, but it could be very helpful for you to ALWAYS get hard copy of ALL your new test results every time you see the doc. In some places, I think docs are required to give you copies, so they just hand them to you, but I always ask, 'Did I get copies of everything? My memory isn't what it used to be, so it really helps me to have copies to read later.'
The advantage of that approach is that the docs know Lyme affects memory, so they should fork over the copies. If you wait till later and ask the sometimes-surly front desk people to copy all your records, the lazy souls that they often are don't copy everything, and you never know what you didn't get ... and here's why it's important: Lyme and its co-infections are not easy to diagnose, because the bacteria are tricky, and the tests are not very accurate, so every single data point you have through the whole adventure could be important later, so you gotta have the WHOLE thing as you go along.
Sometimes one doc comes to a dead end with ideas, and you need to see another doc, and having all those records to copy and give to the new doc is extremely valuable. I kept all of mine (actually, still have them) in a big three ring binder and used them when when seeing a new doc, as sometimes happens.
It sounds like you are on a good path, and we will be here with our 2 cents whenever it helps. No one here is medically trained that I know of, so it's all just the product of our own experiences and reading, but it has helped me enormously to get ideas and compare notes, and most of all, to know that I am not alone in all this.
So we're here -- wishing you the best! Keep us posted --
The ELISA and Western blot are the usual first two tests done to look for Lyme. That your new doc is waiting to see your records before proceeding is not a bad thing, it means she's data-gathering instead of just knee-jerk reacting.
Here's a suggestion that sounds like work without a reason, but it could be very helpful for you to ALWAYS get hard copy of ALL your new test results every time you see the doc. In some places, I think docs are required to give you copies, so they just hand them to you, but I always ask, 'Did I get copies of everything? My memory isn't what it used to be, so it really helps me to have copies to read later.'
The advantage of that approach is that the docs know Lyme affects memory, so they should fork over the copies. If you wait till later and ask the sometimes-surly front desk people to copy all your records, the lazy souls that they often are don't copy everything, and you never know what you didn't get ... and here's why it's important: Lyme and its co-infections are not easy to diagnose, because the bacteria are tricky, and the tests are not very accurate, so every single data point you have through the whole adventure could be important later, so you gotta have the WHOLE thing as you go along.
Sometimes one doc comes to a dead end with ideas, and you need to see another doc, and having all those records to copy and give to the new doc is extremely valuable. I kept all of mine (actually, still have them) in a big three ring binder and used them when when seeing a new doc, as sometimes happens.
It sounds like you are on a good path, and we will be here with our 2 cents whenever it helps. No one here is medically trained that I know of, so it's all just the product of our own experiences and reading, but it has helped me enormously to get ideas and compare notes, and most of all, to know that I am not alone in all this.
So we're here -- wishing you the best! Keep us posted --
Thanks for all of the replies! I'm not exactly sure if they tested me for co infections I just know they did the elisa and wester blot which were both positive. I just got a new gp yesterday and had my first appt with her and she's just waiting to get all my records but she said she's gunna order more blood work after she sees what's been fone and what's missing. Also I went to an eye dr before I was dxd and he said the vision problems aren't from my eyes themself.. I'm supposed to have a follow up appoitment soon and ill def let him know about the lymes disease!
I have had both, among other things. I developed a blurry spot in my right eye that kicked in right about the same time I got a new prescription. I kept griping about how the right eye was blurry and they redid my lenses twice. Then they wrecked my frames. When I found new frames, the lenses were bigger, and the blurry spot was less noticeable and tolerable. At my worst, I couldn't read much at all without reading glasses. After six months of treatment, it is nearly gone.
And I definitely had memory problems. I left the stove on twice and was banned from it by my hubby. I would write down to-do's, and then forget that I even had a to-do list. I was useless for a couple months. It got better very slowly. At some point I could look back and realized I was better. I still have some short term memory problems. But as long as I write stuff down I am ok.
And I definitely had memory problems. I left the stove on twice and was banned from it by my hubby. I would write down to-do's, and then forget that I even had a to-do list. I was useless for a couple months. It got better very slowly. At some point I could look back and realized I was better. I still have some short term memory problems. But as long as I write stuff down I am ok.
I have a wreath of post it notes surrounding the edges of my computer screen, and will have to read them one of these days .... heh!
Not to worry. At least we are remembering to write the notes down!
Not to worry. At least we are remembering to write the notes down!
So I am not the only one who has the post it notes which I don't remember writing....:(
Yes, definitely see an ophthalmologist as Jackie advises.
I used to get awful blurry vision but luckily it was just eyeball muscles getting tired (yes, my scientific knowledge is on a par with Homer Simpson's) and no lasting damage.
As for memory loss,,,, er, what was I saying? Who are you?
I have had this soooo badly!
The only thing that helps, and it does help me a lot, is choline. I take 1000 mg a day (the brand I use is Solgar which I find very good). It takes about 3 weeks to kick in, and by that time a gradually realise that I am recognising people in the street (instead of hiding behind dark glasses to disguise the look of utter bewilderment) and no longer putting jars of instant coffee in the fridge or finding memos on post-it notes all over the hosue that I cannot recall writing, or understand, even though they are definitely in my handwriting.
I used to get awful blurry vision but luckily it was just eyeball muscles getting tired (yes, my scientific knowledge is on a par with Homer Simpson's) and no lasting damage.
As for memory loss,,,, er, what was I saying? Who are you?
I have had this soooo badly!
The only thing that helps, and it does help me a lot, is choline. I take 1000 mg a day (the brand I use is Solgar which I find very good). It takes about 3 weeks to kick in, and by that time a gradually realise that I am recognising people in the street (instead of hiding behind dark glasses to disguise the look of utter bewilderment) and no longer putting jars of instant coffee in the fridge or finding memos on post-it notes all over the hosue that I cannot recall writing, or understand, even though they are definitely in my handwriting.
One more thought: have you seen an ophthalmologist (an MD specializing in eyes)? If not, I would suggest it.
After I was diagnosed with Lyme, I went to see my ophthalmologist for a regular check up and, with shy apologies for even having a diagnosis of Lyme (because by then I knew how much mainstream docs sneer at Lyme), I told the eye doc that I had been diagnosed with Lyme.
To my great surprise, he took it VERY seriously. He was glad to know about the diagnosis so he could watch for any problems, and tho I didn't develop any, I was comforted.
So, if you have not seen an ophthalmologist (MD), I would strongly suggest you do so. Optometrists and opticians are not MDs.
After I was diagnosed with Lyme, I went to see my ophthalmologist for a regular check up and, with shy apologies for even having a diagnosis of Lyme (because by then I knew how much mainstream docs sneer at Lyme), I told the eye doc that I had been diagnosed with Lyme.
To my great surprise, he took it VERY seriously. He was glad to know about the diagnosis so he could watch for any problems, and tho I didn't develop any, I was comforted.
So, if you have not seen an ophthalmologist (MD), I would strongly suggest you do so. Optometrists and opticians are not MDs.
Hi, and welcome. Sorry you have to be here.
I have vision and memory problems. My LLMD calls it "Lyme blindness" I had a very bad case which has improved with treatment. My memory symptoms had gotten better and about 2 weeks ago went very bad again. I was told that this was normal from my other support group and my LLMD.
Have you been tested for co-infections? What are you taking now?
I have vision and memory problems. My LLMD calls it "Lyme blindness" I had a very bad case which has improved with treatment. My memory symptoms had gotten better and about 2 weeks ago went very bad again. I was told that this was normal from my other support group and my LLMD.
Have you been tested for co-infections? What are you taking now?
Hi
I have lyme and have aching eyes all the time, and eye dizziness, although thats disappearing with meds.
I also have bad brain fog.
My daughter also has bed brain fog and is very forgettful, as well as eye pain, sensitivity to sunlight, and suffers with blurriness, and floaters, in both eyes.
All our symptons are neurological
I have lyme and have aching eyes all the time, and eye dizziness, although thats disappearing with meds.
I also have bad brain fog.
My daughter also has bed brain fog and is very forgettful, as well as eye pain, sensitivity to sunlight, and suffers with blurriness, and floaters, in both eyes.
All our symptons are neurological
Welcome to MedHelp -- sorry to hear you have reason to join us, but glad you found your way here.
I haven't had eye problems myself, but I think others here have, so they can answer better than I.
But memory ... yes, that's definitely something I had.
Were you also tested for other diseases the same ticks carry?
And what treatment has your doc prescribed?
I haven't had eye problems myself, but I think others here have, so they can answer better than I.
But memory ... yes, that's definitely something I had.
Were you also tested for other diseases the same ticks carry?
And what treatment has your doc prescribed?
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