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551343 tn?1506830518

How many of you had an early hysterectomy/endometriosis?

Over the last 2 years I have noted something very interesting. I have met quite a few women either with MS, or in limbo land who had an early hysterectomy and endometriosis.

I am wondering if there is a link.

I found some research in the USA where 100,00 women with endometriosis, 516 developed MS.
100,00 women tested who didnt have Endometriosis, only 73 women had MS.

ALSO fibroymayalgia comes up high too, Out of 100,00 women with endometriosis   5,897 got Fibromyaliga. 100,00 women who didnt have Endometriosis 3,400.

Also Lupus comes up high too. Out of 100,00 women with endometriosis,   842 develop Lupus.
100,000 women without endometriosis only 41 developed Lupus.

When you look at the percentages above they are quite high arnt they?

How many of you on here have had hysterectomy and the above illnesses?

I am going to send my findings to my neurologist just out of curiosity.

I had endometriosis and an early hysterectomy I was about 25. I have either Lupus or MS type illness.

Perhaps when we are diagnosed with endometriosis we could be charted for further problems or something could be done to change this or something???

Sorry brain isnt in gear this morning. Think i have a cold coming.
54 Responses
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335728 tn?1331414412
Partial Hysterectomy at age 34...no endometriosis...ovaries still in tact.
MS Diagnosis  in 1993...Hysterectomy in 1995

Rena
Helpful - 0
233622 tn?1279334905
I had a hysterectomy last year because of several problems that included endometriosis.  My right ovary was left because it still looked ok. I was 44 so I am not sure that would be considered all that early.

LA dx MS
Helpful - 0
Avatar universal
Female wise, I am a mess.

Dx with PCOS in the 90's.  While pg with my daughter I found out I also had fibroids.  After having my daughter I started having horrible cramping and just flat out pain before and during af.  I ended up having a lap done to remove a large cyst.  I found out after the lap that I also have endo and that it had utterly destroyed one ovary and one tube.  Lucky me.  My daughter is a miracle!
Helpful - 0
599170 tn?1300973893
I find your resurch very interesting..everthing is connected,,by your numbers it sounds like there is a for sure link,,,I had endoemtriosis that turned into andeomyosis got a hysterectomy no ms signs other then my finger tips go numb quite often,,,,
Helpful - 0
293157 tn?1285873439
Had a partial at age 39, endometriosis, right ovary had to be taken out 2005, just before my second bout of symptoms started again.

Wobbly
Undx
Helpful - 0
649926 tn?1297657780
Hi Mrs. A,

I am one of your people I guess. I was diagnosed with endo at 23 and suffered and had a ton of surgery for 10 years then finally gave in and had the total hysterectomy.

I have been diagnosed with MS, RA & Sjogren's had TM and auto-immune hemolytic anemia. It's been a long road and the docs still think there is something that they are missing.

I have often wondered if there is a link with the endo and also maybe some of the meds that I took for it. Were you or anyone you have polled ever on Lupron?

This is interesting stuff. Thanks for bringing the question out.

Erin :)
Helpful - 0
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