so close!

[princess73]

I am so close to a dx! I can feel it! Have any of you limbolanders had thyroid problems? I think this may be my answer. I am getting scheduled to see an endocrinologist. I am still going to see a rheumatologist at the cleveland clinic, just in case. I cancelled the neuro appt., though. Ever do something and regret it later? Umm Yeah that would be me. I thought that since I have seen 2 neuro's already (one being a university ms specialist) and my mri has not changed in 6 months, that I shouldn't waste my time or money on another one. I kind of regret it now. I have been having this problem lately and it totally isn't me. I rreact without thinking things through first. The old me would over think everything before reacting. What is going on with me? This is not a good way to start out my day! All thoughts and comments will be appreciated.

[spastic]

I am glad to hear your getting a thorough workup. It easy to give up but I can tell you don't, don't ever do it.  As Zilla* says, you must pursue those lesions. Make sure you take a list of questions, and take a timeline and its definately worth picking the brains of doctors.  Keep me posted.

Love,

Ada

[Momzilla]

Hey!

Please dont let this go.  You must pursue these lesions.  Why on earth would a healthy young woman have them?

See the neuro.

Feel well, and keep me posted!

Zilla*

[princess73]

Hi Lady! Thank you for your input. I did have lesions on the brain, but they were unchanged. The radiologists both said possible demylenation/ms. Both neuros said not ms. My pcp is scheduling me with an endocrinologist due to my thyroid antibodies being high. I am still seeing a rheumatologist at the cleveland clinic. And, great news! My "consierge" at the clinic called and said that she got me in to the neurology access clinic for people who have serious problems. Hopefully, the doctor will be in my network! They couldn't tell me which doctor would be scheduled that day. You aren't kidding when you say it is easy to lose confidence, especially when your family members think they are doctors and tell you what is wrong with you. Anyway, thank you so much for your support. I will let you know how things go!
-Princess

[Momzilla]

Hi, Princess~

Don't fret.  THis is tough stuff.  It's hard to make all these decisions and know what the right thing to do is all the time.  One question, though:

You said your MRI hasn't changed in 6 months.  What does your MRI say about your brain/spine?  Was everything normal?

If so, then I think pursuing other specialties is an excellent idea.  I have normal MRIs and saw a brilliant endocrinologist who found I have growth hormone deficiency.  An endo might be able to answer all sorts of questions for you.  A rheumatologist, as well, of course.

However, if there is something going on with your images, like lesions, you have to keep pressing a neuro who will take action for you.

Hang tough.  It's easy to lose confidence when you are not trained in medicine, and then have to make all these medical decisions.  Right?  Don't beat yourself up.

Have a great day!

Zilla*