It's official - I have MS.

[Sidesteps]

I received a phone call from my Neuro-Ophth yesterday asking for me to call her regarding my email update, so I called her this morning.

She asked a few questions then we discussed the significant improvement with IVSM and what that means. She thought it was possible my complaints were refractive in nature but it appears they are not. *My theory holds up.* :)

She told me it is MS. I am to follow-up with an appointment to go over the new MRI and long term treatment options. She is going to discuss with my Neuro.

We had a nice talk about how much improved my symptoms are. I feel so much better, she said ot is also nice to know what you are facing and you can move forward in what you need.

I am a bit manic (high energy and happy) at the moment from the steroids and feeling so much better so this likely is hitting me different. I feel relief. I'm ready to move forward. Is that odd?

[jenphilly]

The steroids are giving you the high feeling, but I think the real underlying reaction you are having is more validation...  and from your post, sounds like you have a bit of take the bull by the horns personality!   I am the same :)  

I am not far ahead of you on the MS road....  It became clear last June something was not right, back pain, arm and hand numbness....  my primary doc thought MS within a month, all the specialist were less likely to jump on the bandwagon.  Took a spinal tap to clear things up.  My diagnosis was in November.  I am an upbeat person and all my life have the attitude of taking things head on.   I have yet to feel depressed or any type of self pity...  so don't think you have to experience that.  Everyone is different.  

I took the route of educating myself, reading all the studies and theories...  Started trying different supplements to see what might help before I tried any prescription meds for the symptoms.  I am on copaxone to try to modify the MS progression...  but the supplements have been a huge help with the numbness, fatigue, spasms, etc....  

I hope you keep the positive attitude....  feel its made a big difference for me!    

Have you done any reading on the DMDs....  have any thoughts going into meeting with the neuro for what might be the option that you prefer?  

Good luck with moving forward and keep posting!!  

Jen

[luvnGod]

Sidesteps, I am so happy for you that you have a diagnosis finally and can now move forward.  Of course, as others have said, it certainly isn't exciting that you have MS, but I can totally relate to your feelings of immense relief.  I still haven't recevied my "official diagnosis" but I know it will be bitter sweet when it comes.

I am so thrilled that you are feeling better!!  We love you and will continue to be here for you through the good, the bad, and the ugly :)

Blessings to you!!
Stacie

[ku111]

I am sorry for the diagnosis of MS but I am glad that now you can move on into the next step and have treatment options.  I am wishing you the best and look forward to traveling this journey with you.  Jordan is still in limboland but I can keep on learning until we are dx also.  Glad you are feeling better!

[maxthecat43]

HI Barb,

I'm so glad you are finally going to be able to begin therapy.  Have you begun to research the options yet?

Hugs,
Tammy

[essdipity]

As others have said, your feelings are completely normal.

Don't be surprised if you go thru times when you're in total denial, as well.
'They've made a mistake, etc.' I STILL go thru that, despite everything. My head can be extremely hard.

Take your time processing everything, then make your treatment plans. We'll be here whenever you need us.

Hugs,
ess

[tingletingle]

I am very sorry to hear you have joined the MS club. You already have received great messages of support and please add me to the list. This is a fab group of caring folks so stick around and feel the love which can heal your bod.

Blessings
Alex