Multiple different MRI readings...

[arob2013]

I have had THREE doctors currently check my MRI; Radiologist, Neuro Radiologist, and Neurosurgeon

Radiologist says two lesions, could be hypertension, migraines, or demyelination
Neuro Radiologist says normal (???).. Only 1 lesion that is likely from silent migraines (as I don't have headaches..) and right eye shows Optic Retrobular Neuropathy.. But that the MRI strength needed to be higher
Neurosurgeon says 2 lesions, too young for hypertension and migraine scarring, likely demyelination.


^^^ this scares me in that three different doctors have said something different, so how am I going to have a believable answer ?

Still some bilateral arm weakness, but I have at least gained almost full sensation in them. Just waiting CSF results...

[kwarendorf]

Hi arob - Welcome to the group :-)

I agree with Alex. The neurologist, not the neurosurgeon or radiologists, is the one you should be focusing on. He or she will be able to conduct the kind of thorough physical exam required and be able to interpret the lab and radiology reports.

It's very possible that your symptoms could be related to MS. It is also possible for them to be caused by many other things. Your neurologist should be able to sort through the data you have begin collecting.

Keep us posted.

Kyle

[arob2013]

I have been seeing a neurologist for 2 weeks and waiting for results from lab work. I was in the hospital last weekend for bilateral arm numbness where they did the MRI, blood work, and CSF. I still have not regain full sensation in both arms and have been significantly weaker than I was before. This past weekend I had two episodes of disorientation and balance loss at a stand still, which seemed to go away as quickly as they came. It was bizarre.

In terms if eyes, I don't have pain, but very burry, was papery vision. My left eye has major grey halos and I have black spots in both eyes my left eye feels very heavy and tired.

I was diagnosed in 2012 with gastroparesis which has been laying dormant for a few months  and has ALSO decided to flare up once more. It's been one hell of a couple weeks.

Alisgam, I am 25 and I would have to say pretty healthy (just ran a half marathon in November.) this has all totally knocked me off my feet.

Thanks for all the comments.

[HVAC]

You need a Neurologist who has your history, your symptoms, has performed a Neurological exam, and has done other tests to rule other things out and MS in or out. I had the lesions on the MRI but did not get a diagnosis until I went to a MS Specialist and he had all the evidence to make a diagnosis.

Alex

[Alisgam]

Is there Dr.s that are truly Diagnosticians? That would be great! Or is that the concept of places like Mayo? When a complicated case comes along....most Dr.s seem to give up. I need Dr. House!!
Arob... how old are you...if you don't mind me asking. How young is "too young" to have brain lesions, anyways? Good luck to you. It is a long and frustrating road you are heading down.

[Sailorsong]

A radiologist is not a diagnostician. They only give impressions of what it might be and leaves it up to a Neuro to determine what it is really showing. That is why he listed 3 different things that it could be.

The Neuro Radiologist statement is kind of confusing  in that he says it is normal and then gives two abnormal findings. But if he is saying there is Optic Retrobular Neuropathy that is another term for ON which is a fairly common first symptom of MS. Have you been having any eye pain or vision problems?

The Neurosurgeon also seems to be leaning toward MS or a mimic that cause demyelination.

And actually they may all be really saying the same thing. the 2 lesions could have been the one in a unspecified location plus  the ORN could have been determined by a lesion on the optic nerve.

Dennis