Aa
Still no answers
Hi all havnt been on for a while so I hope all is as well as can be.Just wanted to have a moan really,now back from neuro visit and despite a noticable decline he is relluctant to make firm diagnosis because after 3 mri brain and 1 mri lumbar over past 3 years nothing is showing .Most recently my tongue tingles far more and the trigemenal nerve and eye pain is sometimes unbearable as well as a constant sensative burning in neck and down spine. also currently experiencing 3rd session of footdrop.I know a definate diagnosis wont change anything physicaly but emmotionally Im sure it would help to deal with it.I guess many of you must have been through this and far worse so I appologize for having a moan. Why has it taken me 3 times as long as normal to do this.Thanks for reading kind regards poddy
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hey Poddy, it's good to see you back here. I understand your frustration at not having answers. At least when we can put a name on this MonSter we can begin a fight. For now you are stuck.
I hope the doctors will keep working with you - Melissa is right about trying to get on therapy if this is MS.
We're good listeners to moaning and whining - be sure to come 'round and vent all you need.
hang in there, Lulu
I hope the doctors will keep working with you - Melissa is right about trying to get on therapy if this is MS.
We're good listeners to moaning and whining - be sure to come 'round and vent all you need.
hang in there, Lulu
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I'm so sorry you are feeling so down and frustrated, and that your symptoms are increasing again. I definitely understand your frustration - I'm not diagnosed yet either. I also have unresolved footdrop (mine has been constant for the last year). I have had 2 "clear" brain mris, and a "clear" cervical mri (although the neuro I saw did not look at my images himself), but my GP is ordering a thoracic mri as lesions there would explain a good deal of my symptoms (though not all of them).
I know what you mean about about diagnosis - just knowing would relieve so much stress. Just to be able to have something to say when people asks what is wrong with me. When they ask why I'm limping it's hard to explain that I have a footdrop due to spasticity caused by undiagnosed neurological problems. They tend to just look at you with a dumb look on their faces lol.
And knowing very well COULD make a difference physically, as then we could start treatment for whatever turns out to be wrong with us. At the very least it might prevent further decline, which is pretty high on my list of things I would like to achieve.
I guess this is my long-winded way of saying you definitely aren't alone and I'm here if/when you need to moan/whine/vent.
Hugs,
Melissa