Cheers Lulu I will check them out
Mand
The UK MS Society chat rooms have a lot of discussions about LDN if you want to read about experiences....
go to this link and then in the search box on the left side type in LDN .....
http://www.mssociety.org.uk/applications/discussion/
Hi there
I do know of someone who takes LDN, she travels a couple of hundred miles and pays privately to get this treatment (I'm in the UK where we have free treatment on the NHS).
She does not take any DMD and I'm not sure why. I have cut and paste the following from the site that Lulu mentioned.
"LDN is a treatment method that has been in use in the USA since 1985 but is relatively new in the United Kingdom. Despite its claimed successful use in America, until fully proved here, it must be considered as experimental and that no beneficial response can be guaranteed."
It worries me that they seem to be pushing it by saying that it is successul in the USA and yet that is not the impression I get from reading this forum.
Having said that I would not close my mind to the possibility of it helping MS, however as you cannot take it and beta interferon I will not be trying it at present. I thank you for the information and will certainly be keeping an eye on any information about the treatment.
Actually I suppose I do sound a bit closed minded, I am just wary of something that we cannot simply go and ask our GPs to prescribe - I wonder why that is the case.
Thanks again for bringing this to our attention
Mand
I have done a little research on low dose naltrexone and found it of interest. Do you have any personal experience with it? I'd like to hear about it if you have.
Do you have MS or some other disorder?
Sorry gorlie,
I have no experience with LDN and know little about it except it is not on the list of DMD's currently approved for MS treatment. It is thought that it works on many diseases, not just MS, but thorough studies have not been done.
One common belief is the theory that the big pharmaceuticals can't make a profit on LDN, so they have blocked further study of it here in the US. Conspiracy theorists love this one, but I'm not so sure about that idea.
I believe it is more widely used in the UK where getting a DMD is very difficult because of the cost. There are many programs here in the US from the pharmaceutical companies that assist or *donate* the DMD drugs - please look into those if cost is an obstacle.
In the meantime, here is an excellent explanation from the MS Resource Center in Britain about LDN.
http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=651
my best,
Lulu
Many folks have reported feeling better on LDN. Unfortunately, though, it is not a DMD and will not affect the course of MS.
ess
Sorry no responded to your post. I remember reading it but since I do not have a dx and therefore no DMD I didn't have anything to say. Imagine that me not having anything to say.
It is also summer and the forum has been really slow. Not so very long ago posts were moving to the second page within hours, now posts may stay for a few days. if you post and no one responds you can always bump the post back up by writing bump or anything as a response.
Sorry no one responded we are usually pretty good.
terry