diagnosed with MS

[lydia231]

I recieved a diagnosis of ms a few days ago.  I was just wondering about something.  A few years ago I had all the symptoms of optic neuritis but there was no scar tissue visible when my neurologist ordered testing to check for optic neuritis. Is it possible that scar tissue would not be visible for old optic neuritis?  I heard it would always show up. I know I had all the symptoms and feel certain that is what I had.  

[Jacksmom516]

Hi Lydia

I too am sorry you had to join us but you will find great support here!  Whether its questions, concerns or you just need to vent -  this is the place!

[Lulu54]

Hi Lydia, I'm sorry you have joined this group of people with MS but glad you found us. This is a wonderful group, always willing to share experiences and opinions  LOL

You've found a great place to be and I hope you will come around often.  

[PastorDan]

Hi, Lydia.  As a seemingly permanent Limbolander, I'd like to congratulate you on receiving a dx.  Simultaneously,  I offer my deepest sympathies on your receipt of this one.

While we're discussing ON, I have a question I'll toss in.  I was once told by a doctor that a negative VEP effectively rules out ON.  I'm not sure he understood the question.  T/F, anyone?

[sllowe]

Hi Lydia,

I'm sorry your post slipped to the 2nd page. Sorry for your dx, but thank you for trusting us for input.

ON does not always cause visible damage (i.e., you had it years back, but nothing is seen now). The doc could have seen the inflammation during your exam though initially and dx'd you with it.

So, how is your vision now? Are you in the beginning phase of deciding on a disease modifier?  Thank you for joining us, and see you around!
-shell

[Footsie3110]

Hi and welcome. :)

I had my official diagnosis a few weeks ago... welcome to the club.

I haven't experienced optic neuritis but  I know that an MRI I had 18 months ago showed over a dozen lesions through my brain and more than half of them were no longer visible in a followup MRI in December last year. I wonder if it's possible for optic nerve lesions to heal over time without leaving the lesions behind.

Might be something to ask your neuro about on the next visit.

[HVAC]

It does not show up as scar tissue on the eye. It will show up on a MRI or on those super tests Neuro Opthmalogists do where they look behind the eye. I think the nerve is a different color or thickness or something. Sorry about the diagnosis.

Alex