Aa
Multiple Sclerosis Diagnosis, Yes then No
My symptoms started in 1989. For 3 years I was told that they found nothing wrong and one dr suggested I see a psychiatrist. Finally I found a compassionate neuro (he was dealing with polio so he understood) did brain MRI with one 4 mm lesion, but did not diagnose me. We moved and I saw another compassionate neuro who listened and with the MRI and clinical evidence diagnosed me with ms in 1991. Began betaseron and stayed on interferons prescribed by 3 neuros until 2006 when I went to university of Utah ms clinic. I was told brain MRI showed no lesions and lp was normal so didn't think I ever had ms or it was "burnt out" took me off avonex. 2007 returned to neuro who made initial diagnosis and he looked at evidence but was sure of his diagnosis so put back on rebif. Just went to Swedish ms clinic in Seattle and
had MRI which showed some lesions and radiologist compared the old MRI which also showed lesions (told in 2006 there we're none) doc concluded that since there was no change that he would not treat or even say I had ms or not. I went because I am worse, severe pain, fatigue, walk with crutches and ankle foot orthotics bilaterally, and cognitive difficulties. I have dealt with this for 23 years. I don't know which battle is worse the "disease" or the medical field.
had MRI which showed some lesions and radiologist compared the old MRI which also showed lesions (told in 2006 there we're none) doc concluded that since there was no change that he would not treat or even say I had ms or not. I went because I am worse, severe pain, fatigue, walk with crutches and ankle foot orthotics bilaterally, and cognitive difficulties. I have dealt with this for 23 years. I don't know which battle is worse the "disease" or the medical field.
Best Answer
Welcome and good luck.......I too am familiar with extensive travel to a neuro, but think you have us beat!
Keep us posted~
Keep us posted~
The new doc has 9 years of his notes and has read them, because he discussed them with me. I am scheduled to see another neuro in May. If all else fails I may return to original dr. I live in Avery remote place so the travel is expensive.
Hi there!
SideSteps! I asked Clboney to re-post on it's own discussion because initially was at the end of another one.
Cloney Welcome! And, thank you for joining us! Glad you got your post up in good order.
I'm glad a good doc started you on med early in your course of MS, but sad to read the the meds have been stopped now by this new doctor. MS lesions can remain stable, no new, especially since you started a disease modifier.
Is there a chance you can get your dx'ing doctor to send a letter to the one?
SideSteps! I asked Clboney to re-post on it's own discussion because initially was at the end of another one.
Cloney Welcome! And, thank you for joining us! Glad you got your post up in good order.
I'm glad a good doc started you on med early in your course of MS, but sad to read the the meds have been stopped now by this new doctor. MS lesions can remain stable, no new, especially since you started a disease modifier.
Is there a chance you can get your dx'ing doctor to send a letter to the one?
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
