8 month old with multiseptated cystic lesion on/near ovary

[Bmo311]

We have just been told that our 8 month old daughter has a multiseptated cystic lesion on/near her left ovary.  She is so small they can't tell where it exactly is.  She was also diagnosed with vesicouteral reflux (bladder reflux).  Which is how they spotted the mass.  That is something she was born with supposedly and should grow out of.  The one doc said this was unrelated to the reflux.  We are scheduled for a CT scan on Thursday and see a pediatric surgeon mid-August.  The doctors won't speculate on what it possibly could be.  It orginally measured 2.4cm but measured 3cm on another ultrasound 12 days later.  We are scared to death, and I am searching everywhere for someone that might have some info regarding this.  I have posted on the ovarian cyst community forum also with not much medical help, just good support.  I can't seem to get a question posted to the doctor's forum because they always say they have reached their question limit.  If anyone out there has any idea what my daughter may be facing or any idea on how I can reach the doc's on this forum, PLEASE let me know.  Any extra info just post what you need and I will submit what we know!  I am also looking for a community leader name beginning "gah" with a purple flower icon.  I was told she was really helpful. Thank you!

[Mary 53]

You did well to trust that Gail would have some resources for you.

I am so sorry you are having to go through this... You will be in my thoughts and I send huge positive thoughts to you and your family hoping you get some answers and get this resolved.

What beautiful pictures on your profile page.

Take care... let us know how things go.

Sincerely,

Mary

[gah_70]

Just wanted to let you know I sent you a private message.  Hopefully Dr. Goodman will be around in the next day or two and answer some questions so you can ask your question.  Just thought of something else...you might also try the Pediatric Endocronology expert forum, and the Pediatrics patient to patient forum.  It may take a couple of days, but hopefully someone will respond soon.  

Gail