Appt Onc/GYN

[Carolyn549]

The question I had is from my appt on 4/18/08 the Gyn/Onc seems to think that the mass I have had on my right and only ovary is what they call hemorrhagic cyst and wants me to have another ultrasound on 3 months.I wanted to know if anyone else has ever had this type of cyst last this long my first utrasound was done Oct 4th 2007 and it as  and was there. It has changed, when it was first found there were 2 masses my regular gyn put on birth control for  months and re did the ultrasound it did skink just a little but was still there, she wanted me come back in 3  months for another ultrasound which I did and then I had 6 masses, she then did the ca 125 which came back 10.5 normal range. She had me come back again in 4 weeks the masses were down to 2 by then. The 2 that were left were heterogenous and increased blood flow she wanted to remove my right ovary I decided I wanted a second opinion with the gyn/onc. Now I don't know what to do I guess I 'm concerned because it has never went away fully. Thanks for any feed back.

[chloe08]

Two years ago I had a cyst thought to be hemorrhagic vs endometrioma  (they appear similarly on u/s) and they watched it for 2 cycles only to find it didn't change at all.  Due to the fact that it didn't go away the MD was certain it was an endometrioma  but it was 7cm so it was surgically removed and found to be just that.
I am going through the same thing now   - initially simple looking, 6wks later cyst w/ hemorrhage that should resolve, 6more weeks still there so that combined w/ my hx looks to be endometrioma again.
Hemorrhagic cysts generally resolve on their own but can get quite large; endometriomas do not resolve on their own

[Carolyn549]

Thanks It makes me feel better knowing that this type of cyst doesn't go away sometimes. I was begining to think maybe they were missing something.I will keep every one posted.

[Carolyn549]

Thanks so much for your comments. I really am thankful to have find this site also. It's nice to be able to talk with someone that understands what someone is going through. Sometimes I just wish they would have taken out the right ovary with everything else back in 2003 it sure would have been alot easier than trying to decide if I want to face surgery again.

[Laney8463]

Hi there....
Hemorrhagic cysts are cysts that actually bleed into themselves, hence the term hemorrhagic. On many occasions they do not go away, they continue to grow, many times slowly. Once it is determined that in fact it is probably a hemorrhagic cyst, they do in fact watch them. 3 months of watchful waiting is not abnormal. Just be very diligent with your docs. Keep them aware of your symptoms and abreast of any changes you note within yourself. You must be your own advocate.
Take care and keep us posted
Laney

[kimmywah]

You sound just like me!!! I too have had reoccuring or ongoing cysts.  Every time i have an u/s or check up I have cysts, then they seem to disappear or shrink or get bigger and then disappear.....etc..etc.  I have had a hysterectomy (2002) as well but my mother had OVCA 13 years ago (she is well today, thank god).  My latest cyst was 5cm on right ovary and I had an MRI to check it (two months after u/s approx) and it has now gone again!!  I do have symptoms, bloating, back and side pain, fatigue, ibs symptoms blah blah blah.  My Gyno has suggested to watch and wait.  I am 39, so he does not quite want to take the ovaries yet (although I will have to eventually) but he did say this is my decision of course.  I have had complications with surgery before, so....decisions, decisions.  
You have, of course, come to the most fantastically supportive and informative site and I am so thankful that I landed here too.
Good luck and keep us posted...I can totally understand..

Peace and love....Kim

[Carolyn549]

Thanks for your reply and prayers. I will keep you posted on what I decide to do going forward.I hope your recovery continues to go well. I'am well done with having children I had a hysterectomy done in 2003 and they left the one ovary because it looked in good shape and didn't want to send me into menopause. I'll be 42 in Sept. I guess I need to decide if I want to live feeling sick most of the time or face surgery again.

[Morrowville]

Hi Carolyn, it sounds like you have a tough decision ahead of you.  While I can't speak about your specific mass, I can tell you I had a dermoid cyst which was pretty big.  The doctors (GP, GYN & GYN/ONC) all looked at my specific set of problems (obesity, HBP, diabetes) and advsd what they thought was the best way forward.  I had a very successful compl. abd. hyst. on 04/08/08, and I honestly feel GREAT.  I have a 20" incision smiling from side to side on my abdomen, and a bit of the usual pulling and pinching, which I hope will diminish when I have the staples removed this Thursday.  I am experiencing episodes of unusual stupidity, but right now I'm attributing it to the anesthesia, and a nice excuse (which I really like) called hysterectomy fog.  I may continue using that one throughout my life!

I would say that you are really intelligent to have such a good research history, watching the mass, and have good doctor support.  If you feel that you are beyond child bearing and heading toward menopause, your actions might be different from a 21 year old looking to start a family.

I can offer you prayers, (I have a hotline to God--honestly, I am a miracle!)
and look forward to hearing of your progress.  

Please keep us posted, your experience may be helping another sister!

hugs,
Morrowville