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Ashley's Update
Hi all,
I'm was a little aprehensive about this post because of all the recent struggles that many of you are currently up against, so I hesitated a few days. That being said, I thought those of you that have been following Ashley's battle with ovca would appreciate an update. The week of April 15, Ashley had her "Make a Wish" fulfilled and we all went to Waikiki Beach for a week. I could write pages about the experience, but let's just say the islands are absolutely beautiful and we all had a really good time. Ashley in fact bought herself a Tiffany necklace as a souvenir with the little blue box and white ribbon to boot. The trip was good for her soul. This was quickly followed by Prom Night. A horrible night for me (Over protective Dad), but a very nice night for her (with her fresh Hawian tan and light yellow prom dress). I told her she was a heart breaker and she said "yea right dad". I told her "right daughter, you are already breaking MY heart"!!! Anyway she had a scan on 4/23/08. The scan showed that a piece of the medi-port was in fact left behind, but does not need to be removed unless it bothers her. I told her it is up to her on her terms if she wants it removed, but she seemed to express that she is not to happy leaving this foreign object in her body, who can blame her. So another surgery will be in her future, but on her terms. The doctor said the scan itself could not be any better. The cyst they have been following for a year seems to be Gone!!! Everything looks clear in her abdomin and chest and her blood counts and tumor markers are normal. If fact they said by looking at her, you would never know she was sick a day in her life. They moved her from 3 month scans to 6 month scans. Her next in the end of September. Then they gave her very encouraging news. If the scans continue to produce results like this last scan, she will have one more this year, two more next year, then just come in once a year with no scan. This was wonderful news for her putting her closer to putting all of this behind her. We are all relieved and estatic about the news, and although my heart breaks for the many, many of you that are going through trying times right now, I just had to share the news with all of you. Hope it brings you some happiness and encouragement.
Take Care and God Bless,
Bob
I'm was a little aprehensive about this post because of all the recent struggles that many of you are currently up against, so I hesitated a few days. That being said, I thought those of you that have been following Ashley's battle with ovca would appreciate an update. The week of April 15, Ashley had her "Make a Wish" fulfilled and we all went to Waikiki Beach for a week. I could write pages about the experience, but let's just say the islands are absolutely beautiful and we all had a really good time. Ashley in fact bought herself a Tiffany necklace as a souvenir with the little blue box and white ribbon to boot. The trip was good for her soul. This was quickly followed by Prom Night. A horrible night for me (Over protective Dad), but a very nice night for her (with her fresh Hawian tan and light yellow prom dress). I told her she was a heart breaker and she said "yea right dad". I told her "right daughter, you are already breaking MY heart"!!! Anyway she had a scan on 4/23/08. The scan showed that a piece of the medi-port was in fact left behind, but does not need to be removed unless it bothers her. I told her it is up to her on her terms if she wants it removed, but she seemed to express that she is not to happy leaving this foreign object in her body, who can blame her. So another surgery will be in her future, but on her terms. The doctor said the scan itself could not be any better. The cyst they have been following for a year seems to be Gone!!! Everything looks clear in her abdomin and chest and her blood counts and tumor markers are normal. If fact they said by looking at her, you would never know she was sick a day in her life. They moved her from 3 month scans to 6 month scans. Her next in the end of September. Then they gave her very encouraging news. If the scans continue to produce results like this last scan, she will have one more this year, two more next year, then just come in once a year with no scan. This was wonderful news for her putting her closer to putting all of this behind her. We are all relieved and estatic about the news, and although my heart breaks for the many, many of you that are going through trying times right now, I just had to share the news with all of you. Hope it brings you some happiness and encouragement.
Take Care and God Bless,
Bob
I'm so glad to hear about this as I've read many posts when I first joined about your daughters fight!
We need these good news posts... It's electronic courage and hope!
Thanks and take care,
Meg
We need these good news posts... It's electronic courage and hope!
Thanks and take care,
Meg
Thanks so much Bob, for updating us - don't ever hesitate to pass along great news!!
I'm glad you had a wonderful time on your trip...it sounds like the perfect ending to this "chapter" in her life...
Please keep in touch because we will always wonder how Ashley's doing - always! I know she has beaten this monster and I am sure you will see nothing but clear scans in the future!
Take care,
Becky
I'm glad you had a wonderful time on your trip...it sounds like the perfect ending to this "chapter" in her life...
Please keep in touch because we will always wonder how Ashley's doing - always! I know she has beaten this monster and I am sure you will see nothing but clear scans in the future!
Take care,
Becky
This is Great news I am so happy for Ashley and you
Congratulations..
I am so glad to hear that Ashely had a great time in Hawaii and enjoyed her prom night.
Thank you for shareing your great news...
Take care
Sending hugs to you both
Mid
Congratulations..
I am so glad to hear that Ashely had a great time in Hawaii and enjoyed her prom night.
Thank you for shareing your great news...
Take care
Sending hugs to you both
Mid
This is GREAT news Bob! Never hesitate to tell us good news, we live for that kind of info! I second what Jan says, she should be dealing with proms and high school stuff. She must have looked beautiful. Do you have any pics of her in her dress? Thanks Bob for sharing the wonderful news. With love, Deandra
Oh Bob, I was smiling ear to ear while reading this. How wonderful!
And, She got to go to prom!
Sincerely,
Mary
And, She got to go to prom!
Sincerely,
Mary
Hi Bob,
So very happy to hear about your wonderful trip to Hawaii and her prom night and all! She deserves every special thing that comes her way as well as a the normal stuff a teenager should enjoy! Also happy to hear maybe you all can not have her OC be the center of your life. God bless her and your family! Your friend up the thruway.
Debbie
So very happy to hear about your wonderful trip to Hawaii and her prom night and all! She deserves every special thing that comes her way as well as a the normal stuff a teenager should enjoy! Also happy to hear maybe you all can not have her OC be the center of your life. God bless her and your family! Your friend up the thruway.
Debbie
Thank God. Good news is always welcomed ... and with someone so young, it triples the joy. Wonderful.
Judy C.
Judy C.
Bob, that is amazingly wonderful news. I always said that girl should be concentrating on Proms and colleges and now she is. I hope that all of this will be put behind her and she can have a normal young adult life. Of course, she will be way ahead of the pack in the wisdom dept with everything she has been through, but that will only serve her in the future to make good choices when ohers aren't. Congratulations to Ashley for fighting the good fight and to you Bob for being the kind of support system everyone deserves to have.
Love,
Jan
Love,
Jan
Oh my.....what wonderful news......I have a lump in my throat and tears in my eyes! It's about time .....now you and your daughter can once again breathe. As one parent to another, I am so happy for you.....for your daughter, finally, she can be a kid. What a wonderful way to start your summer......thank you so much for the wonderful news and for the hope you spread with this news.
Give my love to Ashley....and ask her to give you a hug from me....
Peace.
dian
Give my love to Ashley....and ask her to give you a hug from me....
Peace.
dian
Congratulations on the wonderful news. I wish Ashley all the best in the coming years, and hopefully a life-time remission from this wretched cancer. Best wishes to you too Bob...being such a supportive Dad. Hugs to you both..Helen..
Wonderful news, as a parent I can understand the Joy and Relief you are feeling now. Ashley is so young to have had to face this terrible disease, she was never alone, you are to be commended for being a really great Dad. The strength and courage you have portrayed, along with her, is a shining example to others. I pray that her future now, will always be free and full. marty
What great great news!!!! I remember way back when all this transpired and how sad I was for you as a parent especially since I am a parent to 2 young girls also...I am so so happy for all of you ....Ashley is a beautiful girl and I am sure she must have took your breath away Prom night...There are so many women on here that you have given so much encouragement to by telling your story....Ashley made a good choice picking out a TIffany necklace as that is one of my favorite stores...She deserves it!!! May God continue to bless you and your family....Gia :)
Bob - wishing you and Ashley the best of everything...and thanks for the update...we needed it and love the good news!!!!
Hugs to you both.
Pam
Hugs to you both.
Pam
Iam so glad to hear that you hasve recieved such good news about Ashley!
I sounds as thought you had a wonderful time on your trip, and God Bless Make a Wiah Foundation for letting it happen.
I also hope that her prom night was as beautiful as it is supposed to be.
Keeping you both in my prayers that things continue to go so well!
Love Chris
I sounds as thought you had a wonderful time on your trip, and God Bless Make a Wiah Foundation for letting it happen.
I also hope that her prom night was as beautiful as it is supposed to be.
Keeping you both in my prayers that things continue to go so well!
Love Chris
Hi Bob,
I have been on this site for a couple of months now and have read your posts about Ashley.
I think that you should shout this from the rooftops. This fantastic news is encouraging and everyone needs some positive news.
I just wanted to say that you are an amazing Dad and I am so happy to hear that Ashleys results are so great!
My prayers and thoughts are with you..
Peace and love....Kim
I have been on this site for a couple of months now and have read your posts about Ashley.
I think that you should shout this from the rooftops. This fantastic news is encouraging and everyone needs some positive news.
I just wanted to say that you are an amazing Dad and I am so happy to hear that Ashleys results are so great!
My prayers and thoughts are with you..
Peace and love....Kim
To Bob
I have read your posts over the past months and this is really brilliant news !!!.
Very best wishes to Ashley and yourself
I have read your posts over the past months and this is really brilliant news !!!.
Very best wishes to Ashley and yourself
Great news! I'm so excited and glad that Ashley is doing so well! :)
Take care and tell Ashley to have fun summer!
Glenda
Take care and tell Ashley to have fun summer!
Glenda
I'm so glad to hear from you. Especially since you're back with terrific news. I was a bit worried when I sent a little note and didn't hear back. Of course I feared the worst.
I want to thank you for your help, pointing me in the right direction concerning Angel Flight. Although Angel Flight is for flights under 1,000 miles it still connected me to another site that does help with cross country flight fare. I passed this on to my friend. Haven't heard yet about when she might head to Buffalo for treatment. Paperwork you know.
That's wonderful that Ashley had a nice time in Waikiki. It helps to just let go and relax. I'm sure you took tons of pictures. Let her know we're all happy with her good news.
I want to thank you for your help, pointing me in the right direction concerning Angel Flight. Although Angel Flight is for flights under 1,000 miles it still connected me to another site that does help with cross country flight fare. I passed this on to my friend. Haven't heard yet about when she might head to Buffalo for treatment. Paperwork you know.
That's wonderful that Ashley had a nice time in Waikiki. It helps to just let go and relax. I'm sure you took tons of pictures. Let her know we're all happy with her good news.
Believe me, we like to hear good news like this better than bad news anyday. I mean we like to know what is going on with everyone, good and bad, but no one should hesitate to post good news. Please bring it on. It lifts our spirits and gives us hope. I'm so happy for your family. Paula
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