I guess I never really looked at the profile in that regard. But, I can sure understand how postings could come across without a profile especially in light of what's been happening. I've been coming here for a few months now and I guess I felt that the profiles were more for the folks that were on here more frequently and had more to contribute.
I was very fortunate in that I found I do not have ovca, but check in from time to time just to help alleviate any possible fears of people that were as afraid as I was. It was so great to find this forum and find a little comfort and hope.
Like Morrowville, I'm fairly new to forums.. but did just enter profile (if it worked) .. And, sorry I didn't do it earlier.. Sandy
Having just joined the forum last week, I am still finding my way around. I think I have a profile on here now (can anyone help an old lady & confirm?)
I don't know how to send personal notes, or quickie notes or any of that stuff. I didn't quite know if I posted my surgery date 04/08 hysterectomy on the board either (I may have just placed it as a comment)?
I'm not really dumb, but am new to forums. If anyone can suggest a good learning site, I'd gladly use it.
I think all you ladies have been very helpful, and although some of the posts don't relate to me, I'm finding tidbits of great info even in those posts!
Thank God for the internet, this forum, and ladies like you all. I have a full time job, 3 beautiful daughters and a husband. This situation really compounds my schedule, but I find relief in writing my heart out in messages on this board, to women who understand and can make good suggestions.
I had my pre-op screening yesterday (EKG, Chest xray, yet more bloodwork).
I have bad viens in my arms & wrists & hands, so I look like a bruised old lady today, and I'm still sore. But I am ever grateful for each day, and the opportunities we are presented with, to help and encourage one another.
Morrowville
I agree with Marty and Jan. We put alot of time and emotion into answering questions and trying to help people. I feel it does not take much effort or risk for them to provide a profile. It gives credibility to their posts. It also makes it easier to help. If I see someone is from my area I know where to send them for help. Marie
Marty, even I have to agree with the confusion. Too many ways to communicate now. There's stickie notes flying all over the place! Also, yes, with the recent situation to consider, there seems to be many new members without profiles and I'm a little leery.
Kimchi: I just found the SETTINGS feature in my MYMedHelp. There, you can set the privacy for your personal profile. I agree that I don't like that everyone can read the personal notes from people. Good grief...I only send a personal email b/c it's intended for a particular person.
I agree with Marty. If you are going to come on this forum you should be prepared to participate and not just suck information out of people & leave without us knowing who you are. It is very easy to put stuff in your profile and you can tell enough about your situation without giving away anything that would identify you or where you are. We should at least know what your connection to OVCA is. I have built a lot of wonderful friendships on here and would like this forum to continue to be the neighborhood it should be. So, for all of you new people would you please "introduce' yourself by putting something in your profile.
Jan
I have refrained from commenting on the notes, we have so many ways of communicating now, it is getting quite confusing. the forum itself, private direct messages, messages that can be read and added to by all, the notes, journals, emails. Along the right hand side, appear messages from many of the other forums, have nothing to do with our issues, I answered one last night on panic attacks because the woman lives in my town and is pregnant. When I want to send a message to someone , I want more than a "quickie" lol. I like the personal touch to talk to someone. At the present time I am more worried about the hugh influx of new community members that are not adding a profile, this forum can get pretty personal at times and I would feel better if I could trust those coming in to read my posts. MedHelp has done a great job of setting up these forums, but I feel like it is getting a little too easy for those with ulterior motives to come in and interact with the people this forum is supposed to be serving. Guess you gals will have to put up with my long winded posts because I do not like the notes. Even my "sticky notes" at home have a back and front to write on. lol
Marty
Absolutely right. You can click on anyone's name (if they're in blue) and see what notes they have received.
Thanks very very very much for adding in this option. But I am a little confused/concerned, it looks like these notes are not really private. I received a note from a member and when I opened it, I could view notes sent to this member from other members. I am right to assume that these notes are not private?
Thanks again , love this
Kimchi
Hi,
I just wanted to write that I am so excited and tp share my news with others. My oncologist has decided that I just need one more treatment of paxol/carbo instead of 3, for a total of 4. He said my Ca125 at 9 is good and other counts are good as well. I now will hopefully be back to work by mid April as my last treatment is this Thurs. We caught my OVCA early staged 1C. I know that I am fortunate, I did have warning signs and sought answers and had great medical care and expertise, a wonderful female surgeon who was sensitive to scarring as well as adequate insurance. Thank you for this sight, I had questions answered that relieved my worries. I now want to be an advocate for all who battle ovarian cancer and will seek ways to do this in my personal and professional life. God Bless, Kerry
Aha, got my answer. Thank you Mid for sending the note. To others - yes, you do get an email letting you know there's a note waiting for you.
I left a note for someone but I see it's not listed to the right under recent activity. That only happens if you're signed in as a "community member." So how will the person know they have a little note? By email like personal messages? Or just check daily under "My MedHelp?" Msjazz - I sent you a note earlier; not important, just a little extra info.
Thank you for all your features. Notes are great.