P.S. I'm 33, Have had 3 laproscopic surgeries for cyst removal. Had a C-section 12 years ago. Am healthy. 5'4" 230 lbs. Though I've lost 5 lbs in one week so now I'm down to 225
Hi there!!!
Oh I really am feeling for you !!!
I also went to hospital with lower left abdominal pain which sometimes hurt in my back and sides . Originally they thought it was kidney stones but it wasn't!! I think the fact that I had a kidney infection put them off track!!
I am still in pain and on strong painkillers that don't really work and as you say it's hard just getting out of bed in the morning never mind doing stuff like ironing (sitting down) and even walking a short distance is painful.
I have had x rays ct scans ultrasound scans but yet to have my laparoscopy and cystoscopy. I think its endometriosis but if they open me up and say they have no idea what it is then I will be stuck pretty much like you.
The adhesions they found on your bowel did they say it was endometriosis??? if it was and they didn't get rid of it all then you will still have pain until it is all gone.
I think it is disgusting they removed your ovary and tube for no reason no wonder you are angry as hell!!
Was the surgeon that preformed the operation a specialist surgeon in gynocology or just a general surgeon??
Maybe you should ask for a more experienced surgeon and insist on another laparoscopy if this is the case. More adhesions may have been missed that were deeper inside you.
Hope you get this sorted you will really have to kick up a fuss everytime you see someone and keep ringing them all the time until they sort it out.
Good luck!!
Thank you for your well wishes!
Did your US or CT scan show a cyst? Are you scheduled for the laproscopy?
No they didn't say it was endometriosis. I was tested for that a good 5 years back and even had an exploratory laproscopic surgery to which they found no endo. The Gyno didn't know exactly what the adhesions were. He said they were new as I had my tubes tied and an endometrial ablation a 15 months ago and they weren't there then. He said they crumbled when they touched them? He also stated that my uterus and bladder were fused? That if i get any cysts on my right ovary that they will be doing a full hysterectomy and that it will be difficult and dangerous due to this fusion. Hopefully my PCP will have the pathology reports when I go tomorrow.
I am angry as hell. And confused. If the ovary was still viable and showed no signs of torsion then why remove it? After I meet with my PCP tomorrow I am going to make the decision on whether or not to call a lawyer.
It was my Gyno that did the surgery along with the assistance of one of the hospital gynecologists. I trust my PCP. She is very very thorough and a hell of a lot more concerned than the Gyno is.
Hi there
Wow !! You have had a lot done!!!
I also had ablation (hydro thermal ) four years agoo due to periods so heavy I couldn't go out that week and it really affected my life.
My first trans vaginal ultrasound showed a burst bleeding cyst on my left ovary.
The second t v scan showed a possible dermoid cyst on my right ovary and now having a third t v ultrasound on the 17th October to see whats happened with that! (gyno reckons it will be gone and doubts its a dermoid hope he is right)
I have been having pain on my right side for about two months now but it is no where near as bad as the left side pain.
They have booked me for a cystoscopy and laparoscopy to be done on the same day but not had the actual date through yet. Am a bit worried as to what they will find.
There was a lady on here who had an operation that involved operating to remove some kind of endometriosis from her bladder and she had to have a wee bag for a week while the cut in her bladder was healing so maybe you will have the same sort of thing if you have to have a hysterectomy ?? Maybe you could ask tomorrow? If I remember the lady's name will private message you the details .
I wish you luck whatever you decide to do lawyer wise .No doubt they will need a copy of the consent form you signed originally prior to the op.
I find everything takes ages to be done and won't be at all surprised if I get a date through for 2012
Good luck ladies. My cyst was orginally thought I had kidney stones. The CT showed otherwise and then the TV US showed specifics. THe most inportant thing to remember is to make sure you trust the dr. you are working with and that you document what you hear and have done. It helps if you need a second opinion.
Keep us informed and take care.
Hi Thanks
My doctor took great pleasure in telling me my cyst couldn't possibly cause all that pain
x
It's incredible how much pain these cysts can cause and your dr (who I am assuming is a male cuz like how would he know??) was stupid to tell you that something that small can't hurt that badley. My Dr explained that's its not always the size, but the bleeding into itself (?) can cause even worse pain. She said you can't go by the size.
I have a decent pain tolerance (gave bitrh drug free twice) so I do know pain and I am here to tell you-my cysts make me want to cry! The pain is almost as bad as labor--but more dull and lingers longer!
I wish they would go away!