Aa
Preparing for appointment
Tomorrow the hospital is finally breaking the month and a half of keeping me in the dark about my cyst. Im preparing a list of questions I so desperately need answered, just in case they point a needle at me and my brain shuts down.
Im 23 years, have had the cyst for a year, but was not diagnosed until august. I have not been told anything about my case and am worried sick, obviously.
Here is what I got so far:
Get the results of my blood tests
Get the written reports from the US and CT scans
Ask about my kidneys, got scanned during US
Find out how many cysts I have, size, left/right ovary, simple/complex
Surgery, laparopscopy (unlikely) vs laparotomy (bikini vs midline), how it would affect me long term.
Recovery, what to expect, common complications (you ladies appear not to be told enough about this)
Drugs for my needlephobia
How to prevent future cysts, diet, p pills (oddly I got my cyst while on the p pill)
Did I miss something?
Im 23 years, have had the cyst for a year, but was not diagnosed until august. I have not been told anything about my case and am worried sick, obviously.
Here is what I got so far:
Get the results of my blood tests
Get the written reports from the US and CT scans
Ask about my kidneys, got scanned during US
Find out how many cysts I have, size, left/right ovary, simple/complex
Surgery, laparopscopy (unlikely) vs laparotomy (bikini vs midline), how it would affect me long term.
Recovery, what to expect, common complications (you ladies appear not to be told enough about this)
Drugs for my needlephobia
How to prevent future cysts, diet, p pills (oddly I got my cyst while on the p pill)
Did I miss something?
My surgeon is the lead something over the whole area as far as I have found out. They are doing this surgery locally though, not in a much larger hospital an hour further away. Apparently Im not complicated enough, or at least my cyst isnt, I probably am! I dont even know what kind of surgeons and options I would have up there.
She seemed to think it was much more realistic to save parts if it was a demoid. She is worrying about the mucus causing something called Pseudomyxoma Peritonei, although I have yet to find out exactly what the difference is between an appendix cancer causing that and leaking mucus from an ovarian cyst. Both gives you mucus in the abdominal cavity, although I bet a ruptured appendix leak more than a more or less controlled draining of an ovarian cyst. I have absolutely no idea if the types of mucus are the same either, or if cancerous vs benign makes the whole difference.
Surely, once the cyst is drained completely, it shouldnt be able to leak any more when seperating it from the ovary..? At least that is my theory.
Of course I could tie her hands and only allow a cystectomy, but Im not sure it would be wise/she would agree to do the surgery.
Unfortunately Ill not see the surgeon until the day of the surgery, but I guess I could make phone calls.. Ive got 5 work days to call I guess.
She seemed to think it was much more realistic to save parts if it was a demoid. She is worrying about the mucus causing something called Pseudomyxoma Peritonei, although I have yet to find out exactly what the difference is between an appendix cancer causing that and leaking mucus from an ovarian cyst. Both gives you mucus in the abdominal cavity, although I bet a ruptured appendix leak more than a more or less controlled draining of an ovarian cyst. I have absolutely no idea if the types of mucus are the same either, or if cancerous vs benign makes the whole difference.
Surely, once the cyst is drained completely, it shouldnt be able to leak any more when seperating it from the ovary..? At least that is my theory.
Of course I could tie her hands and only allow a cystectomy, but Im not sure it would be wise/she would agree to do the surgery.
Unfortunately Ill not see the surgeon until the day of the surgery, but I guess I could make phone calls.. Ive got 5 work days to call I guess.
Maybe your case is a little more complicated than I thought...I just find through experience with this and other surgeries each doctor always has a different technique or way of doing things...I don't know if you have plans of having kids in the future but u still can conceive with one ovary and tube....anyways I do wish you the best of luck iand a speedy recovery...keep us posted :) debbie
Fertility isnt my main concern. Hormones and whatever all they play a part in is.
Children.. well yeah I do want one or two I guess. Preferably if the stork comes out of retirement, or once I stop thinking of a pregnancy as a parasite and start thinking it is something wonderful!! I must admit I would rather be pregnant right now than have a cyst though.
Of course Im also hoping my needle phobia made me shake so much the CT scan made it look like mucus, it might just be fluid.. Wishful thinking, I know. Noone mentioned blurry results though..
Children.. well yeah I do want one or two I guess. Preferably if the stork comes out of retirement, or once I stop thinking of a pregnancy as a parasite and start thinking it is something wonderful!! I must admit I would rather be pregnant right now than have a cyst though.
Of course Im also hoping my needle phobia made me shake so much the CT scan made it look like mucus, it might just be fluid.. Wishful thinking, I know. Noone mentioned blurry results though..
Good luck for tomorrow, I hope all goes well. Looking forward to an update on how it all goes and your recovery :-) Still waiting for my date, although have been told the primary target date is 6th December, my sons birthday terrific!!
Thanks misspinkangel, Ill need it. Im so nervous right now, surprised I havent had a panic attack yet. I just want to stay home tomorrow :-S
I hope you get your date soon. The 6th would be annoying but at least you will be home for Christmas.
I hope you get your date soon. The 6th would be annoying but at least you will be home for Christmas.
Good luck tomorrow!! I hope everything goes well and looking forward to hear how things went and how your recovery goes after.
You can do it, try to do anything you can to keep you relaxed today and tonight, it'll be okay! I dont blame you for being nervous about it and wanting to stay home tomorrow. I know I hated the waiting for surgery(both times, first time I was an add on, had to wait 3 days before they finally did it, second time it was planned, had a date, got bumped, for a week later after I fought with surgical booking.) but some days I thought it wouldve just been soo much easier if it was emergency surgery vs sitting and waiting, reading up things etc knowing whats to come.
Relax, have a bath if you can and enjoy them(last one you'll be able to have til incision is healed), read a book, have an amazing dinner, and just enjoy the day as it was any other as best you can. Hopefully you can get some sleep tonight to be rested for the big day tomorrow. ( Or do what I did and spend the day cleaning your house to have it ready for when you got home, and have an incredibly long shower at the end of the night to relax before bed lol)
Will be thinking of you and look forward to the updates!
You can do it, try to do anything you can to keep you relaxed today and tonight, it'll be okay! I dont blame you for being nervous about it and wanting to stay home tomorrow. I know I hated the waiting for surgery(both times, first time I was an add on, had to wait 3 days before they finally did it, second time it was planned, had a date, got bumped, for a week later after I fought with surgical booking.) but some days I thought it wouldve just been soo much easier if it was emergency surgery vs sitting and waiting, reading up things etc knowing whats to come.
Relax, have a bath if you can and enjoy them(last one you'll be able to have til incision is healed), read a book, have an amazing dinner, and just enjoy the day as it was any other as best you can. Hopefully you can get some sleep tonight to be rested for the big day tomorrow. ( Or do what I did and spend the day cleaning your house to have it ready for when you got home, and have an incredibly long shower at the end of the night to relax before bed lol)
Will be thinking of you and look forward to the updates!
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