There are 3 sections in my post:
- Preface
- Introduction
- Action plan (go here if you want a short read!)
PREFACE
I wrote my first post 12 years ago, and my last post was 6 years ago. I had given up on following up on new posts because I didn't see any real cures, I self-doubted if this was just a purely psychosomatic condition, and I had lost hope not seeing any progress...
I'm here to tell you how to get to a real cure if you ever want this condition to be cured! ...And not be delusional with placebo and snake-oil miracle cures because 80% of you end up paranoid and delusional with nonsense BECAUSE OF THE PSYCHOLOGICAL SIDE EFFECTS OF THIS CONDITION. If you ever want this condition to be researched scientifically to be finally cured, we need to find out WHAT ARE INDISPUTABLE FACTS AND WHAT IS PART OF YOUR CRAZY IMAGINATION! I have a scientific mind, and if I didn't have this condition, I would quickly conclude that you are all a bunch of wackos! I cannot conclude that because I also have this weird condition where facts and fiction get mixed together... We can quickly end up on the dark side and get paranoia with conclusions that are just super crazy... ONLY A SCIENTIFIC STUDY can tell us what is real from our condition from what are just nonsense, psychobabble and desperation writing to make sense of something unknown that is our destroying lives...
INTRODUCTION
- First, be conscious of the placebo effect. People will post hundreds of "I found a cure" posts, not knowing that the next time they try, it doesn't work anymore (and never worked). Then, of course, they will not post a follow-up message saying that their placebo cure was not working at all. (I also have a rare condition called POIS. People probably would think people with POIS are a bit crazy or lying, too... until it was finally researched and recognized scientifically not too many years ago (A bit like the situation with the "fish odour syndrome"). But still, there's no cure with that one either, and the forums are filled with endless nonsense placebo cures. A funny meme describes this situation well, see this image: https://i.redd.it/bgfgjqdz8d081.jpg )... "Post try some random pseudo cure.... Then poster hallucinates with placebo... Then the poster says: I found a cure!" Classic desperate forum poster nonsense, unfortunately!). This forum is filled will desperate people with crazy conclusions and crazy solutions. Here's my conclusion: YES, YOU ALL HAVE A PAINFUL PROBLEM... BUT YOU ALL LACK SCIENTIFIC INSIGHT AND TOOLS TO EXPRESS THE RIGHT CAUSE AND THE RIGHT SOLUTION. Why is it important with this condition? Right my second point...
- Why is scientific research so important with this condition? Because it's easy to go crazy when you have this weird condition. It's hard to define what it is, and it's hard to know if the symptoms really happen or if it's just our imagination (there are a lot of sociological factors involved). Let me describe it "people are allergic to me"... Let's give a simple scenario... When I'm in a room at the office, after 2-3 hours, people around me start to cough or get highly itchy. HOW CAN YOU CONCLUDE WITH CERTAINTY THAT THE IRRITATION IS BECAUSE OF YOU --- OR BECAUSE OF THEIR COLD, THE MOLD IN THE OFFICE, SOMEONE'S PERFUME, SOMETHING FAKING, THEIR OWN ALLERGIES OR WHATEVER ELSE??? ----- YOU CANNOT ---. That is EXACTLY THE PROBLEM... You cannot have CERTAINTY that the "allergy" is because of YOU ... or NOT BECAUSE OF YOU.... And I will put a hypothesis that PEOPLE WITH PATM, WITH TIME, THEY ALL BECOME PARANOID AND THINK ALL SIGNS OF ALLERGIES IN PEOPLE IS BECAUSE OF THEM!!! WRONG! That is how you go in the dark side of mental health and start posting nonsense.... (And that's the ****** situation... Your mental health gets eaten by this condition... maybe you become a little crazier... And you cannot leave your job because you need the money to survive... So, of course, IT'S EXTREMELY HARD TO KEEP YOUR SANITY! I empathize with all of you!)... That is why you cannot trust your own opinions and conclusions. You need a third party to analyze the situation scientifically.
- This is likely a RARE CONDITION. I don't know if it's purely a biological/physical condition (gas, gut, bacteria or whatever else) or a purely mental health condition (super weird specific delusion, a mix of biological and psychosomatic condition, or whatever else). If you have a practical mind, you would agree with me: WE DON'T CARE IF IT'S BIOLOGICAL OR A PSYSOMATIC CONDITION... WE JUST NEED A REAL CURE, A FIX TO STOP PEOPLE FROM COUGHING / BEING ALLERGIC (OR A CURE TO STOP US FROM BEING AWARE OF PEOPLE BEING ALLERGIC!)... Don't get fixated on your conclusion that you know the cause... So I suggest being open-minded and being open to getting to a practical (scientific) solution. (Again, you JUST want a solution... You don't want to look crazy trying to convince people with the wrong conclusion when there's a possibility the cause is something else...)
- I'm sure there are a lot more sufferers of PATM than we would think. This condition is so painful and can severely affect people's lives that I can guess many people would try to hide it in shame, avoid it, change their lives to avoid people, etc. People are just desperate for a cure and a real explanation of what's happening to them... We need the medical scientific community to give us some attention...
ACTION PLAN
- Get some (serious) scientific group (some curious student Ph.D. scientist?) interested and (willing to give us a chance) to research this rare condition... (Make it interesting to them to research it... Show how people are affected in their life... Some think about suicide... Some are severely affected psychologically, even paranoid.. How unfair would it be if it ended up to be a real rare condition where thousands of doctors thought they were crazy... like with the "fish odor syndrome"... We need some kind-hearted, intellectually curious scientists who want to bring truth to the medical science and justice/cure to PATM sufferers!)
- Get a crowdfunding set up and get people to donate to fund the (serious) research group
- Put all those PATM volunteers in air sealed room with a good enough sample of random people for a few hours (not all people might be affected by being around people with PATM)... THEN WATCH PEOPLE COUGH LIKE HELL... Then the scientist can really conclude... "Wow, I have made a major breakthrough in rare condition research... How insane is it that this condition exists and is real, and I proved it!!! "
- Continue with more research and funding... Get more social/media coverage... And one day, we get the real strong momentum to get this rare condition PATM cured once and for all.
There's hope!