Aa
WOHOO!! Update on TYLER and the Open Heart Surgery!!!!!!!!!!!
We're back!!!!! TJ had his surgery on Tuesday, and came home today, Friday!
He's doing AWESOME! SOOOOO different! The first day they let me (carlos had to work) feed him, yesterday... instead of taking like 30 min. for 2 oz he downed it in about 5 min!!!!!!!!!!!!!!!!
They took his NG tube out for good last night, and have him on some supplamental oxygen right now simply to prevent Pulminary Hypertension. He's on 1/4 liter, which is GREAT. The doctors only wanted his SATs to be at 85-95 but they've been at 95-100%!~
I cried when I saw how well he ate and how well he's been breathing! and they said it would just get better. He doesn't gasp for air anymore hardly at all!
His wounds are healing GREAT and very fast as I knew they would. I don't have any new info on his weight. last I heard he was 3.5 kilos or around there.
Turns out the hole in the bottom of his heart (VSD) was SO large that the doctor was shocked he was able to have energy to eat ANYTHING by mouth or even be awake for more than a few minutes at time. He said in an adult it would've caused problems!~
He also had the 2 small ASD's which I was suprised to hear. but they patched it all up.... I'm so happy he's home!!
He's doing AWESOME!~ and the doctor said we can go out anytime now that he's patched up!!! (of course don't expose him to sick ppl....)
He's doing AWESOME! SOOOOO different! The first day they let me (carlos had to work) feed him, yesterday... instead of taking like 30 min. for 2 oz he downed it in about 5 min!!!!!!!!!!!!!!!!
They took his NG tube out for good last night, and have him on some supplamental oxygen right now simply to prevent Pulminary Hypertension. He's on 1/4 liter, which is GREAT. The doctors only wanted his SATs to be at 85-95 but they've been at 95-100%!~
I cried when I saw how well he ate and how well he's been breathing! and they said it would just get better. He doesn't gasp for air anymore hardly at all!
His wounds are healing GREAT and very fast as I knew they would. I don't have any new info on his weight. last I heard he was 3.5 kilos or around there.
Turns out the hole in the bottom of his heart (VSD) was SO large that the doctor was shocked he was able to have energy to eat ANYTHING by mouth or even be awake for more than a few minutes at time. He said in an adult it would've caused problems!~
He also had the 2 small ASD's which I was suprised to hear. but they patched it all up.... I'm so happy he's home!!
He's doing AWESOME!~ and the doctor said we can go out anytime now that he's patched up!!! (of course don't expose him to sick ppl....)
That is great news! I am glad all went well~ TJ can spend his time with mom and dad and playing and EATING! Yay! Hugs~
I am just seeing this!
That is FANTASTIC NEWS! I am soooo happy to hear that TJ is doing so well!!
Continue to keep us posted on his progress! Pics are always good too!
XO
Laura
That is FANTASTIC NEWS! I am soooo happy to hear that TJ is doing so well!!
Continue to keep us posted on his progress! Pics are always good too!
XO
Laura
Thank you all!! the next big thing for him will be to sit up! :)
Oh I am so glad to hear he is doing well! I am so happy for you and him! Congratz and I will continue to keep you in my thoughts and prayers!
I am so glad to hear that he is doing great!!! I was waiting for your post!!!
Super_Sally~ My son has Hypothyroidism also... Thank god for medical advances!
Rosa~ Thank you! Parts of this journey have been a struggle but all I could do was put it in gods hands honestly. The day he went in for surgery I cried as they took him... but when he came out I rejoiced!
I can't wait to see my little man get to be a little roly poly and happy and playful!~ Just a matter of time now. and with his heart repaired, he'll just keep going and going and going (like the energizer bunny!)
Rosa~ Thank you! Parts of this journey have been a struggle but all I could do was put it in gods hands honestly. The day he went in for surgery I cried as they took him... but when he came out I rejoiced!
I can't wait to see my little man get to be a little roly poly and happy and playful!~ Just a matter of time now. and with his heart repaired, he'll just keep going and going and going (like the energizer bunny!)
Wow, that's fantastic!!! I hope things only get better from here! :)
bless his heart (litterally, lol!)!!!!! i am so happy to hear how wonderful he is doing. :)
Wow, Martika! That is absolutely AMAZING!!! I got your PM and came to read this. I'm very glad to hear how well TJ is doing!!!!!!!!
hunny thats AWSOME!! Im sooo happy for you..your doing a great job at mothering him( but of course you are his mother) lol,...and he seeems to be doing soo well!! COngrats..you must be thrilled...hes going to be a chunky lil tihng now that hes eating like that!! lol Not many mothers would be able to stand beside all this and be as strong as you were...i commend you dear....Im very fond of you for everything you have been through!! I wish you all the best hun!!
Wonderful wonderful news. I am so grateful to live in an age when medical treatment can handle these things. Your baby would have died without surgery, but with it, he's perfectly ok. :)
Many of us wouldn't be here without medical science. :) I'd not be here if it weren't for having thyroid meds available.
Am so glad your baby is doing so well and he's now looking forward to a long normal and healthy life.
Many of us wouldn't be here without medical science. :) I'd not be here if it weren't for having thyroid meds available.
Am so glad your baby is doing so well and he's now looking forward to a long normal and healthy life.
Yay!!! I'm so glad to hear that everything is going better!!!
thanks!
YAY I am glad he is doing better! You know my son had surgery at 2 months on his kidney, and he would only drink 2 oz and take about 30 mins to do so, and as soon as he had the surgery he was downing 8 oz every 3 hours!!!! He had a blocked ureter though so his kidney's weren't draining, and what not!
Like I said I am glad he is doing better!!!
Like I said I am glad he is doing better!!!
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