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1293512 tn?1315339860

Anyone with diaphragm paralysis?

Is there anyone else out there suffering from paralyzed diaphragms?
If so, what has helped you?
I have bilateral diaphragmatic paralysis, sleep apnea, and enlarged heart, small lungs, and I retain carbon dioxide which causes migraine headaches.
Is there anyone else suffering from the same symptoms?
What have they done for you?
38 Responses
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Avatar universal
There are upright MRI SCANNERS. I have the same and just had the upright scan in London. They are available in most countries. Good luck
Helpful - 0
Avatar universal
Hello, my husband had a right paralyzed diaphragm.  They went in June 4 and did surgery.  They shored up the right diaphragm, did a peel of the right lung and went down the throat to check things out.  Surgery went pretty well.  But, now here it is six months later and he is worse than ever.  He can't breath well, can't bend over to tie his shoes, his belly is big and hard and swollen.  He cannot eat big meals because it makes him miserable.  He gets these catches or sighs when he breaths several times a day.  Went back to the .surgeon last week and he says this is normal.  He said my husband has anxiety and prescribed Zanaz which is bull, gave him another inhaler, he already uses symbicort.  We are at a loss.  His Ct just showed that his liver is enlarged now, and a whole list of other things.  Does anyone have any advice????
Helpful - 0
Avatar universal
Had nasal surgery last Feb, flu then paralyzed right hemisphere,  no problems at night but never feel rested. Typical dr recommendations a..some help. Can I qualify for disability? Haven't felt normal since.
Helpful - 0
1851499 tn?1320712037
What I first would tell you from my experiment with this type if medical issue is first you need to talk to your Lung Doctor.... If this was caused from a Surgery there might be a chance it will heal. But educate yourself on Diaphragm Paralysis! I have Bilateral Diaphragmatic Paralysis. My issue is related to an Work Injury... Make sure you listen to your Doctor if he doesn't know about this find one. I don't know where you are from but I live south of Rochester, NY my Lung Doctor Dr. Kalley is the one that knew what I had right from the beginning how ever it to a long time with all testing for us to realize what had happen to me.. Keep your Chin up and you will have to figure what you can do and what you can't do. I also would tell you I made a trip to The Cleveland Clinic in Cleveland, OH the Doctor's they know there stuff there. But because Dr. Kalley knew so much about this type of Medical Condition they told me that the Doctor's in OH would be doing the same thing that The Doctor's in Rochester are doing... God Bless you and you can always come here and talk to people like myself that has been dealing with this issue for a long time now...
Helpful - 0
1 Comments
If my now you are still having a problem, contact Dr. Mark Ginsburg at the NY Presbyterian Hosp. in NYC. He is a Thoracic Surgeon and did a laparoscopic plication of my left diaphragm last year. So much better now.
Avatar universal
Have you had any luck?  I has surgery to my neck and now my diaphram is paralzed my lung is 25-30 % collapsed.  I can't do anything like bending over walking fast, lifting, singing.  What do I do?

Please help
PR
Helpful - 0
Avatar universal
hi there im new and ive been told i have a paralized diaphragm have problems breathing on exusion find it hard to breath specially lying down it seams as though there is something that blocks my airways and have a very weak left arm .and i have had a thorasic outlet decompresion  and i too wake up with headache nearly every morning its worse when i wake up and get up and move about.
Helpful - 0
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