Rhythmic Movement Disorder, Can't take it anymore

[suziecue40]

Hello,

Is there anyone, I mean anyone, out there that has rhythmic movement disorder? I have been violently thrashing my body and head, laterally while asleep or mostly somewhat asleep since I can remember. I am 30 now. It use to consume maybe an hour or two a night but now it is getting drastically worse. I find myself doing it or am told that I, "rock", 4-5 hours a night. Apparently kids grow out of this and the remainder that carry this disorder into their adult lives are autistic or mentally challenged, which I am neither. My doctor prescribed me clonazepam, which does not work and I'm not taking an addictive, benzodiazepine for the rest of my life.
Does anyone relate to my problem and if so what treatments have worked for you? I'm going to go insane!

[d_the_man]

hello im an a 12 year old and has suffed this since i could remember and now i it is taking huge effects on me.... im going on a school trip to france soon and i have to share a room with all my friends. I dont know whether to tell them or just stay a wake all night... if any one can help it would save me from bieing the laughing stock of the school

[hailtodisco1210]

i understand .... i am 14and have had this condition since i could move my head as well  try staying up really late this may make you tired enough hat you may just fall straight asleep

[jay4457]

I am 26 and I have this same problem, i lay on my back and rock my head and legs violently back and forth, it use to put me to sleep, now it keeps me awake longer, it also takes about 3 to 4 hours of my night. I have resolved to drinking, which use to help, but now it just makes it worst. Sometimes i can bare sitting still, especially in a strange place, but it torments me. I hope some one finds help for this, ive tried counting sheep and relaxing which works but soon as i fall asleep im awaking with the urge to rock....HELP ME!!!

[delboy314]

I Remember being as a very youngchild of around 3, extremely frightened of the loud and violently physical arguments and fights of my parents.Im not sure if head shaking came first or was as a result of these arguments, but it certainly was dual purpose,it blocked out the niose of the violence so I couldnt hear it as well and also soothed me.I carried this well into my late teens,early 20s, until I started to take control of my daily life and realise my potential for life. It was linked with my persnal feelings of inadeqaucy and insecurity.Realising this  enabled me to stop it, but it was  forced and prolinged proceedure, and tok maybe a year in total to stop the "need" to do it.It wasnt easy as I was, in a way, addicted to the soothing feelings it gave me. I have moments to this day however, where I will rock and instantly feel soothed  and Im now 42 years old!. I believe strongly that this is a stress related condition, at the very least for me. Good luck!! Derek, Uk(now norway)

[CourtneyJade]

Hey. Im 13 and i unfortunally have the worst type of RythmicMovementDisorder, were i sway 24/7, awake or asleep. Ive got no cure.
If you read the bit about me, it explains everything. Thanks :) x

[nataliel18]

im 18 years old and have been head banging since i was about 2 or 3 i think maybe younger .. but i bang my head to the beat of music to put my self to sleep which can take up to hours depending on how tired i am .. also if my arms ache i will turn on my back and rock my head side to side i also sometime get on my knees and do it .. it sounds strange i know but until about a year ago i never even new this thing had a name and i thought i was just weird .. i always find my self doing it when im distressed or tired or bored i will just go to my bed put my headphones on and get on with it ... i dont think that there is a cure for it unless you get therapy .. but im so releived to know theres others who suffer aswell

[iamlegend28]

I think my 6 year old son sounds like alot you here I thought he would grow out of it... But not as of yet. Was going to take him to the doctors. But it sounds like that there is not alot they can do for this RMD thing... Can I just ask for prayers since God is the Great Physician. Thanks.