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Rhythmic Movement Disorder, Can't take it anymore
Hello,
Is there anyone, I mean anyone, out there that has rhythmic movement disorder? I have been violently thrashing my body and head, laterally while asleep or mostly somewhat asleep since I can remember. I am 30 now. It use to consume maybe an hour or two a night but now it is getting drastically worse. I find myself doing it or am told that I, "rock", 4-5 hours a night. Apparently kids grow out of this and the remainder that carry this disorder into their adult lives are autistic or mentally challenged, which I am neither. My doctor prescribed me clonazepam, which does not work and I'm not taking an addictive, benzodiazepine for the rest of my life.
Does anyone relate to my problem and if so what treatments have worked for you? I'm going to go insane!
Is there anyone, I mean anyone, out there that has rhythmic movement disorder? I have been violently thrashing my body and head, laterally while asleep or mostly somewhat asleep since I can remember. I am 30 now. It use to consume maybe an hour or two a night but now it is getting drastically worse. I find myself doing it or am told that I, "rock", 4-5 hours a night. Apparently kids grow out of this and the remainder that carry this disorder into their adult lives are autistic or mentally challenged, which I am neither. My doctor prescribed me clonazepam, which does not work and I'm not taking an addictive, benzodiazepine for the rest of my life.
Does anyone relate to my problem and if so what treatments have worked for you? I'm going to go insane!
Hi everyone,
I am the wife of a lifelong "rocker". I can tell you it isn't easy. I am tired all the time. Sometimes I can actually get to sleep, but a lot of the time I go to our guestroom to sleep. I have tried earplugs, and a different mattress, but nothing helps.
My husband went to a sleep clinic 10 years ago and they basically said to him, "Ya, you rock". Wow thanks Doctors!! If he isn't rocking, he is snoring very loud, and sometimes has sleep apnea (stops breathing for a period)
It scares the hell out of me!
I just stumbled on this site today, and was so surprised to see so many people here with the disorder!! The bigger surprise though is that no doctors have posted any comments... isn't this site supposed to comment, and suggest some help?
And by the way, none of you need to worry or be embarrassed with anyone. When I met and fell in love with my husband it had no affect on loving him or wanting to be with him. To me it was just a quirky thing. We have been married 15 years, and sometimes (I want to throttle him !... :) but mostly it doesn't affect us.
I do hope something can be found to help! Keep posting!
I am the wife of a lifelong "rocker". I can tell you it isn't easy. I am tired all the time. Sometimes I can actually get to sleep, but a lot of the time I go to our guestroom to sleep. I have tried earplugs, and a different mattress, but nothing helps.
My husband went to a sleep clinic 10 years ago and they basically said to him, "Ya, you rock". Wow thanks Doctors!! If he isn't rocking, he is snoring very loud, and sometimes has sleep apnea (stops breathing for a period)
It scares the hell out of me!
I just stumbled on this site today, and was so surprised to see so many people here with the disorder!! The bigger surprise though is that no doctors have posted any comments... isn't this site supposed to comment, and suggest some help?
And by the way, none of you need to worry or be embarrassed with anyone. When I met and fell in love with my husband it had no affect on loving him or wanting to be with him. To me it was just a quirky thing. We have been married 15 years, and sometimes (I want to throttle him !... :) but mostly it doesn't affect us.
I do hope something can be found to help! Keep posting!
Hi everyone,
I am the wife of a lifelong "rocker". I can tell you it isn't easy. I am tired all the time. Sometimes I can actually get to sleep, but a lot of the time I go to our guestroom to sleep. I have tried earplugs, and a different mattress, but nothing helps.
My husband went to a sleep clinic 10 years ago and they basically said to him, "Ya, you rock". Wow thanks Doctors!! If he isn't rocking, he is snoring very loud, and sometimes has sleep apnea (stops breathing for a period)
It scares the hell out of me!
I just stumbled on this site today, and was so surprised to see so many people here with the disorder!! The bigger surprise though is that no doctors have posted any comments... isn't this site supposed to comment, and suggest some help?
And by the way, none of you need to worry or be embarrassed with anyone. When I met and fell in love with my husband it had no affect on loving him or wanting to be with him. To me it was just a quirky thing. We have been married 15 years, and sometimes (I want to throttle him !... :) but mostly it doesn't affect us.
I do hope something can be found to help! Keep posting!
I am the wife of a lifelong "rocker". I can tell you it isn't easy. I am tired all the time. Sometimes I can actually get to sleep, but a lot of the time I go to our guestroom to sleep. I have tried earplugs, and a different mattress, but nothing helps.
My husband went to a sleep clinic 10 years ago and they basically said to him, "Ya, you rock". Wow thanks Doctors!! If he isn't rocking, he is snoring very loud, and sometimes has sleep apnea (stops breathing for a period)
It scares the hell out of me!
I just stumbled on this site today, and was so surprised to see so many people here with the disorder!! The bigger surprise though is that no doctors have posted any comments... isn't this site supposed to comment, and suggest some help?
And by the way, none of you need to worry or be embarrassed with anyone. When I met and fell in love with my husband it had no affect on loving him or wanting to be with him. To me it was just a quirky thing. We have been married 15 years, and sometimes (I want to throttle him !... :) but mostly it doesn't affect us.
I do hope something can be found to help! Keep posting!
Hello, Doing some research on RMD for my 2.5yo and came across this post.
I wonder whether you have had any success with the 'hallelujah diet'? My thoughts are around whether or not this condition could have some link to additives, preservatives and the like.
Hoping your still online :)
Many Thanks
I wonder whether you have had any success with the 'hallelujah diet'? My thoughts are around whether or not this condition could have some link to additives, preservatives and the like.
Hoping your still online :)
Many Thanks
I guess I should start by saying that I don't rock or bounce my head, but.....
I am a 56 year old woman. I have been rocking the bed, or kicking my leg literally all of my life. As a young child, my first memory of my father was how it felt, and sounded, when he would come in my room and beat me through my diaper for "horseying" in my crib. I guess I would move the bed across the floor. (I found this out when I confronted my father about the beatings).
When the horseying stopped, the kicking began. I kick my leg, one or the other, all night long. I remember my mother coming into my room and catching a leg, holding onto it for a minute, then laying it down. Usually the kicking would resume before she got back to bed. (then dad would scream)
I have taken medications off and on in my adult years to no avail...I guess I am just destined to kick. I do find it comforting to know that I am not alone in this.
Thanks for allowing me to vent,
Judy
I am a 56 year old woman. I have been rocking the bed, or kicking my leg literally all of my life. As a young child, my first memory of my father was how it felt, and sounded, when he would come in my room and beat me through my diaper for "horseying" in my crib. I guess I would move the bed across the floor. (I found this out when I confronted my father about the beatings).
When the horseying stopped, the kicking began. I kick my leg, one or the other, all night long. I remember my mother coming into my room and catching a leg, holding onto it for a minute, then laying it down. Usually the kicking would resume before she got back to bed. (then dad would scream)
I have taken medications off and on in my adult years to no avail...I guess I am just destined to kick. I do find it comforting to know that I am not alone in this.
Thanks for allowing me to vent,
Judy
Hi everyone,
I'm 30 and been rocking my head/body to sleep since i was a baby. It has never really caused any problems for me. As a child I shared a room with my brothers and it annoyed the crap out of my older brother, so he would get me to stop, so i would wait till he was asleep and rock away. Fast forward to now, I'm married and have a 3 year old (who does not rock her head). I think the rocking annoys my wife a bit, but not too much. As i learned from childhood, I try not to rock much when she is awake. I find it to be semi-voluntary, most of the time i know I'm doing it or do it on purpose, but some times i find my head rocking without consciously starting to do it. I can go for long periods where i stop myself from doing it, but have found that its not really worth the bother.
Trying to describe why i do it to someone else is difficult, as i don't really know why i do it. But if i had to try i would say that there is a kind of pressure/stiffness at the base of my skull/back of neck and rocking relaxes that feeling. Also a good strong massage of the neck helps me.
Anyway to conclude, I have gotten used to it and it doesn't hinder my life in any way, nor does it seems to have caused any brain damage:) I haven't ever tried to find a medical solution to this and don't think its worth taking drugs over. Some of you may have a stronger/worse case and it might aversely affect your life and I hope you find a solution that works for you.
A good night to you all!
Erik
I'm 30 and been rocking my head/body to sleep since i was a baby. It has never really caused any problems for me. As a child I shared a room with my brothers and it annoyed the crap out of my older brother, so he would get me to stop, so i would wait till he was asleep and rock away. Fast forward to now, I'm married and have a 3 year old (who does not rock her head). I think the rocking annoys my wife a bit, but not too much. As i learned from childhood, I try not to rock much when she is awake. I find it to be semi-voluntary, most of the time i know I'm doing it or do it on purpose, but some times i find my head rocking without consciously starting to do it. I can go for long periods where i stop myself from doing it, but have found that its not really worth the bother.
Trying to describe why i do it to someone else is difficult, as i don't really know why i do it. But if i had to try i would say that there is a kind of pressure/stiffness at the base of my skull/back of neck and rocking relaxes that feeling. Also a good strong massage of the neck helps me.
Anyway to conclude, I have gotten used to it and it doesn't hinder my life in any way, nor does it seems to have caused any brain damage:) I haven't ever tried to find a medical solution to this and don't think its worth taking drugs over. Some of you may have a stronger/worse case and it might aversely affect your life and I hope you find a solution that works for you.
A good night to you all!
Erik
Hi there,
Just came across this web site by accident, I'm 46 & have been rocking my bed for as long as I can remember.
I honestly thought I was the only one & was a complete weirdo, I've been through so many relationships because I've tried to hide it from my girlfriends, how do you explain to someone that you're a grown man but you rock the bed.
when I was younger I was hyperactive (think that's now called ADHD) but my family didn't know any better so they used to batter (hit me) to stop me from being so hyper. I was repeatedly beaten or so I been told, as I fell heavily when I was 10 & seriously fractured my skull (frontal lobe). I don't know if this has anything to do with the way I am now but I totally lost my memory & have no recollection of my younger years.
I also have Restless Leg Sydrome & have been given Mirapixen & also Dyhydramine (sleeping tablets) to help me sleep, I also take a combination of Cocodamol & Anti inflammatries to help me sleep but still struggle most night to get a good night sleep & I stick rock myself to sleep most night.
Since coming across this site I'm going to go & see my doctor & find out if there is anything else they can do to help, as I'm in the UK we have the NHS so hopefully it shouldn't cost me too much but too be honest I'd sell my house for a good night sleep.
So glad to know I'm not alone & there are at least another few others out there like me.
All the best to all of you in your search for a good nights sleep.
Kevin
Just came across this web site by accident, I'm 46 & have been rocking my bed for as long as I can remember.
I honestly thought I was the only one & was a complete weirdo, I've been through so many relationships because I've tried to hide it from my girlfriends, how do you explain to someone that you're a grown man but you rock the bed.
when I was younger I was hyperactive (think that's now called ADHD) but my family didn't know any better so they used to batter (hit me) to stop me from being so hyper. I was repeatedly beaten or so I been told, as I fell heavily when I was 10 & seriously fractured my skull (frontal lobe). I don't know if this has anything to do with the way I am now but I totally lost my memory & have no recollection of my younger years.
I also have Restless Leg Sydrome & have been given Mirapixen & also Dyhydramine (sleeping tablets) to help me sleep, I also take a combination of Cocodamol & Anti inflammatries to help me sleep but still struggle most night to get a good night sleep & I stick rock myself to sleep most night.
Since coming across this site I'm going to go & see my doctor & find out if there is anything else they can do to help, as I'm in the UK we have the NHS so hopefully it shouldn't cost me too much but too be honest I'd sell my house for a good night sleep.
So glad to know I'm not alone & there are at least another few others out there like me.
All the best to all of you in your search for a good nights sleep.
Kevin
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