Aa
More research connecting gluten to thryoid disease
This article is from Mary Shomon, thyroid patient advocate.
http://thyroid.about.com/cs/latestresearch/a/celiac.htm
Many of you know my antibody attacks quit after I quit gluten. Though I know the GF diet isn't for everyone, keep in mind that gluten be the source of your thyroid disease.
:) Tamra
http://thyroid.about.com/cs/latestresearch/a/celiac.htm
Many of you know my antibody attacks quit after I quit gluten. Though I know the GF diet isn't for everyone, keep in mind that gluten be the source of your thyroid disease.
:) Tamra
COMMUNITY LEADER
You are determined that you've been persecuted aren't you? If I had the time, I'd love to go back in the threads and list every time you touted this diet, book or posted the "read my journal" comment; unfortunately, I have better things to do.
I guess we can take it that you really don't have research to back up your statements, other than to tell us to look in the back of Dr K's book. The fact that you have only one source to back up your statements, says volumes, by itself.
And you know, the really sad thing about all of this is that you still haven't even gotten the point.
I guess we can take it that you really don't have research to back up your statements, other than to tell us to look in the back of Dr K's book. The fact that you have only one source to back up your statements, says volumes, by itself.
And you know, the really sad thing about all of this is that you still haven't even gotten the point.
Well, this thread is still going, and I can't always comment since I actually do have a job and a deadline, but my artwork is uploading, so I'll chime in now.
First, Barbara, sorry for attributing Smiler's comments to you.
Next, thanks Yallolorry for trying to soothe this topic and love and light to you as well!
I will touch on a few key points before I have to split.
Dr. K's book has lots of research. Look in the footnotes in the back of his book where he refers to these studies.
About a year ago, another poster came to this forum and asked our advice because her holistic doc wanted to treat her disease. We all chimed in "NO!" I now regret that advice. I've leaned to trust in the doc who makes you feel well, whether he/she is an endo, an MD, or a holistic doctor.
I belong to another strictly Hashi online support group. Many of my friends there are on a whole food, low carb and GF diet. Many of us have had to eliminate some dairy, etc. but the key is that we all feel MUCH better. As I said in my very first post, I know the GF diet isn't for everyone, but I want others on this forum to know that I, and many of my other Hashi friends, have found much improved health through dietary changes. My friends Alice and Linda have seen their antibodies drop by the thousands and they no longer take thyroid hormone.
I am currently seeing an endo who treats my thyroid levels and gives me my much needed yearly thyroid ultrasound. However, he does not test or treat adrenals and he does not test or treat TH1/TH2 dominance. I go to a team of holistic docs (who are also chiropractors) for that. In the past several years in searching for an answer to my unexplainable illness, I've never met a team of more knowledgeable and caring doctors. I'm sure there are those chiros who specialize in accidents, etc. These docs I'm seeing are different. We have many Hashi patients in our office who are also much improved. I speak to them in the waiting room. Their good health, and my good health, validates my decision to follow a holistic approach to wellness.
My antibodies have not gone down, Goolara, however, I am not measuring my antibody levels to track my success. For me, the fact that I feel well again is a much better gauge. My adrenals are still trying to play catch-up, but I'm feeling so much better now.
Maybe we don't all agree that gluten and leaky gut syndrome is somehow connected to thyroid disease, but I think we can all agree that if you remove something from your diet and you feel better, then it was a wise decision to remove it.
Last year at this time, I could hardly get off the couch. Now, I'm reclaiming my life and making up for lost time with my child.
By the time I convinced my third endo to check my thyroid antibodies and levels, my frees were bottomed out and I'd become dependent on prescription painkillers. Can you imagine that life through my child's eyes? She cried hysterically during The Little Mermaid when she realized Arial didn't have a mother. I'm sure there are many, many thyroid patients with similar stories, and I feel compelled to help them know that they might have the same results as me through dietary changes.
This is an open forum where people should be able to bring new ideas to the table without persecution. For those who've claimed that I've inundated this site with posts about my diet, I scrolled through my three most recent posts about my progress: July 7, June 18 and April 29. That's less than one post a month. Please don't try to silence someone's opinion just because you disagree.
Take care all...
:) Tamra
First, Barbara, sorry for attributing Smiler's comments to you.
Next, thanks Yallolorry for trying to soothe this topic and love and light to you as well!
I will touch on a few key points before I have to split.
Dr. K's book has lots of research. Look in the footnotes in the back of his book where he refers to these studies.
About a year ago, another poster came to this forum and asked our advice because her holistic doc wanted to treat her disease. We all chimed in "NO!" I now regret that advice. I've leaned to trust in the doc who makes you feel well, whether he/she is an endo, an MD, or a holistic doctor.
I belong to another strictly Hashi online support group. Many of my friends there are on a whole food, low carb and GF diet. Many of us have had to eliminate some dairy, etc. but the key is that we all feel MUCH better. As I said in my very first post, I know the GF diet isn't for everyone, but I want others on this forum to know that I, and many of my other Hashi friends, have found much improved health through dietary changes. My friends Alice and Linda have seen their antibodies drop by the thousands and they no longer take thyroid hormone.
I am currently seeing an endo who treats my thyroid levels and gives me my much needed yearly thyroid ultrasound. However, he does not test or treat adrenals and he does not test or treat TH1/TH2 dominance. I go to a team of holistic docs (who are also chiropractors) for that. In the past several years in searching for an answer to my unexplainable illness, I've never met a team of more knowledgeable and caring doctors. I'm sure there are those chiros who specialize in accidents, etc. These docs I'm seeing are different. We have many Hashi patients in our office who are also much improved. I speak to them in the waiting room. Their good health, and my good health, validates my decision to follow a holistic approach to wellness.
My antibodies have not gone down, Goolara, however, I am not measuring my antibody levels to track my success. For me, the fact that I feel well again is a much better gauge. My adrenals are still trying to play catch-up, but I'm feeling so much better now.
Maybe we don't all agree that gluten and leaky gut syndrome is somehow connected to thyroid disease, but I think we can all agree that if you remove something from your diet and you feel better, then it was a wise decision to remove it.
Last year at this time, I could hardly get off the couch. Now, I'm reclaiming my life and making up for lost time with my child.
By the time I convinced my third endo to check my thyroid antibodies and levels, my frees were bottomed out and I'd become dependent on prescription painkillers. Can you imagine that life through my child's eyes? She cried hysterically during The Little Mermaid when she realized Arial didn't have a mother. I'm sure there are many, many thyroid patients with similar stories, and I feel compelled to help them know that they might have the same results as me through dietary changes.
This is an open forum where people should be able to bring new ideas to the table without persecution. For those who've claimed that I've inundated this site with posts about my diet, I scrolled through my three most recent posts about my progress: July 7, June 18 and April 29. That's less than one post a month. Please don't try to silence someone's opinion just because you disagree.
Take care all...
:) Tamra
No one's going to beat up on you! What you're seeing here, I believe, is months and months of pent up frustration surfacing. Unfortunately, since many of us have asked questions and have received no response (in this thread), but instead have been accused of "persecution" and bullying, the frustration continues to build. So, sorry if we appear threatening, we don't mean to be, but we are also only human...
I agree that this is a really interesting thread. I'd like to see more resolution before it ends.
I agree that this is a really interesting thread. I'd like to see more resolution before it ends.
COMMUNITY LEADER
Whenever someone touts a treatment as a "cure" for something that is not curable, they have to be questioned. No one has ever said that treating FT3 levels is going to cure a thyroid issue; however, studies show that FT3 levels "do" correlate best with symptoms and when FT3 is adjusted properly, most symptoms will ease or go away completely, for many people. Keep in mind -- this is not a cure, it's a treatment; and you are absolutely correct that no one treatment works for everyone.
The problem is that Tamra DID, on many occasions, in other threads, make the statement that going g/f and/or following Dr K's protocol could/would CURE Hashimoto's. It will not; I happen to have bought Dr K's book, just to see if it's all it's cracked up to be -- trust me, it's not. Even Dr K was smart enough to put in a disclaimer that states that his protocol is not a cure.
The second problem is that, rather than come out and say she didn't have the data we were asking for or even trying to discuss the issue with us, she, first had the audacity to accuse us of persecuting her - if all else fails, lay on the guilt trip?; and when that didn't work, she flat out attacked me; erroneously, I might add. Up to this point, we have seen neither discussion on her part; nor an apology.
It has been stated many times during this thread, that we are all very happy that Tamra has had the success she has. I think it's wonderful, absolutely. Same goes for anyone who has been successful with going g/f.
It's been mentioned that this protocol is taught to chiropractors mostly, who normally do not treat thyroid issues. I would venture to say that the majority of them don't know as much as some on this forum know about thyroid, yet they are treating people with a very serious disease. Wouldn't it make sense to think if the protocol were so great and there was proof that it really works, mainstream medicine would be embracing it?
There are any number of things that can be done to help make our thyroid symptoms less "severe"; not any of these things fit EVERYONE, ALL the time; we have to look at the poster's situation and answer accordingly, i.e. if someone complains of joint/muscle aches, I might suggest that they try magnesium; however, if they complain of headaches and fatigue, I would suggest something else. My point is that not EVERY question requires the same answer; and not every situation has the same solution. Yet, for some time, almost everyone of Tamra's posts insisted that going g/f would cure Hashimoto's.
There never was intention to "kill participation" and there never was an intention for anyone to get hostile. I might suggest that anyone who is in doubt about how things got this far, you go back and read the entire thread again. Admittedly, it is getting very long and hard to keep up with.
On a final note: yallolorry, you won't get negative feedback from me. You are entitled to you opinion and it's valued. You are right; a more gentle tone might have worked wonders at one point.
The problem is that Tamra DID, on many occasions, in other threads, make the statement that going g/f and/or following Dr K's protocol could/would CURE Hashimoto's. It will not; I happen to have bought Dr K's book, just to see if it's all it's cracked up to be -- trust me, it's not. Even Dr K was smart enough to put in a disclaimer that states that his protocol is not a cure.
The second problem is that, rather than come out and say she didn't have the data we were asking for or even trying to discuss the issue with us, she, first had the audacity to accuse us of persecuting her - if all else fails, lay on the guilt trip?; and when that didn't work, she flat out attacked me; erroneously, I might add. Up to this point, we have seen neither discussion on her part; nor an apology.
It has been stated many times during this thread, that we are all very happy that Tamra has had the success she has. I think it's wonderful, absolutely. Same goes for anyone who has been successful with going g/f.
It's been mentioned that this protocol is taught to chiropractors mostly, who normally do not treat thyroid issues. I would venture to say that the majority of them don't know as much as some on this forum know about thyroid, yet they are treating people with a very serious disease. Wouldn't it make sense to think if the protocol were so great and there was proof that it really works, mainstream medicine would be embracing it?
There are any number of things that can be done to help make our thyroid symptoms less "severe"; not any of these things fit EVERYONE, ALL the time; we have to look at the poster's situation and answer accordingly, i.e. if someone complains of joint/muscle aches, I might suggest that they try magnesium; however, if they complain of headaches and fatigue, I would suggest something else. My point is that not EVERY question requires the same answer; and not every situation has the same solution. Yet, for some time, almost everyone of Tamra's posts insisted that going g/f would cure Hashimoto's.
There never was intention to "kill participation" and there never was an intention for anyone to get hostile. I might suggest that anyone who is in doubt about how things got this far, you go back and read the entire thread again. Admittedly, it is getting very long and hard to keep up with.
On a final note: yallolorry, you won't get negative feedback from me. You are entitled to you opinion and it's valued. You are right; a more gentle tone might have worked wonders at one point.
"Tamra: is testifying what has happened in her own personal experience "without scientific data to back it up" so that she would be misleading to make a blanket statement that this would work for everyone" (i didn't see her doing this but maybe i missed something somewhere) this is a very long thread.. but honestly it doesn't matter if she did or not ..."
It does matter; this is the point of this whole discussion...you have missed something. We are not reacting only to what is contained in this particular thread (and, yes, it has gotten very long). The crux of K's book is that gluten causes Hashi's and a g/f diet is a MUST for everyone with Hashi's. Although, of late, Tamra is careful to include "this is not for everyone" in her statements, this has not always been the case. The book and the g/f message have been touted day after day for months to just about anyone and everyone...newer members are starting to talk about a g/f diet "curing" Hashi's like it's an accepted fact. Yes, everyone is welcome to share their experiences. But, this has gone way beyond sharing, as I pointed out early on in this thread.
Even the title of this thread, "More research connecting gluten to thryoid disease", is misleading..."more" indicates that we have already seen some, and this is just adding to it (we've seen none so far)..."research" indicates that the article referred to is more than an editorial piece (if you read the original text of the study cited in the article, you will see that some of MS's opinions are NOT part of that study). And, more importantly, as an original post, this thread is addressed to "everyone". Personal experience has its place...it can even be an original post...once. It's just been way overused.
It does matter; this is the point of this whole discussion...you have missed something. We are not reacting only to what is contained in this particular thread (and, yes, it has gotten very long). The crux of K's book is that gluten causes Hashi's and a g/f diet is a MUST for everyone with Hashi's. Although, of late, Tamra is careful to include "this is not for everyone" in her statements, this has not always been the case. The book and the g/f message have been touted day after day for months to just about anyone and everyone...newer members are starting to talk about a g/f diet "curing" Hashi's like it's an accepted fact. Yes, everyone is welcome to share their experiences. But, this has gone way beyond sharing, as I pointed out early on in this thread.
Even the title of this thread, "More research connecting gluten to thryoid disease", is misleading..."more" indicates that we have already seen some, and this is just adding to it (we've seen none so far)..."research" indicates that the article referred to is more than an editorial piece (if you read the original text of the study cited in the article, you will see that some of MS's opinions are NOT part of that study). And, more importantly, as an original post, this thread is addressed to "everyone". Personal experience has its place...it can even be an original post...once. It's just been way overused.
this is a really interesting thread. I've been mostly just reading and not joining in but would just like to say I think dpleiman's post above is highly salient and well made.
thanks all for the knowledge and passion shared. I find all of it incredibly useful and am in no hurry for the discussion to end as I feel I'm learning a lot.
if everyone could calm down a bit going forward though that would be even better. It's the discussion that's valuable, It sounds to me like everyone actually really respects each other and it's a shame a bit of emotion has crept in because of everyone's passion about the issues involved.
Perhaps that emotion has come up in response to a few comments made in places that might look a bit careless on re-reading and seem to have escalated a bit as the discussion has developed, we are all grown ups and could perhaps rise above the personal stuff now, to focus on debating the issues.
there, I've done it, I've dipped my toe in this scary but very compelling thread, and it was a scary thing to do as I don't want to be the but of anyone's ire for saying my piece and there really have been some harsh sounding words on here from several posters, probably not intended to kill participation but worth noting that they could have had that effect on some people and I find it difficult to imagine anyone would want that so perhaps something for the next person to post to bear in mind....
a more gentle tone all round might serve us going forward.....
oh god, now I'm terrified what feedback I'm going to get, but I've said what I wanted to say.
love and light to all
thanks all for the knowledge and passion shared. I find all of it incredibly useful and am in no hurry for the discussion to end as I feel I'm learning a lot.
if everyone could calm down a bit going forward though that would be even better. It's the discussion that's valuable, It sounds to me like everyone actually really respects each other and it's a shame a bit of emotion has crept in because of everyone's passion about the issues involved.
Perhaps that emotion has come up in response to a few comments made in places that might look a bit careless on re-reading and seem to have escalated a bit as the discussion has developed, we are all grown ups and could perhaps rise above the personal stuff now, to focus on debating the issues.
there, I've done it, I've dipped my toe in this scary but very compelling thread, and it was a scary thing to do as I don't want to be the but of anyone's ire for saying my piece and there really have been some harsh sounding words on here from several posters, probably not intended to kill participation but worth noting that they could have had that effect on some people and I find it difficult to imagine anyone would want that so perhaps something for the next person to post to bear in mind....
a more gentle tone all round might serve us going forward.....
oh god, now I'm terrified what feedback I'm going to get, but I've said what I wanted to say.
love and light to all
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