Aa
Anyone?
I was wondering if anyone has been diagnosed with Chiari Frommell Syndrome? My dr thinks I might have this and I'm wondering what the treatments are? He thinks I have that or it might be Polymyalgia Rheumatica.
Thanks.
Thanks.
I have seen the syndrome listed before somewhere but cannot recall for the life of me .. maybe try Undiagnosed Symptoms forum?
Cheryl
Cheryl
I am not familiar with Chiari Frommell Syndrome, but I have heard of Polymyalgia Rheumatica. I believe it is an autoimmune disorder that primarily attacks the muscles? I have Behcet's Syndrome or Reiter's Syndrome, my doctors also can't be sure. With all these things I believe immune suppressants can be used to control flares. In the beginning you may need large doses of very stronge medications, but don't be discouraged many new medications are being used to treat these disorders. It often takes a while before you see the affects from treatment. It is a slow progress, and with these things we can never be sure of the future. It's too bad we can't know exactly which disease we are fighting, but the most important thing is that it's treated aggressively and you avoid stress as much as possible in your life.
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