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Uterus Fibroids What is the longest you have bled?. Do recommend removal of uterus?

I use get a period every three months now I have been bleeding for at  least a year. Its like a light period one to two pads a day and then I'll come on my regular cycle. Except this last time it has been so Heavy I used 52 pads in 2 days, clots were huge, like baseball huge. I then started getting really tired, zero stamina, I would walk a very short distance and my heart would be pounding and  I couldn't breathe or catch my breath. Like a dummy I tried to go to work and couldn't make it to the front door without almost passing out, shaking, couldn't catch my breath. They called an ambulance and I thought for sure it was my heart or something.  Come to find out I needed a blood transfusion. My hemoglobin was at a 5!!!! They did a pelvic ultra sound and said I had Fibroids in the Uterus. They gave me 3 units/bags of blood, got me to a 7.1 and sent me home. A normal level is somewhere between 12 or 14. I am to follow up with OBGYN who is wanting to remove my Uterus. I am 45 years old and already have Grandchildren , I do not want another child and am too old.  Its really scary and I have found that the older you get the more worse it gets and the crazier your periods are.  I would like to know what is the longest you have bled? Do you recommend the removal of the uterus why or why not? And if you have had your uterus removed how are things now and what were your side affects?
3 Responses
Avatar universal
I became severely anemic with a hemoglobin of 6 after only bleeding excessively heavy for about a week and a half with my fibroid. It was the size of a grapefruit. I received about 6 or 7 bags of blood transfusions because I was dying of blood loss with the same symptoms you had. My gyne did an emergency abdominal surgery to remove the fibroid but left my uterus intact. This was because I was only 37 at the time and was still hoping to have kids.  

In your case, since you're done with kids, having a hysterectomy is probably a good idea. However, having needed a transfusion already and being severely anemic yourself at this point, I strongly urge you to get in to see a gyne this week and make a decision ASAP. You will continue bleeding and you will need more transfusions soon so you can't afford to wait.  I'm not trying to scare you, but my experience with my situation taught me how quickly this type of bleeding could turn deadly. Please take action on this today and don't wait.
Avatar universal
How awful! I am sorry you are going through this! I assume you've been told to take iron (preferably an absorbable form along with vitamin C to enhance absorption).

Having had a hysterectomy 12 years ago and now suffering the after effects (of which I was not informed by my gyn), I would refuse a hysterectomy unless I had confirmed cancer (proven via biopsy). If you have a surgeon with good myomectomy skills, he/she should be able to remove just the fibroids allowing you to keep your uterus and its LIFELONG functions. And there may be some non-surgical (medical) options. For example, tranexamic acid (Lysteda) is generally very effective at reducing bleeding.

Although hysterectomy is one of the most common (and overused) surgeries, it causes permanent damage in a number of ways.  It displaces the bladder and bowel which oftentimes causes problems, such as urinary and fecal incontinence, especially in the long-term.  It destroys skeletal integrity since the uterine ligaments are the support structures for the pelvis keeping the spine, hips and rib cage where they belong. That's why women's figures change after hysterectomy. The torso collapses causing a shortened and thickened midsection and that "apron" of "fat" in the lower abdomen. These changes tend to lead to chronic back and hip problems and even rib cage pain.

Many women report (and men corroborate) a loss of libido and sexual responsiveness after hysterectomy. One thing is certain - a woman cannot have a uterine orgasm without a uterus. Speaking from experience, this is a big loss. There have been men on forums who have said it feels different and they have difficulty climaxing.

Studies show that hysterectomy with ovarian "conservation" increases risk of heart disease (#1 killer of women) and metabolic syndrome, thyroid cancer, renal cell cancer, and rectal cancer.  

Ovarian function is usually impaired due to the loss of blood flow and feedback with the now absent uterus. One or both ovaries are oftentimes removed (castration) at the time of hysterectomy even when that was not supposed to happen. Ovary removal (and likely impaired ovarian function too) has been shown to accelerate aging and increase risk for many health problems including heart disease, stroke, osteoporosis, hip fracture, lung cancer, colorectal cancer, cognitive and memory impairment, dementia, parkinsonism, vision and skin deterioration, sleep disorders, mood disorders (depression, anxiety, irritability, mood swings), sexual dysfunction.  

Again, hysterectomy is grossly overused and rarely necessary. Unfortunately, this surgery is entrenched in the ob/gyn specialty and emphasized in Graduate Medical Education. Resident requirements were just increased from a MINIMUM of 70 hysterectomies to 85. Yet residents don't have to do any myomectomies.  There are a number of hysterectomy forums for the very reason that there are a lot of women suffering the permanent negative effects of hysterectomy.

There are some resources out there about the lifelong functions of the female organs and alternatives to hysterectomy if you want to do some additional research. I hope this helps you make a decision. Don't allow yourself to be rushed into any surgical procedure since you are stuck with the results, both good and bad. Of course, you need to make sure you maintain adequate iron levels.

I wish you the best!
134578 tn?1614729226
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I think you should move fast because of the risk of more blood loss, and decide soon, but I think you should consult with a top gynecological surgeon about how possible it is to remove the fibroid(s) without removing the uterus. Only go for full uterine removal if someone (who is well thought of for his or her competence to remove fibroids and so doesn't have an axe to grind towards hysterectomy) says it is impossible to treat the situation in any other way. It kind of sounds like you said you don't want more kids, your ob/gyn figured it didn't matter and recommended a hysterectomy because it is easier for an average doctor to do than remove just fibroids and leave the uterus in place. But in your shoes I would be unwilling to lose the whole organ if the fibroids can be dealt with differently.
2 Comments
It kind of sounds like *once* you said you didn't want more kids,
The main thing is, please decide soon with good medical advice (not just a generalist ob-gyn but a surgeon good at this kind of stuff). Take your iron (with vitamin C and I would also suggest a fiber gummy each time, as iron can really constipate you!) and stay hydrated, to try to protect against anemia and dehydration in the meantime, but decide soon what to do. The bleeding is no joke obviously and not taking action means a high risk to you.
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