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My sister stopped Klonapin cold turkey in May and she is having horrible side effects please help

My sister was prescribed Klonapin by her doctor and was told she could quit at any time and to take as little or as much as she needed.  She took it for maybe 6months.  She told her doctor she wanted to stop taking it and he said to just stop.   Since the end of May her life has been turned upside down.  She has had seizures, heart issues, severe head aches on the left side of her head that are debilitating, joint pain, nausea, overall fatigue, numbness in her limbs and other issues.   She has asked several doctors if this is from the drug and they say no.  I feel that it is.  She was given no guidance but has been tested for everything under the sun...epilepsy, lime disease, mono, diabetes, brain scans, mri's...the list goes on and on.   Her temperature has been running really low like, 97 degrees too.  The doctor's just keep blowing her off.

She desperately needs to get to the right doctor.    She has lost her job over this, we as a family have spent the little that we have trying to help her.  I have read so many awful things about stopping cold turkey and I'm so worried about the effects.  she says she feels like a virus is eating her brain.

it seems like the seizures have gotten less severe, however, with increased activity it seems her side effects come back.  please please any help this site can offer we would be so grateful.  she even called one benzo addiction hotline and they said they would call her back and they never did!  Help!  Thank you very much.
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Avatar universal
I went c/t off of klonopin over 3 yrs ago...IT was true helll!!  I didn't experience all of her symptoms she has now, but most of them....It was also months..I also took the klonopins as persribed, and did not take everyday, but i took them for over 2 years...The doctor should of tapered her down..But i have to say that 5 months is a long time to still have extreme syptoms...My symptoms were extreme for about 3 months...I think she needs to keep trying to find another doctor...Good luck...Wish i had more advice, but benzo w/d's are just terrible...
god bless
r2r
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Avatar universal
i had taken klonopin for 7 years, 3 a day.  i was told the same thing. i ran out one day and all the withdrawals started.  could not eat, sleep, could not function.  i stayed in bed for 3 days and felt lifeless.  the scariest thing was i could not control my leg and arm movements.  my legs and arms would just jerk up by themselves.  my legs always had that crawling feeling.  i would throw up all the time.  someone finally got my script filled and i was fine.  after that, i knew i had to get off these the klon.  i can tell you how i did it with no withdrawals at all.  the first three months, i dropped one pill a day only taking two.  the next three months, i only took one pill a day.  the next three months, i only took a half a pill a day and then i took 1/4 a day for about a month.  then an 1/8 for a month and then just a knibble off an 1/8 for about a month and then i was free.  it took almost a year.  i never told my doctor i was getting off of them because a knew he would try to take me off fast and i cannot stand pain or w/d symptons.  when i finally told him what i had done, he was very suprized that i took so long to do it, but was extremely pleased that i did it on my own.  taking a year to get off this was one of the best decisions i have every made.  i felt like getting off klonopin too fast would cause more problems than i could handle.  if the option of taking your time is availabe, try it.  you will be so much better off than trying to get off in a few weeks.  i hope this helps and GOD BLESS
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325131 tn?1227184781
I was never addicted to klonapin but a friend has been tapering her dose. She has been experiencing hot flashes, mood swings and sweats. But nothing as severe as seizures. She had been taking it only at night for RLS.
Maybe your sis would benefit from coming on here for support as she goes thru wds. It sounds like oxyfree has some experience and I'm sure many others do too.
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Avatar universal
when i stoped taking my klonopin,i did it cold turkey,and had months of panic attacks.
I  know now i should have done a slow taper,anyway,get on the net and look up benzo withdrawal,benzo.org.uk is a good one.things will go back to normal they did for me.
let us know if we can help,OXY
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