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any advice on this one please a need some help

I am trying to figure out a way to stop taking my Valium i get 60 mg every day and have been for 18 to 20 years. but i was prescribed them for epilepsy but did not take the amounts i was meant too. But i did while w/ds from the Heroin addiction as they helped a little when in wds. They make me bad mooded a bit sometimes though, but should i go c/t with them as i haven't had a fit for a while, although i still take night fits kim says and i suffer from sleep apnoea. I want to be completely drug free but the doctor doesn't think i should but she also told me not to c/t of heroin and i done that and beat it. Do you think i should stop taking them and see if the epilepsy has gone. I think i need a bit of advice on this one as i really don't want to be taking them but kim is scared that i start taking fits again and it took about 3yrs to get the right dosage of Valium and carbamazepine the last time. I was actually clinically dead once after taking a grand Mal seizure. I was on the settee and just back from tenerife where i received a serious head injury which obviously caused the epilepsy. I was lying down and according to kim and my mum started fitting, then stopped breathing so kim phoned an ambulance and they told her she must get me off the setee and give me mouth to mouth while the ambulance was coming, but i was 17 stone then ( before heroin). So kim and my mum tried to get me off the setee and dropped me and it was that crash to the ground that made me take a gasp of breath as i had swallowed my tongue and my lips were blue. Kim pulled my tongue out, which they gave her a row for as i could have bit her fingers off but she didn't care as she would rather be minus a couple of fingers than a husband she said.. Kim had never been so scared in her life as she was that day and says she could not go through that again and i had numerous fits after that as i said it took them three yrs to get the right tablets and dosage and even then i still took fits some that bad that they had to put me on a ventilator.can anyone help or give me some advise on it please Kim is totally against this but i want to be free of all drugs James
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495284 tn?1333894042
COMMUNITY LEADER
That type of med can be very dangerous to stop ct especially with your epilepsy.  Dont make me come to Scotland to yell at you!!!  Seriously here this is really something you dont want to just quit.  Discuss all the pros and cons with your doctor while Kim is sitting there to keep her watchful eye on you!!   You have to be safe and i know you want off the meds but sometimes that just isnt the case when medical issues such as this one is involved.        sara
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Avatar universal
SARA I HEAR WHAT YOU ARE SAYING ARE THEY DANGERIOUS JUST TO STOP THEM. CAN THEY CAUSE YOU TO SEVERLY FIT AGAIN THATS A STUPID ANSWER AS THEY MUST BE AS THEY CAUSE ME TO HAVE GRAN MAL SEIZURES AND AS I SAID IN MY POST MY FIRST FIT WOULD HAVE KILLED ME HAD KIM AND MY MOM NOT BEEN IN THE HOUSE THAT DAY I WILL DISCUSS WITH MY DOCTOR I ALREADY GERT TWO OTHER MEDICINES FOR MY SEIZURES  THANKS SARA JAMES
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495284 tn?1333894042
COMMUNITY LEADER
DONT GO CT OFF THESE.  I was yelling that at you James!!  You dont want to just abruptly stop valium.  You really need to discuss this with your doctor since you have an underlying issue.  Maybe there is another med that you can take.  Listen to your wife and your doctor......sara

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495284 tn?1333894042
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