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Reactivated EBV results
My recurring symptoms started up back in February. Over the course of the last few months, I've had a multitude of symptoms: Palpitations, abdominal pain, back pain, numbness/tingling in legs/feet, burning in the feet, chest pain, joint pain, muscle pain, fatigue, low-grade headaches, indigestion, night sweats (but not very many of them and not for awhile now), chills, hot flashes, frequent urination, conjunctivitis, ringing ears, and painful testicles. So basically, I feel whatever I have courses through my body because my symptoms change from week to week. Some days I feel like I'm recovering and then the next day I'm dragging. Or sometimes it works in half-day intervals.
Pretty much all of my testing has come back negative: gobs and gobs of blood work, CT of chest and abdomen, head MRI, EMG of major leg nerves, echocardiogram, heart cath, chest x-ray, lumbar spine x-ray, holter monitor, urine tests, ultrasound on thyroid, and upper GI.
Findings, not much: low potassium (briefly), low vitamin D, moderate acid reflux, mild gastritis in stomach, small kidney cysts. Some numbers on my bloodwork at times were a little out of range, but most of my CBC's have been within range.
The one item that has stood out is my EBV test results. The antibody testing shows that I contracted EBV a long time ago, but all of the current antibodies has high titers.
Pretty much all of my testing has come back negative: gobs and gobs of blood work, CT of chest and abdomen, head MRI, EMG of major leg nerves, echocardiogram, heart cath, chest x-ray, lumbar spine x-ray, holter monitor, urine tests, ultrasound on thyroid, and upper GI.
Findings, not much: low potassium (briefly), low vitamin D, moderate acid reflux, mild gastritis in stomach, small kidney cysts. Some numbers on my bloodwork at times were a little out of range, but most of my CBC's have been within range.
The one item that has stood out is my EBV test results. The antibody testing shows that I contracted EBV a long time ago, but all of the current antibodies has high titers.
I am in NH. After close to 15 years of unexplained immune disorders, including temporary loss of my eyesight, mono at 35, clinical diagnosis of Lyme and 2 years of treatment for Lyme - I am now told that I have EBV with CFS. Of all the symptoms, the crushing fatigue is by far the worst and has had the most impact with trying to function at work and home. After years of antibiotics for Lyme, and antidepressants for being told this was all in my head, it is now suggested that I start on Ritalin or Concerta to offset the fatigue. Has anyone had luck going in that direction? I can't believe how conflicting the internet is when searching for info on EBV and CFS. The Dr told me blood test was indicative- Mayo clinic says there is no blood test. I am so tired and don't know where to turn. The days I feel "normal" I can count on one hand a year. Do the symptoms ever go away for good or is this just something I have to accept as my new normal? Any reliable resources for me to study would be appreciated.
I live in windsor, Ontario, Canada. I have a 17 year old son that has been sick since December 2011. After almost a year of making trips to our family doctor! many test, scans, (I had to request) a trip to see a specialist in Texas etc. In December of 2012 he was diagnosed with EBV and CMV. He has been under the care of a naturopath and a doctor of internal medicine. He was recently been put on a treatment of prednisone (6 week treatment) to try to suppress his immune system because it is attacking his body. (He has a lesion on his brain that is post viral). He is halfway through his medication and last Saturday seemed to be getting better, Thursday he started with the headaches coming back (not as severe) and today he has pain in around his liver area. I really don't know where to go next. My son has always been healthy.
I live in windsor, Ontario, Canada. I have a 17 year old son that has been sick since December 2011. After almost a year of making trips to our family doctor! many test, scans, (I had to request) a trip to see a specialist in Texas etc. In December of 2012 he was diagnosed with EBV and CMV. He has been under the care of a naturopath and a doctor of internal medicine. He was recently been put on a treatment of prednisone (6 week treatment) to try to suppress his immune system because it is attacking his body. (He has a lesion on his brain that is post viral). He is halfway through his medication and last Saturday seemed to be getting better, Thursday he started with the headaches coming back (not as severe) and today he has pain in around his liver area. I really don't know where to go next. My son has always been healthy.
I really sympathize with you so much. My test looked like I was re-actived also a long ago, never went to an infectious disease doctor but I just had a
really bad spell of pain all over, like lightning striking me all over burning like I was laying in a bed of coals, it was horrible!! It lasted about 3 wks. But, your symptoms sound like POTS which I think you mentioned and I've always had symptoms of Addisons myself, and having been researching my problems for yrs and finally settled on Ehlers-Danlos, or hypermobile joint syndrome, but POTs is one of the things that can go along with it, and I also think having both of these conditions it sets you up for these attacks one sets the other off or whatever, the chicken or the egg. But you should check out Dr. Dianna on you tube, her speaking POTs, mast cell, EDS. web site prettyill.com, or .org.Anyway, am rushing no telling how this is written so bare with me.
really bad spell of pain all over, like lightning striking me all over burning like I was laying in a bed of coals, it was horrible!! It lasted about 3 wks. But, your symptoms sound like POTS which I think you mentioned and I've always had symptoms of Addisons myself, and having been researching my problems for yrs and finally settled on Ehlers-Danlos, or hypermobile joint syndrome, but POTs is one of the things that can go along with it, and I also think having both of these conditions it sets you up for these attacks one sets the other off or whatever, the chicken or the egg. But you should check out Dr. Dianna on you tube, her speaking POTs, mast cell, EDS. web site prettyill.com, or .org.Anyway, am rushing no telling how this is written so bare with me.
My symptoms are similar to yours. Heart palpitations, extreme fatigue, anxiety, low stress tolerance, body aches, headache etc. I have many more symptoms but won't go on and on. I only found relief when I saw a naturopathic doctor. She ordered the correct blood tests on the first vist only after seeing about 5-6 M.D.'s with no relief. The blood test revealed a reactivation of EBV. A naturpathic doctor in your area might help! good luck!
My symptoms are similar to yours. Heart palpitations, extreme fatigue, anxiety, low stress tolerance, body aches, headache etc. I have many more symptoms but won't go on and on. I only found relief when I saw a naturopathic doctor. She ordered the correct blood tests on the first vist only after seeing about 5-6 M.D.'s with no relief. The blood test revealed a reactivation of EBV. A naturpathic doctor in your area might help! good luck!
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