Dont Ask a PCP a Question About HCV

[nygirl7]

As some of  you know I have been in the hospital since Monday. Long boring story. Anyways one of the problems was my system crashed my liver enzymes went up into the 100s, I was throwing up blood, my electolytes went nuts etc etc.


Anyhow this morning i asked again, the PCP on my case why did my LFTs go up so high I have been SVR for over 4 years and they have never been higher than 20/25.  She told me that my hepatitis came back and it was active. I said no I had my blood work last month and they were right in the 20s I have been cured over 4 years and UND for 6.  She had the nerve to tell me that our hep comes and goes that we are never cuired because it is always acrtive and so our enzymes will always go up and down.

Now, this was at 6am.  I haven't eaten in 5 days. They wake you up every two hours. I lost it I just said Doctor you obviously dont know what you are talking about so please leave my room because I'm not about to argue with you and your old out of date education.

She snarked at me in her Indian accent which I can't copy here and was like humph.................good this is why we have such bad reputations.  Why would we bother to treat if we had lfts in the 100s all the times out of the blue our hep would just come and go like she told me.

Oh I am MAD. I am outta here discharging now.  

Sorry I had to vent at the ignorance. I'm just so tired and so MAD.

[Bali05]

Should I SVR I plan on waving a letter on Weil Cornell , Division of
of Gastroentereology and Hepatology  stationary signed by Dr. J
in front of anybody`s  face that might have a question......

b

[nygirl7]

Hey that's a pretty good darn idea.  I do plan on using Dr. J in my letter - if these hick PCPs don't know that name then I give up.........although judging by all that went on I am not sure what they know any longer. I'm going next week and will find out.

It's just so stupid I mean if hepc comes and goes even after SVR what in the world would all be treating for? Duh.

[Bali05]

In the waiting area during one of my Dr. Jacobson appointments there was a big
sign stating that Hep C is curable.
I asked him about that and if in the event of SVR if I could get that in writing .
Now I am not SVR yet but you are and you were treated by Dr. J
Why don`t you get it in writing ?

[vik97]

Sorry to hear about the trouble that you're having with that stupid doctor.  I once had a nurse tell me that there was no cure for hep c.  I hope you feel better soon.

Vik

[EyesofBlue55]

Hope you get your ordeal straightened out and good luck with your letters.Gosh if hep c is that easy to treat-Im coming to see that doc  LOL !!!!!take care cindy

[Jeff88]

World if full of ignorant people and we cannot avoid them and they do us harm.

The most important thing, Deb, is that you are SVR for many years!
Enjoy life of a hep free person who, yes, sometimes can get sick!

Take good care.