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7002065 tn?1443073614

does interferon destroyed my soul?

Hi, I did take IFN alpha together with sovaldi for 12 weeks. That was 3 months ago. I cleared the virus. My ability to focus and for example play guitar is totally wrecked. I was so happy before treatment. Now I can't properly talk. I feel like I lost 50 points lent IQ.
I'm only 25 and I'm about to kill myself if my soul doesn't comes back. I don't want to live in this shell tx left behind... Sad
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7002065 tn?1443073614
Wow, that's it! Interferon causes brain inflammation! Of course! Horrible!! Why the doctors don't told me that??5 years until it gets better? What the heck?? I should think about suicide again
Helpful - 0
Avatar universal
I'm so sorry.  You have, amongst other things, something akin to "depersonalization syndrome."  It's terrifying and lonely.  I have been exactly where you are.  People around you do not understand.  A lot of people on these forums do not understand.  I know how you feel and send my sympathy and love from afar.  Here comes a slew of commentary, all of it my opinion, all of it born from hard personal experience and much thought:

I am convinced the symptoms that arise post-treatment are from inflammation.  Your immune system has been damaged.  It is now attacking your brain and probably other parts of your body.  You have to lessen inflammation in your body.

You MUST eat very carefully.  If you eat pizza, cheese, bread, fatty meats, sausages, notice how much worse your mental and cognitive state is afterwards.  

On the other hand, eat vegetables, fruit, modest amounts of organic non-red meat, small fish - see how symptoms diminish.  Basically eat a non-inflammatory diet such as one with psoriasis or arthritis would eat.  It will help you feel better.  This is important.  See a book by a guy named John Pagano re: psoriasis.  Very good book on diet.

Look into fasting to "reset" your immune system.     http://www.telegraph.co.uk/news/uknews/10878625/Fasting-for-three-days-can-regenerate-entire-immune-system-study-finds.html

See a good counselor for support with grief, loss, PTSD.  Maybe see a rheumatologist (to counter inflammation) and / or neurologist (to assess if your brain is inflamed - I would bet a lot of money there is - it needs to be documented, scanned, confirmed, for you and all of us and for those poor souls in the future ).  Does your medical insurance system support such a thing?  

Get your thyroid checked.  Important.

Find a good, sympathetic general practitioner.  He or she may need educating.  

Probably need to apply for disability until brain fog lifts.  Don't wait too long.

Send this posting stream to whatever agency in Germany approves drugs.  Tell them who you are in the stream.  BigPharma spends millions to hide these truths from doctors.

Check out LDN therapy in this hepatitis forum.  Search for it.  I did it for two years.  It helped immediately, my mood and affect and cognition.  I ended up stopping because it was affecting my sleep and digestive system, and my immune system had recovered somewhat.  

Time?  It took me 5 years to get back to near normal, and I am still up and down.  It may get a little bit worse before it gets better.  It will get better (I have been there - it will get better).  You must be strong.  Make it through to help others.

Learn the Fourfold Noble Truth and the Noble Eightfold Path.

This may also help.  It's from reiki:

"Just for today, do not be angry
Do not worry and be filled with gratitude
Devote yourself to your work and be kind to people"

Note that "your work" at this point is probably loving yourself and regaining your soul and your health again.  

A kind reiki provider will help you too, probably a lot.  Close your eyes and ask for the good energies in the universe to fill you.  Reach your arms up and out and pull good energy from the universe into your body with your hands, starting them above your head and into your brain and then down the front of your body into your heart.  I know it sounds "out there," but it works.  

I don't know who or how you are, but if you get yourself through this you will probably find you have lost much but gained in other ways.  Few things will ever scare you again.  You may find a level of mysticism and power that you never knew could exist within you.  

May you feel the love of all.    

Helpful - 0
Avatar universal
Good morning!  I hope you had a good day yesterday and have a better one today!  

Is that your country of origin?  Where did you treat for hepc?  Are the Drs/Nurses listening ----- and hearing what you tell them about your symptoms and former treatment?   Have they checked your harmone levels?  I read something on another thread that suggested that there can be a problem w/low T which can prolong/make worse your symptoms - not trying to diagnose/just offering a line of thought.

What was the weather like yesterday?  Are you able to get outside at all to enjoy fresh air and sunshine?  Boy, I am just full of questions today!  Sorry, do not mean to intrude or pry.  Feel free to ignore any questions you do not wish to answer.

Have a Sunrise, butterflies and gorgeous rainbows day.

Hugs, Pat



Helpful - 0
2059648 tn?1439766665
Were you in the hospital the whole time you treated Hepatitis C?
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7002065 tn?1443073614
im living in Germany, i will not say the town cause i want keep the anonymity.
im living here because im forced to. A judges decision.
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7002065 tn?1443073614
and why didn't you recovered from the Interferon? i mean, what are your symptoms nowadays?
Helpful - 0
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