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CONFUSED WITH RESULTS END OF THE ROAD?
Hi well all my tests for lyme are back.
I have tested positive for 5 bands:
IgG 23
31
39
41
66
93
3 bands Igm
23
39
41
On the paperwork from Igenex, and Immunosiciences it says you have to have 5 bands specific IgG and 2 of IGM, well i have 6 and 3.
I have just received the last results from Invitalab and it says MELISA negative.
No active lymes.
So does that mean I dont have it now then, but did have it one time.
This is a good result isnt it does it mean I can rest easy and it isnt lymes anymore?
So confused with all this to be honest, and i cant talk to my doctor untli the end of the month lol.
My sympoms are worsening the burning in my legs is constant right now, so it is looking perhaps it is MS after all. Mariax
I have tested positive for 5 bands:
IgG 23
31
39
41
66
93
3 bands Igm
23
39
41
On the paperwork from Igenex, and Immunosiciences it says you have to have 5 bands specific IgG and 2 of IGM, well i have 6 and 3.
I have just received the last results from Invitalab and it says MELISA negative.
No active lymes.
So does that mean I dont have it now then, but did have it one time.
This is a good result isnt it does it mean I can rest easy and it isnt lymes anymore?
So confused with all this to be honest, and i cant talk to my doctor untli the end of the month lol.
My sympoms are worsening the burning in my legs is constant right now, so it is looking perhaps it is MS after all. Mariax
Hi sorry i havent made myself clear.
I have LYmes, co infection and MS.
She will not be recommending steroids.
The only reason why she wants to address the EBV and CMV with anti virals is because these viruses apparently can react with the antibodies on the peptides ELISA test they did, which is showing protein for Lymes but is it picking up the viruses? IF we attack the the EBV and CMV and then do the tests again, IF they are sitll showing protein positives then we know the lymes is still really active. The co infection is but would not be causing me the neuro symptoms.
Sorry i never seem to make myself clear lol.
She is a Lyme literature MD but is being cautious. However, she is also expert on MS too and has seen my MRI films etc and believes I do have MS as well.
I have LYmes, co infection and MS.
She will not be recommending steroids.
The only reason why she wants to address the EBV and CMV with anti virals is because these viruses apparently can react with the antibodies on the peptides ELISA test they did, which is showing protein for Lymes but is it picking up the viruses? IF we attack the the EBV and CMV and then do the tests again, IF they are sitll showing protein positives then we know the lymes is still really active. The co infection is but would not be causing me the neuro symptoms.
Sorry i never seem to make myself clear lol.
She is a Lyme literature MD but is being cautious. However, she is also expert on MS too and has seen my MRI films etc and believes I do have MS as well.
MDs who are not conversant with Lyme will often misdiagnose it as MS. The treatment for MS is steroids, which suppress the immune system, which is the exact opposite of what needs to be done for a bacterial infection like Lyme.
I would want to be very very sure I did not have Lyme before treating with steroids.
I would want to be very very sure I did not have Lyme before treating with steroids.
I got the same diagnosis and almost died from the steroids they tried to give me. What LLMD 's say now is Lyme is MS. Lyme is the great immitater. I was misdiagnosed with MS, Lupus, Hoshimotos, mono, vasculitis, EBV, CFS and more. Unless your tests are run at IgeneX, I am sorry, I don't buy it.
I have brain lesion, Lyme lesions, electrical pain and every other MS symptom. How scary is it to wake up on a ventilator in the hospital half dead because of misdiagnoses. I am trying to help you so you don't have to go through the pain and suffering that most of us have been through.
I am involved with ILADS educational program, telling my story to mainstream doctors to help them learn about Lyme.
I have brain lesion, Lyme lesions, electrical pain and every other MS symptom. How scary is it to wake up on a ventilator in the hospital half dead because of misdiagnoses. I am trying to help you so you don't have to go through the pain and suffering that most of us have been through.
I am involved with ILADS educational program, telling my story to mainstream doctors to help them learn about Lyme.
Well the jury is out, she told me today MS.
She said i have had Lymes and they think the co infection is still active Erlichia but would not be causing all the neuro problems.
However, she thinks the new lymes test antibodies are reacting to the several viruses i have had, EBV, CMV and shingles
She said that we need to address these viruses even though the test show they are not necessarily active the titers are still very high and could be causing my MS to flare really badly and also muddy the waters for the Lymes testing as the antibiodies showing on the ELISA could be reacting against these viruses.
She is prepared to write to my GP and tell her what she thinks about it all and she really thinks i need to urgently go on Anti viral meds.
She has based the diagnosis of MS on the first MRIs I had and the latest MRI I had 2 years ago and also the results of my VEP test and the deficiency showing up in my bloods which are classic for anyone with MS and my neurological exam testing she did and the ongoing problems I am having now.
She wants me to go into their hospital to have detox etc to see if it would help my MS, because of the toxic chemicals they found, but she knows fiances are a restraint. They are sending me a cost.
She said I have a lot going on really and until i get some of the other things under control my MS is going to be a problem for me.
As to the Lymes she feels that we need to sort out the viruses ASAP then re test or something. Sorry i was a bit shocked by it all and didnt take much or all of it in.
What do you think guys. She was quite adamant about the MS diagnosis and is writing and telling my GP her findings, and asking her to put me on anti viral ASAP.
She said i have had Lymes and they think the co infection is still active Erlichia but would not be causing all the neuro problems.
However, she thinks the new lymes test antibodies are reacting to the several viruses i have had, EBV, CMV and shingles
She said that we need to address these viruses even though the test show they are not necessarily active the titers are still very high and could be causing my MS to flare really badly and also muddy the waters for the Lymes testing as the antibiodies showing on the ELISA could be reacting against these viruses.
She is prepared to write to my GP and tell her what she thinks about it all and she really thinks i need to urgently go on Anti viral meds.
She has based the diagnosis of MS on the first MRIs I had and the latest MRI I had 2 years ago and also the results of my VEP test and the deficiency showing up in my bloods which are classic for anyone with MS and my neurological exam testing she did and the ongoing problems I am having now.
She wants me to go into their hospital to have detox etc to see if it would help my MS, because of the toxic chemicals they found, but she knows fiances are a restraint. They are sending me a cost.
She said I have a lot going on really and until i get some of the other things under control my MS is going to be a problem for me.
As to the Lymes she feels that we need to sort out the viruses ASAP then re test or something. Sorry i was a bit shocked by it all and didnt take much or all of it in.
What do you think guys. She was quite adamant about the MS diagnosis and is writing and telling my GP her findings, and asking her to put me on anti viral ASAP.
Mary, I just have a feeling that you're approaching the tipping point.
Something is bound to "give".
Your expectations though, are even worse than those of Confucius:
"Expect NOTHING and you'll never be disappointed"
and totally the opposite of mine :
"I am reasonable, I EXPECT miracles!"
Cannot give any points for your statement. lol!
Cheers!
Niko
Something is bound to "give".
Your expectations though, are even worse than those of Confucius:
"Expect NOTHING and you'll never be disappointed"
and totally the opposite of mine :
"I am reasonable, I EXPECT miracles!"
Cannot give any points for your statement. lol!
Cheers!
Niko
Hi I actually kind of understand that lol.
Thank god i dont live in Naples now lol. I hate cockroaches.
Anyway not long before Tuesday now. Will let you know how i get on. not holding my breath to be honest i expect it will be just another knock back.
Thank god i dont live in Naples now lol. I hate cockroaches.
Anyway not long before Tuesday now. Will let you know how i get on. not holding my breath to be honest i expect it will be just another knock back.
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